Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,211 members • 20,958 posts

All posts for August 2018

Long distance friends

I know that all of you have people that you have met who may live thousands of miles away from you, or even half wa around the world. People you may have...

I know that all of you have people that you have met who may live thousands of m...

Chameleon3

•6 years ago

15 Replies

Just a word of encouragement to help you push though those tough moments

Words of encouragement

rjoneslaw

•6 years ago

15 Replies

How tired are you?

rjoneslaw

•6 years ago

14 Replies

Want to take advantage of all our features? Just log in!

My mind is like the internet

rjoneslaw

•6 years ago

8 Replies

Should Ocrevus Begin Listing Hair Loss as a Potential Side Effect?

As I understand, Ocrevus is fairly new drug for the treatment of MS — a little over a year approved as I write this — and * Hair Loss * is not listed as a...

As I understand, Ocrevus is fairly new drug for the treatment of MS — a little o...

TMasonMckee

•6 years ago

85 Replies

When I repeat myself, which we all know I do.

msERs, I do repeat myself, yes it may come across as naggy. but I actually do have a point. Do "YOU" remember everything everybody says to "YOU" the first...

msERs, I do repeat myself, yes it may come across as naggy. but I actually do ...

RoyceNewton

•6 years ago

4 Replies

Ocrevus experiences

Just curious how many people were able to go to work the day after an Ocrevus infusion and how many people have seen improvements?

Just curious how many people were able to go to work the day after an Ocrevus in...

Stronglady

•6 years ago

10 Replies

Looking for YouTube or podcast self hypnosis for infusions?

So, I'm a strong believer in mind body connections and I'd like to potentiate the effects of my upcoming Ocrevus infusion via visualizing the infusion...

So, I'm a strong believer in mind body connections and I'd like to potentiate t...

erash

•6 years ago

18 Replies

Help!!

Can anyone give me some insight on dealing with bowel incontinence? Unfortunately I have had my share of "accidents" and am looking for any available...

Can anyone give me some insight on dealing with bowel incontinence? Unfortunatel...

Hollithia

•6 years ago

5 Replies

Wonderful wishes!

I hope everyone has a great weekend!! Leslie

lbenmaor

•6 years ago

5 Replies

New Shingrix Vaccine

My 93 year old Mom just developed shingles and I would not wish that on my worst enemy now that I see what it is. I have not had my shingles vaccine, because...

My 93 year old Mom just developed shingles and I would not wish that on my worst...

SueAB

•6 years ago

17 Replies

Lectro-Hyper-Sensitivity?! WOW!

This is an astute Dr. WOW!😄 These things do make sense, She May be onto Something here! Just curious is all. Blessings everyone!---Jazmine🌹💜Rose...

This is an astute Dr. WOW!😄 These things do make sense, She May be onto Somethi...

Jazzyinco

•6 years ago

4 Replies

Hmm were "YIU" nice to yourself today?

That is the question, so what is your answer? If "YOU" can not be nice to yourself. Accepting of your difficulties, your insecurities and mistakes. If...

That is the question, so what is your answer? If "YOU" can not be nice to your...

RoyceNewton

•6 years ago

2 Replies

Volunteer Opportunities on the phone

Does anyone know of any Companies or organizations I can do that for? Thanks. Leslie

Does anyone know of any Companies or organizations I can do that for? Thanks. Le...

lbenmaor

•6 years ago

26 Replies

Usefulness, Purpose

There was a reason why this book came into my life, it was in a very roundabout way but now I think I see why a little clearer, why. “IKIGAI” “the Japanese...

There was a reason why this book came into my life, it was in a very roundabout ...

RoyceNewton

•6 years ago

8 Replies

Another Smokey Day

This is the pits have been in the red zone alert for several days 😠. Really makes it hard to get anything done. Yesterday I wore my N-95 😷 and replaced a...

This is the pits have been in the red zone alert for several days 😠. Really mak...

Kenu

•6 years ago

38 Replies

Update

I went for colonoscopy today because GI doctor wanted to make sure there wasn’t any obstructions causing my increase in constipation. He thought it was the MS...

I went for colonoscopy today because GI doctor wanted to make sure there wasn’t ...

Royjr

•6 years ago

10 Replies

I had enough version 2

Dear Lord I really had enough. This is a hard road to travel. Now home alone while my gracious, loving, caring husband goes to work to meet all my needs and...

Dear Lord I really had enough. This is a hard road to travel. Now home alone wh...

TonyiaR7

•6 years ago

25 Replies

A little help?

ok, so recently I just celebrated an anniversary. It was the 20th anniversary of the 30 birthday. I do not celebrate birthdays because I refuse to have any...

ok, so recently I just celebrated an anniversary. It was the 20th anniversary of...

Chameleon3

•6 years ago

13 Replies

No new lesions....?

So, I don't post much but I have a question that's driving me crazy. Literally, I feel like a hypochondriac! I just got my MRI results for my yearly MRI. And I...

So, I don't post much but I have a question that's driving me crazy. Literally, ...

cassielynn71

•6 years ago

29 Replies

Sigh...

So I went to the pain doctor yesterday (Thursday). He asked when I had my last back MRI. I said that I just had one the day before (Wednesday) that the neuro...

So I went to the pain doctor yesterday (Thursday). He asked when I had my last ...

mrsmike9

•6 years ago

12 Replies

Happy Birthday to me

Well today I am 30! And I spent the last 48 hours in bed :( everyone I know that just had their 30th this summer went out or had a party etc I stayed in bed...

Well today I am 30! And I spent the last 48 hours in bed :( everyone I know that...

ktaylor8899

•6 years ago

21 Replies

Hello!

Hello. I am new on here, my name is Maggie. I've been looking into trying to find some places for therapy or groups for people with Ms if anyone has any...

Hello. I am new on here, my name is Maggie. I've been looking into trying to fin...

MaggieMay71616

•6 years ago

11 Replies

Ocrevus or not?

Finally talked with my Neuro she is not going to put me on Ocrevus doing the Tysabri washout by having Tysabri every other month for the next 4 months then...

Finally talked with my Neuro she is not going to put me on Ocrevus doing the Tys...

kycmary

•6 years ago

9 Replies

A simple question for us all and a thought.

msER's if I, "you" can not, do not, or won't laugh at ourselves, how can we ever expect others to be at lease with us? I used to have great fun chanting...

msER's if I, "you" can not, do not, or won't laugh at ourselves, how can we ever...

RoyceNewton

•6 years ago

5 Replies

Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?

I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on Gilenya. That didn’t work for me at all, I quickly...

I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me of...

Pia7

•6 years ago

6 Replies

A letter of introduction to my little friend.

Hi, my name is MS and I'm an invisible chronic illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I...

Hi, my name is MS and I'm an invisible chronic illness. I am now velcroed to you...

Chameleon3

•6 years ago

9 Replies

it has come to my attention

msers, to just be polite I have been strongly told that I should inform people a little about me. Basically, things that I am 'not" and how I come by my...

msers, to just be polite I have been strongly told that I should inform people a...

RoyceNewton

•6 years ago

8 Replies

Here is another. You know you have MS when....

●Your four-year-old is better than you in memory games. ●You face-plant into the floor and only after wards you think, “I’m falling!” ●You’re on the phone...

●Your four-year-old is better than you in memory games. ●You face-plant into th...

Chameleon3

•6 years ago

21 Replies

Here is a letter to the people in my life who I call the normals. I hope it all fits. I can be a little mouthy from time to time.

There is an entire world filled with people who don’t understand Multiple Sclerosis. I know since you don’t live with the disease yourself it is hard to...

There is an entire world filled with people who don’t understand Multiple Sclero...

Chameleon3

•6 years ago

34 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2018

Long distance friends

Just a word of encouragement to help you push though those tough moments

How tired are you?

My mind is like the internet

Should Ocrevus Begin Listing Hair Loss as a Potential Side Effect?

When I repeat myself, which we all know I do.

Ocrevus experiences

Looking for YouTube or podcast self hypnosis for infusions?

Help!!

Wonderful wishes!

New Shingrix Vaccine

Lectro-Hyper-Sensitivity?! WOW!

Hmm were "YIU" nice to yourself today?

Volunteer Opportunities on the phone

Usefulness, Purpose

Another Smokey Day

Update

I had enough version 2

A little help?

No new lesions....?

Sigh...

Happy Birthday to me

Hello!

Ocrevus or not?

A simple question for us all and a thought.

Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?

A letter of introduction to my little friend.

it has come to my attention

Here is another. You know you have MS when....

Here is a letter to the people in my life who I call the normals. I hope it all fits. I can be a little mouthy from time to time.

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