Hi, I was diagnosed with ITP in November 1986 after a bout of glandular fever, admitted to hospital with a platelet count of 3. I was aged 19. I had a splenectomy in February 1987 as my steroid response was useless, counts wouldn't stay up as soon as the dose was dropped below 40mg and I ballooned up. Unfortunately my splenectomy didn't help my ITP and in hindsight and the up-to-date medical knowledge I wish I'd never had it done! I have learnt over the years to not worry about the numbers but only the symptoms, which actually, for me, are very few. I regularly live with a count between 20-30 and have no treatment. A count over 50 would see me dancing from the roof tops! I have haematologists who have a very relaxed approach over the counts and even when I dip to 14, perhaps after a virus, I remain on no treatment and just do bed rest for a couple of days which seems to always raise it again. This isn't to say I don't suffer the low mood and fatigue and get thoroughly fed up with it all at times. Especially on a nice day when I might have fancied a bicycle ride. I also suffer from joint and muscle pain and tiredness too and many many headaches. I have osteopenia from the steroid use, and reflux, from the steroid use. I now have iron store problems too, whether from long term medication for the reflux or something else. The biggest problem has been in the last year where my count was not high enough to have a mammogram and breast cyst aspiration safely, complicated by both sisters being diagnosed with breast cancer and therefore the need for me to be screened became paramount. The NHS proved totally inflexible in accommodating my ITP needs and in the end I went privately. This seems sadly to be a pattern, other specialties freak out when I say my count runs between 20-30. I had psychology intervention ten years or so into my diagnosis with a Health Psychologist, which I found very helpful for my anxiety and low mood over the 'what ifs' and the unknown future, especially with the risks of nasty infections with no spleen. I have now trained as a counsellor myself and hope to make the same difference in others' lives that he did with mine. I'd love to be saying to those who are panicking when their counts are 40 and 60, don't. But that's my experience, it's only now that I can say I don't panic. We can get bogged down by the numbers and our haematologists urge to treat in response to our panic. I'm interested in those who have platelet transfusions! I was always told that was a really big no no for us. I've seen so many changes in my years of having it. Each one of us has our own experience. IgG seems to be the only treatment that works for me. I've yet to try anything else. When the breast investigations were proving tricky I was tempted to explore treatment options but in the end the need receded. Thank you for reading!