To briefly summarize some of my past posts about Ocrevus: I had a neuro. appt. in April (shortly after O's approval). At that point my neuro. said he did not know much about the drug but he was going to a national conference in May, would learn more about the drug, and meet with me soon after the conference so we could discuss it. We met May 31, he was impressed with what he had learned, and if I was still interested, which I was he would proceed with the paperwork. Then @ 2 weeks later an old root canal I had became infected, and you can not have O. with any form of infection so it was delayed again. The specialist @ 30 mi. away couldn't even see me for a consult 'til mid-August. There was a specialist @100 mi. away that could do a consult in June but when I met with him it turns out he had a family emergency out of the country and couldn't do the procedure til late July. Finally the root canal was redone, the infection cleared up, and last Wed. I had my first 1/2 dose of Ocrevus. Things went well, I had no big reactions. I have been very tired since then as some of you had mentioned you also had experienced that.
I have 2 questions for those of you that have started this med. 1- how long did you continue to experience fatigue? And was it as strong a fatigue the second 1/2 dose? 2- Also, as I was receiving the med. they monitored my blood pressure every 15 min. and it slowly dropped during the infusion time. I went from 129/71 to 98/58. I was not dizzy or light headed so they finally let me go home with instructions to rest, drink plenty of fluids, and check my BP over the next few days... my numbers are slowly getting back to normal. Have any of you had this type of reaction?
Despite all my delays I am still the first Ocrevus infusion they have done at this infusion center, so the nurses do not know what to expect and are as curious as I am! Thank you in advance for any info.