Stressful Day & Heightened symptoms

[4krobh]

So I had a my first super stressful day yesterday with this lovely MS diagnosis.

MIL put in hospital with possible stroke; standing on those concrete floors all evening; daughter in trouble at school; work was a DISASTER..... and now my legs are terrible.

Common for symptoms to flair upon stress? I don’t feel like this baclofen is working nearly as well as the one Norflex pill I took last week that made me feel like a million bucks. Do I call Doc & ask for Norflex (maybe even just in the short term until I get everything under control?) or is it too addicting or something?

[bxrmom]

How often are you taking the baclofin as it doesn't last all day. You have to take it multiple times a day. I'm sorry yesterday was very stressful, hopefully today will be better.

Jessie

[4krobh in reply to bxrmom]

I had been taking it 3 times a day; but yesterday I missed the lunchtime dose as I was traveling and didn't take it with me. It really doesn't seem to be helping me much when I do take it though either; I thought maybe it had to "get into my system" but from what I've read it's not really that kind of medication. I begin Ampyra tomorrow; but that says it takes up to 6 weeks.... I just cannot seem to get out of this initial exasperation; been going on since Christmas Trying SO hard to keep my head up; just getting a little discouraged...as I know everyone here has been at one time or another

[bxrmom in reply to 4krobh]

You should give your doc a call and see if you can get back on your other medication if it worked so well for your spasms. I take baclofin and tizanidine twice a day because the baclofin alone wasn't helping the spasms anymore. There are other options out there.

Jessie

[Juleigh21]

I’m so sorry to hear all that you’re going through! I never heard of Norflex. It wouldn’t hurt to give your doc a call and tell him what’s going on. He’ll let you know if you can continue taking Norflex. I’ve taken baclofen, tizanidine, and Valium when the spasms are really painful. If baclofen isn’t working, there are others. I wouldn’t drive till you know how you’re effected by the meds though! Good luck and God Bless! Please let us know how you’re making out.

[4krobh in reply to Juleigh21]

Thank you Juleigh! Believe I will make the call and just say what they say

[4krobh]

Thanks Lois!! Definitely going to make the call to neuro today. I would like to think I keep my stress under control pretty well MOST of the time; it's just a 13-year-old is my biggest issue right now. She's a SUPER great kid--at home ;)--I'm pretty sure early-teens lose all reasoning skills for about 3-5 years

MIL IS doing some better; thank you!! Hope you have a great day as well! LUCKILY today is a day I can work from my computer in the bed most of the day I am blessed.

[Jesmcd2 CommunityAmbassador in reply to 4krobh]

A tween. I'm so sorry.😞🙃🤣😂 they lose there minds for 5 yrs or so.

Stress will most definitely activate your MS a bit. But doesn't usually cause a Relaspe.

If you feel like your having one, CALL Them!

I hope everything calms down for you today🤗💕

J🌠

[WAshingtongirl]

Stress is our enemy, 4krobh . It can amp up your existing symptoms and even bring on an exacerbation. We’re all different, but my first exacerbation hit following a minor back injury (lifting a box of encyclopedias—I’m dating myself here! 😉) and my dad’s sudden death 2 days later. 2 weeks after that, my first MS symptoms started. They (bad ones) lasted for over a year. And even once an exacerbation ends, it’s possible to retain some permanent damage, even with RRMS. Again, we’re all different. You’ve received great advice here: call your neuro. And I’ll pray for your MIL and your daughter...and for you too...those teen years can be rough. Pray, love her, and do your best.💕

[ssdw1958]

I would call the doctor just to let him know what is going on.

[Tinker-Belle]

Goodness. I'm sorry you had such a rough day. It's like being kicked when you are down! I can't answer the med question but I will say, YES, stress absolutely effects my MS. I hope you are able to talk to your doctor and get some relief.

[jimeka]

Pleased that your MIL is doing better, they say trouble comes in three’s. Everyone has given you great advice, and yes stress is the major aggravation. 🦋 🍫

[4krobh]

Well: I’ve been taking this Baclofen for more than a week now; and truthfully- I think I’m feeling worse! It’s in my legs and feet- terrible muscle spasticity in thighs and numb feet (gait is awful too) Anyone have experience with one of the “miracle drugs” just flat out not working? I’m just SO discouraged that I am just not feeling any better; 5+ months is taxing. To the point where I’m just going to have to accept it must be permanent.