Hi Friends,
Is anyone taking OCRevus? I’ve been taking it since June last year and wanted to ask a question. It’s a very good medicine and I’m pleased! Just wondering does anyone feel more physically weak about a month before next infusion? I do. This treatment is every
6 months. I’m due for my next infusion next month-June 13. Thanks, Nikki
You know I remember that I was telling week before I had my for a full dose back in February I never thought it could be anything to do with the Ocrevus. I will have to keep an eye on that.
How long have you been taking OCrevus?
Hi Lois52-thanks for your reply! Yes, I remember with my former treatment Tysabri that always about 2 weeks before next infusion, I felt much worse-more fatigue, more physical weakness, more nerve pain. Then once I got my infusion, 2-3 days later I felt like my “normal MS self” again whatever that is...LOL. Still have daily challenges with all the above but not as intense all the time. Now about a month before my next OCrevus infusion-it’s feeling same way. My last OCrevus infusion was last Dec so it’s been 5 months now. I believe the protection in my body or army at work starts to reduce more. For relapses so far I am extremely happy with results with this treatment. I also have noticed an improvement in my balance and walking. My neurologist even said I seem to be walking much better. I didn’t expect that from OCrevus. I started the Tx June last year 2017 and had a relapse in August but not one since, which is a miracle for me! Since Dx, I get on average 2 relapses per year. I’m just grateful to live in a day and age now that I and most of us have some form of treatment to help slow down MS progression. 30 years ago there was nothing. Just read recently there has been successful clinical research on a new oral pill- Saponimod for secondary progressive MS! It has not been released yet, but looks promising. Nikki 🙏
I had the two half doses September and October then the full dose in February.
Ok! What I know best about this medicine is if it can keep relapses at bay or reduce frequency-then it is effective. It can take up to 6-8 months to notice full benefit. I hope you notice a benefit as time goes on. It has helped me with my balance and walking, which I did not expect. Now I don’t have to concentrate as much walking straight forward as I used to on former medicine. This is a huge plus!
Nikki
I started last June as well. I do have a strange feeling that I am ready for Ocrevus infusion now even though I am not due until June 1.
Hi! Yes it kind of creeps up in ways. What are you experiencing now? Any symptoms that are more intense?
First infusion 
Second Full Ocrevus Infusion
My Ocrevus Infusion...? 
