Can you offer help or advice please

[CWLL]

Hi, if anyone can offer any help or advice it would be much appreciated.My Story:

It started about 9 years ago. I was in quite a bit of pain. The doctors told me it was mild arthritis. After loads of tests etc it turned out i had prostate cancer. A year later it was removed. After the op and still in pain, they told me i had diabetes, In the mean time my arthritis had spread to my ankles, hips, spine, knees, shoulders and hands and in even more pain. A year ago i was diagnosed with Fibromyalgia. My big problem. I always seem to be in rotational pain. With a continuous flare up. So most of the time i am really bad. Every rotation it makes my gums really bad. I feel like I am never out of severe pain. Has anyone got any suggestions or advice. It seemd I have tried every route without any success?

Thanks in advance

PB

[SpikeDinosaur]

Hi, sorry to hear that you're in so much pain all the time. As you already know finding an answer is a very personal thing.

I found it really helpful to read 'The Painful Truth' by Monty Lyman. It's not about any particular medical condition, but about how, why and when your body creates pain signals. For me understanding helps to think about the range of options to provide some relief.

Drugs don't give enough benefits for me long term, but they were useful to break my insomnia for a few months. Others find they help long term.

My go to is definitely exercise. Even when I don't feel like it I do something. I stopped for a while and my pain gradually got worse, then it took ages to get back my previous level of pain control when I restarted.

Sore gums - yes. My dentist recommended checking Vit B levels. As (for me) they are okay, he gave me a list of foods that can make it worse. He also suggested that change in toothpaste/mouthwash might also cause a problem. Having ruled all that out, I'm getting on with it - knowing that it's not serious, just annoying.

Good luck on finding what works for you.

[CWLL in reply to SpikeDinosaur]

Thank you for your help. I will check out the book

[Sarahvit in reply to SpikeDinosaur]

I have noticed my gums have really reseeded in the last 6 months or so. I am not sure why this is happening? Is this a fibro thing? I have mentioned it to my primary care doctor who said she didn’t know that much about teeth to ask my dentist. I have a dental appointment either later this month or next month. There isn’t really that much pain nor tooth sensitivity so it hasn’t been on the top of my complaint list. I was just curious.

[CWLL in reply to Sarahvit]

Hi, not sure about that. As i am an x smoker.

It could be due to the smoking for lots of years. However it seems when my pain is bad my gums are also suffering.

[Sarahvit in reply to CWLL]

I have never smoked but did asked my gastroenterologist today if this could due to gastric reflux? He didn’t think gastric reflux would cause it but said I could double up on Nexium or Protonix. This fibro thing has really been a mystery with all the complications of all other diseases that tend to occur with it.

[Gooddaysagain]

If you've ever had Glandular Fever / Mono, it may be that the Epstein Barr Virus was long-resident in its latent state in your sinuses and gums. This virus can re-activate when you get run-down, especially with a flare-up.

It may help the infection in your sinus/gums if you take monolaurin (concentrated form of Coconut Oil) and pure Bee Propolis. Also, do a thorough ant-bac mouthwash last thing at night.

As it's a virus, you'll also need to take plenty of rest.

There's a lot of info in medical papers you can find on the internet.

It may be worth seeing your GP and discussing this. I'm afraid my GP in Wales simply told me "it happens". No luck here in Northern Ireland either. At best, you may get a blood test and some antiviral treatment.

I wish you well and send warm, healing hugs.

dee x

[CWLL in reply to Gooddaysagain]

Thank you, I have started using a toothbrush in the morning and using a different one at night. Also using a mouthwash, also a seasalt wash daily. Regarding my pain nothing seems to work.My GP has said i just got to live with it. It seems I have tried everything apart from weed, but i cant have that as my diabetes has given me fatty liver and weed can be harmful to your liver.

Thanks for your advice

PB

[fmlife]

am confused to area of pain as prostate area is not close to teeth gums unless your a contortionist

thankful for your getting rid cancer and getting back on feet👏

[CWLL in reply to fmlife]

Hi, Prostate cancer can produce lots of pain in the legs back etc. I was just explaining the history and background of my pain. Lots of conditions can influence Fibromyalgia. When does one know if arthritis is causing the pain or diabetes or perhaps both. Or is the fibro making your arthritis worse. Iam very frustrated as no one can answer any questions. How can i fight something when i don't know how to win. The cancer was far easier to understand and beat.

[fmlife in reply to CWLL]

normally when one sparks they all join in 😵

have been eating differently in hopes can heal the gut can help the sensors added in banana

started with removing gluten yeast sugar, cows milk , rhubarb

while cannot tell you what to do, can suggest researching what eat can be interesting, everyone's different

it may be need an allergy test, coeliac test, before start any food changes

the question had was symptoms the cause or the side effect to something else.

still do not know, the drs while know of each ailment, cannot answer.

youtube life too short is eating differently due to his new diabetes, cooking things like potato day before eating

youtube foxes afloat shared his pain kidney stone journey, or rather the shocking none removal! by someone in Scotland. he paid for an mri scan which found finally out of that level pain.