Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for August 2018

Email-President-college

I resent my Thank you since 1st one didn't go thru. Now I feel better . Leslie

lbenmaor

•6 years ago

Be the first to reply

How cold people have become. What to common sense and compassion.

I have noticed in the news and other sources the things people say when someone they know has lost someone they were close to. Here are some that piss me......

I have noticed in the news and other sources the things people say when someone ...

Chameleon3

•6 years ago

29 Replies

knowledge

Not knowing what awaits "YOU" The fear of a lack of control. The fear of everything, There really is no need to be, do not be scared about the future. Be smart...

Not knowing what awaits "YOU" The fear of a lack of control. The fear of everyth...

RoyceNewton

•6 years ago

2 Replies

Want to take advantage of all our features? Just log in!

The Falsehood of Modern Friendships

this is another side to the Long Distance Friends I posted yesterday. Back in the old days before there was a cellphone in every hand, internet...

this is another side to the Long Distance Friends I posted yesterday. Back in ...

Chameleon3

•6 years ago

15 Replies

Here’s your chance

Input on scooter designs for those who use them. I hope the link works....

greaterexp

•6 years ago

Be the first to reply

Hello MS Community

Hello, I'm a long timer, diagnosed in 1991 after 10 years of difficulties figuring out what was wrong. I'm a Mechanical Engineer and worked as a Manufacturing...

Hello, I'm a long timer, diagnosed in 1991 after 10 years of difficulties figuri...

MrFixIt1959

•6 years ago

15 Replies

MS at it’s finest—a divorce

My heart hurts so bad. I feel like it has simply shattered into a million pieces. I love my husband more than life itself and yet each day when the mailman...

My heart hurts so bad. I feel like it has simply shattered into a million pieces...

Amore55

•6 years ago

30 Replies

HI ALL HERE WE GO AGAIN

This weather is doing it again, here in Massachusetts for the next two days we are under a HEAT /warning/advisory itis going to feel like 100*~to~105*F and on...

This weather is doing it again, here in Massachusetts for the next two days we a...

ssdw1958

•6 years ago

3 Replies

I am very confused & a little scared!

Dr. says the wash out period is so I won't get an infection. That I understand but every other month on Tysabri makes no since. She sent me to another Dr. an...

Dr. says the wash out period is so I won't get an infection. That I understand b...

kycmary

•6 years ago

21 Replies

Fatigue

Feeling very tired all weekend,just want to sleep

JUDYGARLAND

•6 years ago

5 Replies

Ignoring your ms what a good idea... NOT

NOT, and yes I yelled at "YOU". Rather rude but now is not the time to be in denial. If I upset "YOU" or hurt your feelings, "YOU" do have my most sincere...

NOT, and yes I yelled at "YOU". Rather rude but now is not the time to be in d...

RoyceNewton

•6 years ago

2 Replies

Thank you!

Most of all of you know me. I'm a firm believer in saying Thank you. I want to thank all of you for keeping our group strong! My son is starting college in...

Most of all of you know me. I'm a firm believer in saying Thank you. I want to t...

lbenmaor

•6 years ago

6 Replies

More ghost/free writing.

I wrote this one night in my sleep and didn't know until I found a paper on my desk Young Spirit- Weary Heart Inside he’s just a little boy with dreams and...

I wrote this one night in my sleep and didn't know until I found a paper on my d...

Chameleon3

•6 years ago

6 Replies

Reluctant member of the MS Stunt team

I'm a reluctant member of the MS Stunt team due to my spectacular falls that bang up my body. I had an especially graceless humbling fall a week ago Sunday...

I'm a reluctant member of the MS Stunt team due to my spectacular falls that ban...

Raingrrl

•6 years ago

38 Replies

Report ur side effects, hair loss etc phone#

Hi, if you are on Ocrevus and experiencing any minor side effects that need to be reported as post marketing events please contact the following number so that...

Hi, if you are on Ocrevus and experiencing any minor side effects that need to b...

erash

•6 years ago

1 Reply

Weather Changes

The weather went from high 90’s to high 70’s in two days 🤷🏼‍♂️. Seems to be barometer changes that really effects me, went from 70’s to high 30’s. Every year...

The weather went from high 90’s to high 70’s in two days 🤷🏼‍♂️. Seems to be ba...

Kenu

•6 years ago

27 Replies

Test to Monitor Tysabri Levels in Relapsing MS Patients, moNATor by Abreos Biosciences, Available in US

This is some great new for Tysabri users! From Multiple Sclerosis News Today email I received today. In part...They found that extending the dosing periods of...

This is some great new for Tysabri users! From Multiple Sclerosis News Today ema...

bxrmom

•6 years ago

3 Replies

Disability

Would anyone like to share with me if they were able to apply and get disability? I am a single mom, have two young children....and work has begun to take a...

Would anyone like to share with me if they were able to apply and get disability...

Sadieschafer

•6 years ago

14 Replies

Which FB Ocrevus support Group?

I see several. Which one r you guys (@kdali et al.) referring to? Thanks!

erash

•6 years ago

5 Replies

Rebif Rebidose

Welcome to the club I am currently taking Rebif Rebidose as well and every now and then those are the symptoms flu like symptoms but as time progresses they’ll...

Welcome to the club I am currently taking Rebif Rebidose as well and every now a...

Guardianangel1

•6 years ago

2 Replies

Ok I am Done!

I cant keep taking these rebif injections— I see my neurologist on tues for a check up. (Not the Ms specialist- I am waiting for the referral) I don’t feel...

I cant keep taking these rebif injections— I see my neurologist on tues for a ch...

ktaylor8899

•6 years ago

26 Replies

National MS Society’s Everyday Matter Workbook to help with living your best with MS

National MS Society’s Everyday Matter Workbook to help with living your best with MS Everyday Matters link below for workbook and videos Workbook:...

National MS Society’s Everyday Matter Workbook to help with living your best wit...

rjoneslaw

•6 years ago

4 Replies

Can Do - WEBINAR ARCHIVES

Can Do WEBINAR ARCHIVES Below is a link to past webinars that Can Do has done so far for 2018 as well as past years...

Can Do WEBINAR ARCHIVES Below is a link to past webinars that Can Do has done s...

rjoneslaw

•6 years ago

2 Replies

Can Do Webinar -Employment Issues webinar in case you missed

Employment Issues webinar You can find the recording and presentation slides in the link below. View the Presentation Slides...

Employment Issues webinar You can find the recording and presentation slides i...

rjoneslaw

•6 years ago

Be the first to reply

Can Do webinar -Progressive MS webinar in case you missed it

Progressive MS webinar from Aug 14, 20018 You can find the recording and presentation slides in the link below. View the Presentation Slides...

Progressive MS webinar from Aug 14, 20018 You can find the recording and present...

rjoneslaw

•6 years ago

1 Reply

Can Do webinar -Driving & Multiple Sclerosis webinar in case you missed it

Driving & Multiple Sclerosis webinar from July 10, 2018 You can find the recording and presentation slides in the link below. Watch the Webinar Recording...

Driving & Multiple Sclerosis webinar from July 10, 2018 You can find the recordi...

rjoneslaw

•6 years ago

1 Reply

Cant sleep

I dont feel well this morning I'm tired but my stomach hurts so I think I'm up 4 awhile ugh

I dont feel well this morning I'm tired but my stomach hurts so I think I'm u...

Jackjosh

•6 years ago

7 Replies

Stages of MS & Me

Just a little info I came across right here on MSAA regarding MS stages https://mymsaa.org/publications/about-ms/types/ To update you all on some stuff about...

Just a little info I came across right here on MSAA regarding MS stages https://...

CalfeeChick

CommunityAmbassador•6 years ago

17 Replies

My first post here.

I just found this MS community and writing my11st post. I was dxd with rrms in 2002. I was married, worked for the courts and food server at night. Took in...

I just found this MS community and writing my11st post. I was dxd with rrms in ...

Menmyms

•6 years ago

17 Replies

I fired my neurologist!

I haven’t posted much but I read everyone’s posts daily. And I have learned a lot from all of you! Here is what’s been going on with me... For the past six...

I haven’t posted much but I read everyone’s posts daily. And I have learned a l...

Hidden

•6 years ago

95 Replies

Search posts

Pinned Posts

See all

Newest edition of The Motivator!

Upcoming Webinar: Movement for MS

New Podcast Series from MSAA!

MS Awareness Month!

7 Year Anniversary!

Latest poll

See all polls

Have you ever attended a webinar hosted by MSAA?

Vote

Topics

All posts(1023)

Living with MS(479)

Treatments(196)

Introduce yourself!(114)

Symptoms(108)

MSAA News(53)

See all topics

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2018

Email-President-college

How cold people have become. What to common sense and compassion.

knowledge

The Falsehood of Modern Friendships

Here’s your chance

Hello MS Community

MS at it’s finest—a divorce

HI ALL HERE WE GO AGAIN

I am very confused & a little scared!

Fatigue

Ignorin​g your ms what a good idea... NOT

Thank you!

More ghost/free writing.

Reluctant member of the MS Stunt team

Report ur side effects, hair loss etc phone#

Weather Changes

Test to Monitor Tysabri Levels in Relapsing MS Patients, moNATor by Abreos Biosciences, Available in US

Disability

Which FB Ocrevus support Group?

Rebif Rebidose

Ok I am Done!

National MS Society’s Everyday Matter Workbook to help with living your best with MS

Can Do - WEBINAR ARCHIVES

Can Do Webinar -Employment Issues webinar in case you missed

Can Do webinar -Progressive MS webinar in case you missed it

Can Do webinar -Driving & Multiple Sclerosis webinar in case you missed it

Cant sleep

Stages of MS & Me

My first post here.

I fired my neurologist!

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive

Ignoring your ms what a good idea... NOT