It's with regret that I write to say my darling Peter passed away on the 11/11/22. He died peacefully and comfortably surrounded by our children, his parents and his sister. The District teams, St Catherine's and our GP services were amazing.Peter had what seemed like another infection, high temp and the usual low urine output. So we started his antibiotics and paracetamol whilst encouraging his fluids. However, his output improved, his temperature seemed to resolve but his overall sleeping increased. His speech seem less and less coherent as the week progressed. The look in his eyes had changed. I just knew something in him had changed. He had refused food days earlier by saying he was done we food. Everything was telling me he isn't coming back from this.
We struggled to continue with his medication. He had literally clenched teeth. We contacted the parkinson teams for advice regarding his medication. They were brilliant the worked out his levadopa and converted it to a patch. The morphine pump and subcutaneous infusion of fluids kept him comfortable. Peter had a DNR in place and I understood he wanted this to end. I believe he just wanted his journey to end. So a 7.35am whilst we listened to his favourite programme, The Archers, he died at home surrounded by those who loved him.
Life will never be the same but Peter will be with me forever. He was my rock, my love and my solemate.
Thank everyone for the advice and support and the smiles.
How very brave and kind of you to tell us so soon after Peter’s sad passing. It is a mark, I think, of the value of our virtual community and, although we have never met, my thoughts are with you at this time.
All of us suffering from this horrible disease know that it takes no prisoners and, speaking for myself, when the long battle is done, if my goodbye can be as loving and peaceful as the closure you gave Peter, then I will feel very blessed.
Take good care of each other and, if you can, do stay involved with the Forum as your knowledge and experience is invaluable.
sad to hear that you have lost your dear Peter. it is blessing that, as often happens, this foul disease gave a kindly death. I hope that will be a comfort to you in the weeks to come
Hello Sharon. We're so sorry to hear of your loss. Take comfort from Peter now being at rest and free from this beast of a condition. Whilst we have never met, we feel as if we know you from your constant support to others here in the forum. Take time to rest and recharge your batteries and constantly think of the good times and the many wonderful memories you have of your beloved Peter.
Our thoughts are with you and hopefully we will see you on the forum in the months ahead. Take care, Ian x
So sorry to hear the news. Our thoughts go out to you and your family.Take time to grieve and be together, reflect and enjoy the memories as they will be with you forever.
I am so sorry to hear your news, but it sounds as if all things were in place and the right people there with him and all the plans in place.
My thoughts are with you and your family as you navigate the next few days, and then as you forward. I always say that Geoff made me who I am, a better version, and so I carry him within me for ever. Peter will always be a part of you
A brave , loving and strong message. Take good care of yourself and so thankful you’ve been blessed with a soulmate…our thoughts are with you, David & Anne
So sorry for your loss, but thankful Peter is now at peace. It is a truly heartbreaking condition. My thoughts are with you and your family moving forward. X
so sorry for your loss , you did everything for him , and he knew how much you cared, heartbreaking, but he is at peace , no longer battling with this cruel disease, sending hugs and take care of yourself ❤️❤️
My husband also went downhill in a similar way, but a peaceful end with family around is the best way and is of great comfort to those left behind. I wish you strength in the days ahead.
Your post made me cry , I am so sorry for your loss .My husband has MSA and so it really touched me . I wish you all the best for the future . Take care of yourself x
Hi Sharon my wife has MSA we have nobody so it's very hard it would be great if you could be in contact for your experience and advice she is 68 and live in vale of Glamorgan Wales
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Going Downhill
I don’t understand 
Dad is left alone on a ward, unable to communicate and we can't accompany him and we've been told no visits allowed. HELP please
Help!!
