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My MSAA Community

9,211 members • 20,958 posts

All posts for August 2017

OCREVUS (finally)

To briefly summarize some of my past posts about Ocrevus: I had a neuro. appt. in April (shortly after O's approval). At that point my neuro. said he did not...

To briefly summarize some of my past posts about Ocrevus: I had a neuro. appt. ...

bavery207

•7 years ago

27 Replies

New to MSAA Community

Hello Everyone! I had been diagnosed with RRMS in 2009. Found out this past Thurs. it was wrong, actually PPMS. All these years of unnecessary DMT's, awful...

Hello Everyone! I had been diagnosed with RRMS in 2009. Found out this past Thur...

HighTide

•7 years ago

5 Replies

ocrevus

I just started Ocrevus in July. Would like to know if anyone else is taking it . if so have you noticed a change?

I just started Ocrevus in July. Would like to know if anyone else is taking it ...

Hidden

•7 years ago

7 Replies

Want to take advantage of all our features? Just log in!

11 years and MS fatigue seems to be worst ever

My name is Sheila and im having a hard time with fatigue, seems it is worst now than when I first got all my problems. Happen to any one else.

My name is Sheila and im having a hard time with fatigue, seems it is worst now ...

Hidden

•7 years ago

17 Replies

Diagnosed over 20 years ago.

Hi everyone, my name is Julie. I was diagnosed over twenty years ago. I am on Tecfidera and find it has helped me. I have tried a lot of different therapies...

Hi everyone, my name is Julie. I was diagnosed over twenty years ago. I am on ...

Juls67

•7 years ago

24 Replies

Introduction

Hi, my name is Denise. I am almost 60yrs old. I have 1 son, a dog named Abby and I'm retired. I was diagnosed with MS November 3rd 2009. It is Relapsing...

Hi, my name is Denise. I am almost 60yrs old. I have 1 son, a dog named Abby ...

DeniseG26

•7 years ago

7 Replies

MS and isolation

Hi I am 39. I have MS, fibromyalgia, spinal cord siezures, etc. I struggle with depression, especially when my family reacts to my attacks by telling me I'm an...

Hi I am 39. I have MS, fibromyalgia, spinal cord siezures, etc. I struggle with ...

Hidden

•7 years ago

23 Replies

College

Hi all! I am super excited and sad today. This really has nothing to do with MS. My first born just left for college.😥 my stress is way up and emotions. Which...

Hi all! I am super excited and sad today. This really has nothing to do with MS....

rlh1974

•7 years ago

29 Replies

Lost my little Cody doggie today

As most of you know, my husband and I had to put our Daisy down March 31. Three weeks later it was our dear little kitty, he got what the vet called feline...

As most of you know, my husband and I had to put our Daisy down March 31. Three ...

Amore55

•7 years ago

23 Replies

JUST ME!

just ME

rickalicea

•7 years ago

5 Replies

Tysabri

My doctor wanted me to try this but it was not covered by my insurance. What do you do when it comes to the financial aspect. I have Medicareand am not sure...

My doctor wanted me to try this but it was not covered by my insurance. What do ...

cljones

•7 years ago

5 Replies

Thanks for your support, friendship, and love!

I wanted to thank my extended family for your patience, support,and understanding. I'm feeling better physically and have had time to work through my issues...

I wanted to thank my extended family for your patience, support,and understand...

Fancy1959

•7 years ago

9 Replies

Still fighting

I am Cindy. I am new. This is my first time to join a group like this. I am 58 and was finally diagnosed in August 2014 but have had symptoms for several...

I am Cindy. I am new. This is my first time to join a group like this. I am 58 a...

cljones

•7 years ago

30 Replies

Tysabri

I'm going to be getting to take tysabri next month and I wanted anybody's feedback on that infusion and what do experiences have been Thank you Lisa I'm new to...

I'm going to be getting to take tysabri next month and I wanted anybody's feedba...

Leahdevora

•7 years ago

23 Replies

Welcome to all new members!

To all the new members who have joined our chat room and extended family over the past three months I would like to officially welcome you. I was simply a mess...

To all the new members who have joined our chat room and extended family over th...

Fancy1959

•7 years ago

1 Reply

KCrazy twisted brain part 2

@Jimeka this is the t-shirt. Well after the reading revelation my husband said why don't you say it in Spanish if you're stuck on not getting a word out. Well,...

@Jimeka this is the t-shirt. Well after the reading revelation my husband said w...

melack01

•7 years ago

2 Replies

WELCOME TO ALL THE NEWBYS!

We get so many newbys so quickly and each have something new to put spring in our step...knowledge, compassion and understanding....welcome!

We get so many newbys so quickly and each have something new to put spring in ou...

jackiesj

•7 years ago

2 Replies

Computer probs

You know how a spouses computer ALWAYS works...well if half a post gets printed, you will know its me....I'm on the blink, the machine is on the blink so I...

You know how a spouses computer ALWAYS works...well if half a post gets printed,...

jackiesj

•7 years ago

2 Replies

Looking for Caregiver assistance

My father in law has MS and has been wheelchair bound for 18 years. He fell out of his chair last week and can no longer transfer from the chair to bed or the...

My father in law has MS and has been wheelchair bound for 18 years. He fell out...

Petemurphy001

•7 years ago

5 Replies

Fairly New

I am 69 and just diagnosed one year ago but believe I've had it since I was in my 40's and diagnosed with Fibromyalgia. I lost the sight in one eye last year....

I am 69 and just diagnosed one year ago but believe I've had it since I was in m...

cherriwise

•7 years ago

43 Replies

I'm New Here, But Not to MS

I am a 59 year old, diagnosed with MS in August 2014, but now have realized that symptoms have been there since the 90's. My 5 year-older brother also has MS...

I am a 59 year old, diagnosed with MS in August 2014, but now have realized that...

RemLind

•7 years ago

27 Replies

Ms has left me wanting!

Hello my name is Brian Franklin February of this year I was diagnosed with MS after countless misdiagnosis over the last decade or more. This diagnosis has...

Hello my name is Brian Franklin February of this year I was diagnosed with MS af...

Fattius

•7 years ago

13 Replies

Introducing myself

I'm Gene Tarwid. I volunteer at The MS Society in Bonita Springs Fl. giving support to both people with MS and caregivers. L have over 30 years of experience...

I'm Gene Tarwid. I volunteer at The MS Society in Bonita Springs Fl. giving supp...

finster

•7 years ago

5 Replies

Candylee

Hi all. My name is Candy and I have had MS for over 30 years. Many changes have occured in this time frame....Thank God~!!!

Hi all. My name is Candy and I have had MS for over 30 years. Many changes have ...

cl23796

•7 years ago

5 Replies

Living with MS

Hi, I was diagnosed with MS 3 years ago. Living in Texas, summers are difficult due to the heat, so my activities are less. Recently, I joined a club and...

Hi, I was diagnosed with MS 3 years ago. Living in Texas, summers are difficult...

peggy857

•7 years ago

5 Replies

Life and MS

Hi there, my name is Andrea, I live with MS, and other diseases. I am a wide, mom and daughter. MS has impacted my life, in so many ways. I never lose hope or...

Hi there, my name is Andrea, I live with MS, and other diseases. I am a wide, mo...

Andrea65

•7 years ago

4 Replies

New To This

Hi! Everyone, I was diagnosed with MS in 2012 but onset was back 1994 were I was missed diagnosis all those years. I have relapsing remitting MS. I can know...

Hi! Everyone, I was diagnosed with MS in 2012 but onset was back 1994 were I w...

Pammy1963

•7 years ago

2 Replies

NEW TO MS

HI. I WAS JUST DIAGNOSED IN JANUARY WITH MS. I AM LOST; DON'T KNOW ALOT ABOUT IT. I DON'T KNOW IF SOME WAYS I FEEL ARE FROM MS. SO FAR NOBODY HAS THIS...

HI. I WAS JUST DIAGNOSED IN JANUARY WITH MS. I AM LOST; DON'T KNOW ALOT ABOUT ...

lindaz9

•7 years ago

4 Replies

Newby

I am new to all this. I am completely lost.

jenwall67

•7 years ago

4 Replies

What a crazy twisted thing the brain is

As part of a hospital activity I made a tie dye t-shirt on Saturday. I had a lot of trouble processing the English directions. I haven't been able to read for...

As part of a hospital activity I made a tie dye t-shirt on Saturday. I had a lot...

melack01

•7 years ago

8 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for August 2017

OCREVUS (finally)

New to MSAA Community

ocrevus

11 years and MS fatigue seems to be worst ever

Diagnosed over 20 years ago.

Introduction

MS and isolation

College

Lost my little Cody doggie today

JUST ME!

Tysabri

Thanks for your support, friendship, and love!

Still fighting

Tysabri

Welcome to all new members!

KCrazy twisted brain part 2

WELCOME TO ALL THE NEWBYS!

Computer probs

Looking for Caregiver assistance

Fairly New

I'm New Here, But Not to MS

Ms has left me wanting!

Introducing myself

Candylee

Living with MS

Life and MS

New To This

NEW TO MS

Newby

What a crazy twisted thing the brain is

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