Vision

[Jeremyhess1980]

Was curious what types of vision issues everyone experiences as a result of MS? Anything like vertigo?

How do you manage these symptoms?

[jimeka]

I don’t know about vertigo but there are quite a few on here that do suffer with it. I have had optic neuritis which was brought on by stress. That is very painful, I could not read properly with my left eye, it was blurred with words missing. Now it has cleared up but my othamologist says that I have lost 10% vision in my left eye. Please try not to get too stressed, anxious, or over do things, as they can trigger the ms. Blessings Jimeka 🦋 🍫

[Jesmcd2 CommunityAmbassador]

Optic neuritis is not the same as vertigo. And Most deffinatly needs to be checked out by a Dr.

I had to go on solumedol for the ON. You don't want to take any chances.🤗

As far as vertigo... also talk to your Dr. I take Dramamine for mine. It stinks when it flares up. All I do is focus until it goes away.🤤🙃🙁

J🌠

Talk to your dr!

[greaterexp]

I’ve never dealt with optic neuritis, but have had issues with vertigo. Much of the time the worst issues were with a change of head position or when arising. I learned I needed to move more slowly and wait patiently for the vertigo to stop before standing or moving. That also seemed to help with the nausea. A ginger-type lozenge also helped with the nausea.

This is such a great place to find some good ideas, and I hope you find something that helps.

[Jazzyinco]

Yes, i have vertigo, blurred vision, double vision, & burning, watery eyes...i use otc eye drops for dry eyes...😍 --jazzinci

[Jazzyinco]

& my dizziness/vertigo never goes away as i am progressed...💜u just tend totake it 1day @ a time...😍strting toget usedto it...😛

[bxrmom in reply to Jazzyinco]

My dizziness is always there too, just not real bad on most days. But on days it is bad I just take it easy and go slow and by evening it is gone. Haven't really figured out what causes the bad days as, luckily they are not too often anymore.

[bxrmom]

This was my first symptom that brought me to an Opthamologist who said it was my anti-depressant that I had been on for years so he sent me for brain mri which led to all the testing and MS diagnosis in 2006.

Jessie

[Jeremyhess1980 in reply to bxrmom]

I was told the same thing about my Prozac which I was taken off back in January or early February, but still have it

[bxrmom in reply to Jeremyhess1980]

Maybe you need a round of steroids to help clear it up. Have you been diagnosed with MS (i may have missed it if you were).

[Jeremyhess1980 in reply to bxrmom]

I have had 2 rounds of steroids. Whether or not I’m definitely diagnosed I’m not exactly sure. The only criteria I meet is lesions on my brain and a very high band (can’t remember exactly what they are called obligio or something) from what I remember anything below a 4 is normal mine was a 9

[Fancy1959]

Jeremyhess1980, it's Fancy1959. Like all symptoms with MS they vary dramatically from person to person. MS does not ever let us be bored. I've had double vision which is directly related to balance issues. I've had Vision that can blur from time to time and actually in extreme heat and if I do too much can create a line straight to the middle and disconnect so the line is not straight but cut down the middle. So take your pick. What about you what have you experienced so far with your eyes? I'm curious and would love to know. Until we speak again take care. Fancy.

[Jeremyhess1980 in reply to Fancy1959]

Vision wise things always appear to be moving when they are not, dizzy spells, orbs black and white, if I’m using paper towel I see trails behind the paper towel, pain behind my eyes, and sometimes they feel like they are straining. I have been to an ophthalmologist and there is nothing wrong with the nerves and I have 20/20 vision. So who knows?!?

[MarkUpnorth]

I have had optic neuritis 7x. Tried all the treatment routes. After having been there done that 4 or 5 times, finally took the advice of my Opthamologists, yes plural, after so many times..., and just waited it out rather than try and rush it back. (They all felt it long term healthier for the eye not to treat it.) Vertigo, yep. Luckily brief bouts, but enough to send me walking into the side of a buildings...., the creation of my "I'm not drunk t-shirt, It's just M.S." But the weirdest one, only once, and once IS enough, imagine your vision with the whole world continually scrolling upwards every few seconds. Just like a failing old style television (old as in pre-solid state days now), with vertical hold issues. I can remember as a kid someone had to continually get up and bang on the top of the TV to get it to stop rolling, but then as it got worse, it would restart only a few moments later, bang, bang, bang to watch anything, at which time it was time to have the tubes checked. The broken TV vision lasted for over a month. All day, as long as your eyes were open. I worked through it though, worked as in still did my job running estimates, seeing customers, visiting job sites, solving problems, handling calls.... I had my own personal chauffeur! Had to to get around (my wife, who I need to thank again tonight, many years later now.) Never missed a day. I still had all my spoons back then. Maybe not all my marbles, but I had my spoons! (Look up spoon theory if you're not familiar with the term).

[bpriddle]

I have some blurred vision in my left eye, left eye has some minor pain around the eye area. My blurred vision seams to go away when I rub my eye. Vertigo yes. I need to make one of those t-shirts! I use a cane or walking stick when walking outside of the house. Mowing the grass is OK as I am holding onto the handle of the mower. Rub my arm or elbow along the wall when walking down the hall. Don't do ladders anymore. Some dull headaches from time to time. sleep more now than I ever have.

[OKgal]

I have vision issues non related to MS and I have vision issues directly related to MS. The direct correlation with MS and vision is I have INO with the left eye. It's my least problematic symptom for me and really doesn't impact my daily functioning.

Vertigo is what I struggle with most. It's one of the items which led to my diagnosis. I was immediately sent to have an MRI and then an immediate referral to the neurologist within 48 hours. I was diagnosed that day. He prescribed diazepam, as OTC medications weren't helping it at all. Diazepam tempers it enough so I can function, but it still rears it's head daily. I just have to know the triggers, such as dropping barometric pressure, turning my head too quickly, etc. Knowing the triggers help me function more effectively. Sleep resets my vertigo, as it doesn't start until after a few hours after waking. It's all about learning those triggers to help you deal with it most effectively. I expect this will be with me for the remainder of my life, unfortunately.