New to MS and to this blog

[bpriddle]

At 65 I was diagnosed with MS in September of 2017. started my 1st treatment of Tysabri in November 2017. taking baclofen, Keppra. oxybutynin. still trying to understand changes and what to be concerned with and what to ignore. having issues with balance, back pain, tingling in right hand for several months, now left hand is showing similar tingling in fingers. Gait changed went from 18min mile walking to 26 min. But I am still walking.

[ssdw1958]

Hi this is ssdw1958 I was diagnosed in 2004 and have been dealing with this disease and it is not easy to My for sign was was 3 years earlier, my right eye I. I went partially blind. It happened 9/12/2001 they say stress brings it out, we all know what happened the day before. At that time my husband worked at Logan Airport. My thoughts to you is keep on walking doing what you always do. I also have numbness in my feet and hands. Keep on doing what you can and when you go to your Neurologist visit bring you a list of everything that is happening with you. Make sure you write down all the answers. One thing I didn’t do and I should’ve is have a lot as to which medicines work for you and don’t work for you. Just remember we’re not doctors here but we’re great listeners.

Have a good day!

[bpriddle in reply to ssdw1958]

thank you

[Iona60]

Welcome! It may take a while for your system to settle down and get used to all of your meds. But, if the new symptom of tingling in the other side persists for more that 48 hours, you may want to contact your neuro. You may be starting into an exacerbation.

[bpriddle in reply to Iona60]

Thank you

[Morllyn]

Welcome to the group. 👋

[bpriddle in reply to Morllyn]

Thank you trying to keep things as normal as possible moving forward. Wife wants me to retire. However I feel I need to keep working to stay busy. Before my diagnosis doctors thought I had a mild stroke Had spinal tap performed however lab did not do all the tests on the fluid. Another spinal tap 8 months later confirmed MS. Reading some of the blogs I feel fortunate to have this late in life if I had to get it. It is what it is.

[jimeka]

Hi and hello from the uk. I am 62 and like you feel blessed that I got ms later in life. Although I was told that I had probably had it 20 years before dx. If you can still work and you enjoy it, do it. Blessings Jimeka 🦋 🍫

[Amore55]

I was on Tysabri for six years and loved it! I hope it works well for you. Welcome to the forum, you will never find a more loving group of people. Love, Kelly