Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments. I do feel tired all the time, and have nasty monthlies along with the bruising we ITP sufferers normally have.
For the last 2 1/2 years ive been getting increasingly painful joints, especially in my fingers (the more i do, the more they hurt, cold also causes a lot of pain) Ive been tested for just about everything, but nothing is coming up.
After reading various forums on ITP, i am thinking that the pain might be linked to my ITP, however my haematologist didnt agree, and said my levels were too high and would probably be in my knees rather than my fingers.
As i am now feeling completely crazy (doctors/consultants have suggested it could be in my head!) im on all sorts of medication and i feel none of it works - but having read lots of other posts, does anyone else find they also suffer with painful joints? It would be handy to have some 'evidence' to show my haematologist!