Hi my name is Phyllis Lee I have had ms since 1976 but didn'tget officially diagnosed until many years later.
My question is while I have been managing it with out medication. I am beginning to notice several changes and am wondering if anyone else has experienced this. I found out I hadn't seen my neuro in three years
Hi and Welcome PhyllisLee although I wish it was for another reason! Whether you take anything for your MS is always a personal choice, are you considering it now? And what is your neuro suggesting? 🤗💕
J🌠☃️
Hello and welcome to the forum. If you have had ms since 1976 you have lots of experience to share with us all. If you are noticing changes which are not normal for you you should talk to your neurologist. Let us know how you get on, blessings Jimeka 🦋
Welcome!
In answer to your question, MS is always there and the absence of symptoms does not mean there is no disease activity. That's why so many of us choose to take a DMT; they help delay progression and reduce the likelihood and frequency of relapses. Keeping up with a neurologist is important because he/she can monitor disease activity, whether or not we have symptoms.
I do hope you will alert your neurologist about your symptoms and do your research about the numerous DMTs that are available.
Let us know what you find out from your doctor. And be sure to check into what MSAA can do to help you.
Welcome PhyllisLee , I'm glad that you reached out and wrote a post.
As mentioned by others, it is very important that you contact your Neurologist and talk to her/him about your symptoms. If your current neuro is not an MS Specialist you might want to find one or ask your current neuro for a referral. As greaterexp mentioned you might want to visit the MSAA web site and start to review all the different DMDs available.
Jesmcd2 one of our CommunityAmbassadors just posted Resources! healthunlocked.com/mymsaa/p... , You might want to review it. If you have specific questions please feel free to make a new post. I wish you the best on your "new" journey. ~terry
Welcome home PhyllisLee to the most encouraging, supportive, & bestest MSer warrior site on the web!💗💚💙👍💪😃😄 Now, I am still a newbie of DX in May, I do know that I've had RRMS for many decades. In & Out of Remissions & many Relapses. I too am going all natural, no DMT's💊💉 or being a human pin cushion! I became a little Progessed in May, even my Neuro. Said since 2013, when i moved into my Bio-Hazard, mildew/Moldy Apt. ((PRAISE YHVH, FINALLY FOUND SOMEWHERE TO LIVE))👍😃 So, now I have been reversing it slowly, through excersise, Suppliments & better diet, also cleaning out our leaky guts helps too & get very normal again in BM's. Cuz our guts &Brains are connected. If you'll secret Message me, I can help you along. Now. Always remember your family here too!👍💙💚💗Again welcome!---Jazmine🌹💜
Welcome to the group. If you feel your symptoms are changing you should get in to see your neurologist. Perhaps you are going through a flare up. Hopefully you are not.
Hi and Welcome! 😊❤🌷
Welcome PhyllisLee! I was diagnosed many years ago, too. My symptoms change, and I have developed symptoms I never dreamed I would have like seizures, double vision and drop foot, after 38+ years of living with MS. Please see your Neurologist as soon as you can...mine is a lifeline for me...there are therapies that can help you, and hopefully delay progression. I wish you the best! Please keep us posted...
PhyllisLee Welcome to our group! I have a wonderful Neurologist who suggested that I take Tecfidera even though I have one of the "mild" cases, in that I have no major issues. I do have "flares" when I am slowed down considerably and have much mental fog, but not much more, other than my legs get heavy to lift. He says that in taking this DMT I should have fewer flares and those might be of less disability. So far it has been true for me. I am 75, diagnosed 4 years ago, same symptoms for 40+ years! Please don't be afraid of Tecfidera. Something that keeps you from getting much worse is a good thing!
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Symptoms?
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ms symptoms??
Dx with RRMS but always have symptoms
