ocrevus

I just started Ocrevus in July. Would like to know if anyone else is taking it . if so have you noticed a change?

[dianekjs]

Hi Hidden , if you just started in July, it's too soon to be expecting results. The leading experts in this drug say that 3 months would be the earliest time to effect with potential improvements continuing through 2 years and beyond. The primary objective is to halt progression, but trial participants also demonstrated a significant decrease in the incidence of relapses as well as improvements in other symptoms. These improvements were most dramatic in RRMS. There's an excellent YouTube video/presentation on Ocrevus given by Timothy Vollmer, M.D. who was involved in the trials and research that you might find very helpful. It's informative and excellent, I recommend it to anyone taking or considering taking ocrelizumab. The safety statistics towards the end when compared to other MS drugs on the market are also extremely reassuring.

Some people are reporting changes sooner than three months, but most effects should be assessed much later, per the neurologists who have studied the drug the most. I had my first infusion on June 22 and the second on July 6, and after I got through some infusion reactions and a week of wipe-out after each infusion am cautiously optimistic but know that it's early. Which form of MS do you have? I am officially PPMS but my neurologist says it's not clear-cut in my case, which has been atypical. I'm including a link to the video I mentioned below. You may also want to do a search (upper right of page) for Ocrevus, there have been quite a few threads about it, along with some individual experiences so far. Best of luck to you and please keep us posted!

youtube.com/watch?v=J4prsO-...(Not working as expected?)

[Mysam in reply to dianekjs]

Great analysis! Thanks for sharing...

[piano101]

I began Ocrevus in July also. I haven't felt any difference. Still have some itching, but not as much as when I was on Techfidera.

[maryserv in reply to piano101]

HI, this is an old thread but I was wondering if your itching decreased? I have little red bumps and a rash on my back. Bumps are all over. Neuro not very concerned, I've ruled out bites, 2nd half of 1st dose a week ago. The itching has slowing increased from after the 1st half.

[bavery207]

Hidden I just started this past Wed., in fact I have a post today with questions of my own. My understanding though is that many will not notice a difference for a year or two. I will look forward to comparing notes as we go through this process.

[Yooper]

I also started in July and so far feel no change. I am not sure if I am back to were I started. I do have faith that God is not through with me yet. My wife and I volunteer for a hospice group and it sure helps keep things in perspective.

[Nom_De_Plume in reply to Yooper]

@Yooper

That sounds like a great idea for volunteering! 🕊

I'm disabled, so I don't know how much use I'd be, but I might pass this idea on to others. 😊