Small victory : After over a month of... - My MSAA Community

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Small victory

Smartcloud1981 profile image
22 Replies

After over a month of wondering I finally received a letter from the insurance company saying the approved the treatment medication I wanted to started treating the ms. I also received my welcome packets from biogen about the medication. I now just need to wait for the specialty pharmacy to send me medication. I am very excited to start treatments. Little things have been popping up this week. I’m not sure if they are me related or something else. I just know the sooner I can start treatment the sooner it may slow down progression

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Smartcloud1981 profile image
Smartcloud1981
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22 Replies
greaterexp profile image
greaterexp

That’s a huge victory! Congratulations! Let us know how you’re doing on your new DMT.

Royjr profile image
Royjr

I’m glad to hear your news. I wish you good health on your DMT.

Smartcloud1981 profile image
Smartcloud1981

It was the best news yesterday. Worried when I saw the letter last time I got one it was a denial but not this time. He’s starting me on tecfidera.

Smartcloud1981 profile image
Smartcloud1981

I shouldn’t have to worry for about a year. I’m pretty excited to have been able to start with oral meds instead of the injections. I would have done whatever I just want to start treatment. I’ll keep you updated once I get them and start.

MaryMargaret1966 profile image
MaryMargaret1966

I'm excited for you on finally getting the approval. Congratulations! ! Anytime my med had to be ordered thru a specialty pharmacy. I never wait for them to contact me. I always call to either get the ball rolling or make sure it's rolling. I have had issues with that in the past. Waited for a call that never came. If there's a number you can call, I would recommend you call it. Be your own advocate.

Smartcloud1981 profile image
Smartcloud1981 in reply toMaryMargaret1966

It’s been a big hassle. I was told by the one that it started with I was denied. Then a few days later I received a call saying it was approved but they are out of network. Called the one they told me to call they hadn’t received anything yet. So I will be calling again.

MaryMargaret1966 profile image
MaryMargaret1966

I'm glad your already aware of the hassle it can be. I hope it gets easier for you!

Kenu profile image
Kenu

Congratulations 🎉🎈🎊🍾 Hope this works out for you 👍. At least once the insurance approves, if that med does not work, it’s way easier to switch to the next with doctor orders and reason for next DMT 👍. Good luck and hope you get relief 😉🙏🐾 Ken

MaryMargaret1966 profile image
MaryMargaret1966

Totally boggles my mind. In network. .out of network... this is a med that you need per your doctor for ms. Uggh. My question would be, if it's approved out of network, will it cost you more to get it? Contrary, I know, cause you need it. But financially I would need to know.

Kenu profile image
Kenu in reply toMaryMargaret1966

Each insurance company has their own specialty pharmacy that they refer you to. The out of pocket has to do with your deductible and out pocket max🤷🏼‍♂️. Call MS Foundation and they can help guide you through this and help find grants for out of pocket and deductibles. Without them, there’s no way I could have afforded any of the DMT’s. A lot depends on your income 🤷🏼‍♂️. Good luck and I hope this helps 👍🙏😉🐾 Ken

Smartcloud1981 profile image
Smartcloud1981 in reply toKenu

I know the first specialty pharmacy had to send it to the one that my insurance covers. Now I’m just trying to get it to me.

MaryMargaret1966 profile image
MaryMargaret1966

Perfect information Kenu!! Thank you! Some people might not be aware of this. Good to put it out there. This forum has alot of readers that can gain information from our knowledge.

SueAB profile image
SueAB

Yeah! I know you worked hard to accomplish this - your perseverance finally paid off!

Smartcloud1981 profile image
Smartcloud1981 in reply toSueAB

Just never realized how hard this was or how horrible insurance companies could be. Never been really went to the doctors a lot till now

bxrmom profile image
bxrmom

So happy for you Smartcloud1981 It's always great when everything lines up like that!! Keep us updated on how everything works out for you when you can!

Jessie

Essaad profile image
Essaad

Hope new treatment will do you good.wish you the best.

RoseySawyer profile image
RoseySawyer

Congratulations! 🎉

Linda3579 profile image
Linda3579

GREAT NEWS! Wishing you the best.🙏

Kitsey profile image
Kitsey

Congratulations! That is no small victory; it is huge. I pray that the medicine gives great results. Please keep us updated.

Fancy1959 profile image
Fancy1959

Smartcloud1981, congratulations! That is a huge Victory not a small victory. These days one has to be so persistent to get any benefits, or drugs approved from insurance companies and or pharmaceutical companies it sometimes becomes all but ridiculous.

I agree with your sentiment that the sooner you start your DMT or disease-modifying Therapies, the less damage your MS can cause and the better you will hopefully start to feel! So here's to your persistence and the best of luck with your new DMT!👍🍻🎉🎆!!!

Babslover profile image
Babslover

Thank you for sharing this good news. Hope you have wonderful results with this new medication. 👏

Congratulations!

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