Hello. I am new on here. It is great to find a place where we can learn from other peoples experiences/stories.
My 3 year old son was diagnosed with ITP a few months back. His levels have increased (the last count was about 30) & we are aware that his illness is going to take sometime to HOPEFULLY heal itself (fingers crossed). The challenge we face is that our child is not capable of understanding that he needs to take it slow & steady. We have tried to make our home as safe as possible, removed items that could cause danger, changed our family activities (so we purposely don't go near a playground), plus we have taken him out of daycare.
How do families with a small child that have ITP cope? It is a full time job of patience and is just extremely nerve racking for us parents, plus our other child is indirectly effected as we as parents are constantly stressed out and worried. The Haemo's tell you that you have to live with it, which is true, but I don't think anyone really understands until they experience it 1st hand. If anyone has any tips on how they live a "stress free as possible life" with a small child with ITP that would be appreciated!!
Thanks and enjoy the day.