Ampyra and Biotin: I’m starting ampyra... - My MSAA Community

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Ampyra and Biotin

Juleigh21 profile image
15 Replies

I’m starting ampyra tomorrow. I can walk but I’m so SLOW. Hoping that the walking speed and balance improves! I have bruises on my right arm and leg from stumbling into things.

Last time I posted, I was very concerned about my memory. I have quit taking biotin and I’m thinking much clearer and the dizziness has stopped. Has anyone else experienced this?

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Juleigh21 profile image
Juleigh21
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15 Replies
bxrmom profile image
bxrmom

Juleigh21 Good luck tomorrow with starting ampyra, I hope that it works for you! Keep us updated when you can!

Glad things have cleared up for you since you stopped the biotin. Have had no experience with it.

Jessie

I hope your starting ampyra tomorrow has the results you are wanting. No experience with biotin. Thanks for posting ~terry

jimeka profile image
jimeka

Hi Juleigh, sorry that you have been bruising yourself falling into things. At least you know the cause of it. I have looked into biotin but have never taken it. I don’t think I will now, I have enough trouble with my balance. Take care and all the best with ampyra. Blessings Jimeka 🦋 🍫

mrsmike profile image
mrsmike

Good luck with the ampyra. I've been on it for 3-1/2 years and it helps me, hope it does the same for you.

IFwczs profile image
IFwczs in reply tomrsmike

Can you please tell me if you have experienced any side effects on Ampyra? Thank you.

mrsmike profile image
mrsmike in reply toIFwczs

No side effects. Good luck. Give it a try

StacyHayward profile image
StacyHayward

I just started ampyra two months ago. It’s been like a miracle drug for me! Wish I’d started it five years ago. I’m walking so much better.

erash profile image
erash

Hope u do well with the ampyra!

LISAANNE0309 profile image
LISAANNE0309

Good Monday, Juleigh21. I took Ampyra for about 6 years beginning when it was FDA approved and the off-label form, 4-AP, for a few years prior to that. It was a great drug for me until it wasn't. I don't walk, but the Ampyra helped tremendously with my energy level. Two years ago, I started having heart palpitations and vertigo. Since neither are identified side effects of Ampyra, my doctor didn't consider it the cause. I only stopped taking it for insurance issues. Then the side effects stopped! Just a coincidence? Later that year I restarted the Ampyra and the heart palpitations and vertigo returned. So just be aware that you may experience unknown side effects.

IFwczs profile image
IFwczs in reply toLISAANNE0309

Vertigo is a disclosed side effect of Ampyra now.

Oneson profile image
Oneson

I was also taking Ampyra and the and higher dose form was 4AP. It helped me more before it was Àmpyra. I have been taking biotin for two months now. Not long enough for results as they stay about 9 months.

gatorman15 profile image
gatorman15

Juliegh21 hi. Good luck with the Ampyra. I took it for a few years, no bad side effects but then I had to discontinue because the the patient assistance program that helped me ended. They said it was going generic this year so.... I'm glad to hear you can afford it. Heard the generic will still be pricey too.

positiveness profile image
positiveness

Hi! I am glad you're going to be taking ampyra. I believe it will improve your walking speed and your balance.

IFwczs profile image
IFwczs in reply topositiveness

Lack of balance is one of its side effects (which doesn't make sense).

Juleigh21 profile image
Juleigh21

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