I find it is often difficult to decide which a person means to say. People do not speak really clearly these days for any number of reasons. I am often told that I walk around the grocery store looking like a DRUNK. 19+ yrs of this adventure 49+ years of the bigger adventure I think I have learned a little something.
it is ok to judge me or look at men strangely, I do NOT know you and obviously u do not know me. I have survived things and climbed mountains that u will never face I hope. If u ever face them remember me and maybe that will give u that little nudge to get through your day. This is what I hope for you, mostly because I CAN and that is what I choose to do. U r on a different path to me, but all our paths lead somewhere & to something, I do not know what, if u do please tell me we could have a fun conversation,
Do not judge me and if y do, accept that I probably do not care, I am on my path & doing my best right now. Maybe later I can get up & do something differently, but one thing I am sure of I will do my best to get up.
Royce
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RoyceNewton
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I like it Royce and what I usually do when I get the “look” is I just tell them, “I have MS, it makes my balance wonky!” Generally, when they see the cane, in the cart, they are kind. Most don’t know what MS is and they smile and go the other way as if MS is contagious 😷😃😀 The cane gets me allot more respect & kindness these days.
I've noticed that when I'm wearing leg braces and/or carrying a cane, people tend to be helpful. When I'm in the grocery store, if I'm trying to get something from the top shelf that I can' reach, strangers will come over and get the item down for me. When people can see that I'm disabled in some way, a lot of people will try to be helpful, if they can. Ofcourse, there are some people who are just jerks,no matter what, it's who they are. That's their problem. I canbe glad that I don't live with them. I feel sorry for thr jerks, they have to be with themselves 24/7. They can never get away from themselves.Whether or not someone has a disability, each person decides for themself how they are going to live their life. Sure, a disability is a challenge, but challanges and issues happen to evey oe. I remember some one who used to be at the MS support group I go to. He would say that having MS is an adventure, he's never bored. aEach morning, when he gets up, he doesn't know if he'll be able to walk today, or see, or what. That's a great attitude to have.Having an incurable disease cab make you better or bitter, choose wisely, you only have 1 life. When I was first diagnosed, at first ,I was glad. For a while all kinds of crazy things were going on with my body, they didn't seem connected in any way. I went to a neurologist I found in the phone book. He was doing a lot of tests and coming up with nothing. When he finally told me that I had MS I thought, good, if we know what's wrong, the we can do something about it. But then he said that awful word, incurable. Also, he said that the disease usually starts when one is between 20 and 40 years old. I was 20 and was upset that I ot it the first year I was eligible for it. Iknow others who felt that way. Now a days, kids are gettingit. If I thought that I was too young to deal with this wen I was 20, I can't imagine how a kid must feel. There's still not a cure, but they've come a long way since then. Now, thy an do an MRI and diagnose it immediately. There are meds that can reduce the frequency and severity of relapses. It's not cured, yet, but progress is being made. It'd not as frightening now. It's not good to have MS, but there are much,much worse things And you can have a full life with MS. You have MS, but it doesn't have you.
JJust try to accept. First off accept your own weakness, accept others weakness. Most important learn to accept that you do Not have to stay anyway or anywhere that u accepted yesterday,forever, there is ALWAYS another way ro do something, say something or look at what is happening.
NEVER accept that this is impossible , change the endpoint YOU make the rules. Make them suit YOU.
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