spms

[kerry0915]

Hi I was wondering how people deal with there spms? How long has anyone had this Thank you

[MS_Indestructible]

I'm on Rituxan and after being on it for a few years my MS has stabilized. The new DMD instead of Rituxan [off lable use for MS] is Orcevus directly approved by FDA for MS. ~terry

[RoseySawyer in reply to MS_Indestructible]

I'm also on Rituxan 😊

[MS_Indestructible in reply to RoseySawyer]

I'm happy to stay on Rituxan but curious if you neuro has suggested putting you on Orcevus? ~terry

[Ellmom in reply to MS_Indestructible]

I actually talked to my neuro about it and he told me that it was my decision so I tried it.

[MS_Indestructible in reply to Ellmom]

I've been off this site for quite a while. Due to the ms but covid took a big toll on me. I tried to log in a few times but lost my account info. I was finally able to log in again, but, alas, locked myself out again. I am hoping to keep my info straight this time and try to login at least once a day.I doubt I'll be able to be as active as I once was, hey, I'm a live and functional [??? lol]

[MS_Indestructible in reply to Ellmom]

Yes Rituxan was the very best choice for me also. I've been on it for several years now and my neuro has not mentioned Ocrevus to me at all. That's okay, I am happy with the Rituxan. It is much cheaper , has generics out and is the primary of Ocrevus. I fact it is widely believed by the people "in the know" that Ocrevus is infact Rituxan with just enough changes to pass the FDA as a "new" drug. Rituxan was/is so successful but had no protections but they knew it was a "money maker". Not that Rituxan is cheap, but it is cheaper than Ocrevus by far.

[Ellmom in reply to RoseySawyer]

I am to, I jumped from Rituxan on to the Ocrevus bandwagon once it was approved but went back to Rituxan

[MS_Indestructible]

I have Kaiser as my healthcare provider. they brought in an ms specialist in my regional area, who has many of her patients on Rituxan so it wasn't any problem for me.

[RoseySawyer]

My Neuro has not suggested Orcevus. As long as my levels are good she's keeping me on Rituxan. I had trouble with the approval but my Neuro fights the insurance every 6 months and they end up paying it.

[agate]

kerry0915 , I was diagnosed in 1980 but symptoms came on and didn't go away as of about 1978. Before that, I had several episodes that may have been the relapsing phase, starting in 1961. I'm not currently taking anything for it except 5,000 IU of vitamin D3 daily. Tried Avonex for 3 years, tried Copaxone for nearly 3 years.

[erash]

Me...I think. Neuro says X past to yrs. "u might be SPMS now"

[Kitsey]

Hi! I was “officially “ diagnosed with SPMS in 2014. I actually had undiagnosed RRMS for about 30 years prior. I’ve been on Rituxan since 2014 and it has stabilized my symptoms. My insurance denied Rituxan so I applied to Genentech and they have provided the drug for free. So very grateful for that!

[Ellmom]

I think I moved up to spms a few years before I ever even asked my neuro. I just try to keep on moving and eating as healthy as I can (I'm not a vegan or a health nut by any means, I just try my best)