G'day, words of ??? just for u, yes you. - My MSAA Community

My MSAA Community

9,173 members20,907 posts

G'day, words of ??? just for u, yes you.

RoyceNewton profile image
17 Replies

G'day, So u have ms. It really is not the end of your world even it it sees like it is. I like to think of it as a light turn on your road of life. Best advice so far, is slow down there are so really rough speed bumps ahead, hitting them to fast is going to hurt.

Now this road is your road and yours alone, I can not give u all the answers and if I try to, stop me ignore me whatever just TAKE what suits you best, treat it like a smorgasbord. Look around see what looks good and just take a little at first and see how you digest it. There is a path which is easiest for YOU it may take some distance to find it, but u will.

Getting off the road is against the rules, what rules. THE RULES u will find them as your journey continues.

My friend, it is a wild & crazy ride, but ride it you must, for this is your ride. You will find strength you never thought u had allies u never expected and a road trip of unbelievable adventures. But this U CAN do.

Royce

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
17 Replies
jimeka profile image
jimeka

Well written Royce. I agree. Blessings Jimeka 🦋 🍫

Kenu profile image
Kenu

Nice job Royce 👍 Makes a lot of sense 🙏🐾😉😁 Ken

RoseySawyer profile image
RoseySawyer

Amen ❤🌷

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Great advice RoyceNewton and very true! Thank you! 🤗💕

J🌠

Peruzzot profile image
Peruzzot

Well written...But going off road is kinda my thing...That's why I drive a 4x4😊 I just can't go as far off road as I would like and used to do...MS won't let me.☹ oh well. Down the road we go...where we stop...nobody knows.

RoyceNewton profile image
RoyceNewton

I like your style :-)

Royce

RoyceNewton profile image
RoyceNewton

u r always welcome.

Royce

Texandyroe profile image
Texandyroe

Wow, Royce! You so very well verbalized what I believe wholeheartedly, but don't have the words. When people look at me with people pity, or try to tell me I shouldn't attempt something, I try to tell them it's just s bump in the road, and I'll find a detour around it and it's a new adventure. They just don't get it. Thank you, thank you, thank you!

Peruzzot profile image
Peruzzot in reply to Texandyroe

According to some people I should be acting like an invalid already. Not my nature and I refuse. I do what I can and push my luck while doing it. Most people don't immediately know that I'm sick. Some catch on when I start stumbling for words or have issues talking at all. A few have asked if I'm ok when they see me grabbing for shelves in the store because my head started spinning. I tell them I just stood up too fast. No big deal it'll pass. I will not be an easy patient if I do get to the point that I'm an invalid.

normwithms profile image
normwithms

Good job Royce, well said. I agree with you but Peruzzot has a point. A little off roading is good for the sole.

RoyceNewton profile image
RoyceNewton in reply to normwithms

Hey I aim not to encourage silliness, but as a strong advocate for exceeding my own limits I understand.

Jazzyinco profile image
Jazzyinco

Awesum Royce, thanks i totally agree there! 😄 Sometimes our roads are long, sometimes hard, but we shall prevail!👍

Fancy1959 profile image
Fancy1959

RoyceNewtown, it's Fancy1959. Long time no talk. It is so very good to hear from you again! We've missed you here and you always feel an empty hole in our lives when a member of our family decides to sit out of the Family Circle! I would like you to remember that each and every individual that travels down this pothole strewn detour field bumpy and rocky road that Ms puts in front of us travels at slightly different path. But it is my firm belief that we all walk similar past that are parallel to one another. And it is my firm belief that as a person who has successfully navigated a certain rough spot along the path, it is our duty to reach out and grab people who are stumbling or try to give up a friendly hand and pull them back up to their feet. With the help of others our chances of successfully navigating this rock-strewn and detoured filled MS path increases dramatically! That's what this chat room is all about and why there are people who have been here for over 2 years helping others. Simple encouragement, advice, caring, and the sharing of successes and experiences can help the newcomers or the ones who are about to give up so very much!

And just like you said we can navigate this path no matter how treacherous it becomes. There is as I always say our strength comes from our family and our numbers so please always remember that together we are stronger!💪👐👍

positiveness profile image
positiveness in reply to Fancy1959

That is so well put. Everything that you just put in that message is great.

RoyceNewton profile image
RoyceNewton in reply to Fancy1959

o so well put, explains y I write, I just lost u for while in my travels , SO GLAD I AM BACK.

ROYCE

positiveness profile image
positiveness

Wow! Those are great sayings and a good way to view life with MS

Lgraham78108 profile image
Lgraham78108

Thank you.

You may also like...

2 Nov 2023 G'day R U Well?

effort that only YOU can make. Your ms is YOUR effort not mine, your medical teams your spouse or...

I LOVE U ALLL, BUT I AM JUST A DRIVER

help you find a possible path but you have to take it, for I am on my own path which is likely...

3 July 2023 G'day

but it is your body and if YOu do not want to do the best that YOU can for yourself that is your...

what makes you strong?

The question today is: What makes \\"YOU\\" strong? Where do \\"YOU\\" find your strength? That is...

2023 word/theme for the year

Hello friends. I hope your new year's eve plans went the way you wanted them to. I stayed in. My son