On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group of health professionals, we are launching a national appeal for patients with bleeding disorders to participate in a web based survey. This will comprise the submission of subjects they, the patients, consider important for research and in relation to their specific condition.
The top ten questions will be submitted to the NIHR for their consideration for funding and subsequent research. Those not making the top ten, will then be considered for submission to pharmaceutical companies. Every submission is important.
This survey is open to all patients, carers, parents, clinicians and youngsters over the age of 8.
The bleeding disorders survey is now live.
We now need your input
If you would like further information on the survey or would like to participate and help research into bleeding relative to
Log onto :
and submit what in your opinion needs research.