Have you ever heard about....

[Deniss]

Hi! My doctor told me that pacients with ITP have a expectancy life with 30% lower than the healty people! She also heard at the last congress where she was! Have you ever heard about it?????????

[JasonJ]

I read 20% somewhere. This is some kind of average from what small amount of data that can be collected. It doesn't mean that the cause is ITP though.

Some patients have multiple conditions I guess that compounds the problem statistically.

However it's not very encouraging is it!

[Pollyangel]

I found this article... which gives a bit of insight into the studies... and what the figures are based on.

Life Expectancy for Chronic ITP Patients - itpandme

itpandme.com/life-expectanc...

[ItsRalphy]

I know when I applied for life insurance the premiums sky-rocketed! Wish I'd done it before the Itp was diagnosed :/

[scaryteacher in reply to ItsRalphy]

My insurance premiums didn't rocket, nor did the private health insurance. I get travel insurance without any issues as well.

[scaryteacher]

Have had ITP for 22 years and have never been told my life expectancy would be affected. Driving in Belgium where I live is more likely to kill me.

[AnthonyHeard Administrator ITP Support Association]

The simple answer is NO. I have had ITP for 11 years and whilst it is annoying, and often a right pain in the rear end, there are many ways now of treating it and keeping it under control in most cases. As for it impacting on life expectancy I haven't had any information from any of my many ITP specialists to suggest that it would make much difference at all. Just get on with life and enjoy.