Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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hi! I’m 66, have had a bad back for 20 years or more with other painful symptoms : swollen tight hands feet, shoulders , that burn possibly waking me up in...

hi! I’m 66, have had a bad back for 20 years or more with other painful symptoms...

Eggcustard12

•36 minutes ago

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PIP ASSESSMENT

Had my pip re-assessment over the phone yesterday. A nurse did it and she was really nice and put me at ease. She didn't ask questions that weren't reasonable...

Had my pip re-assessment over the phone yesterday. A nurse did it and she was re...

vikki123456

•21 hours ago

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Swollen stomach

Hi I have bad fibromylaga 1 suffer with bad stomach problems swollen abdoman. And breathlessness does any one else suffer please

Hi I have bad fibromylaga 1 suffer with bad stomach problems swollen abdoman...

shazzafloyd

•1 day ago

6 Replies

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Hugs 🤗

Hugs to all who need them😍🤗🤗🤗🤗🤗🤗🤗🤗🤗😃😄😊😇😇😇😇😇😇😇😇😂😂😂😂😂😂😀😊😁I think we all need them 😍🤗Dawn 🤗🤗🤗🤗🤗😘

Hugs to all who need them😍🤗🤗🤗🤗🤗🤗🤗🤗🤗😃😄😊😇😇😇😇😇😇😇😇😂😂😂😂😂😂�...

Smilesalot

•2 days ago

18 Replies

Fatigue and feeling down

Hi everyone, I hope you are okay, just wanted to say im feeling fatigued this week, dont know why, it gets me down and it makes me feel teary and like an 80...

Hi everyone, I hope you are okay, just wanted to say im feeling fatigued this we...

fibrogirl41

•3 days ago

13 Replies

blue badge renewal

When your Blue badge comes up for renewal do you have to reapply all over again and go for an interview.

When your Blue badge comes up for renewal do you have to reapply all over again ...

Patdoyle

•3 days ago

10 Replies

Our nervous system

Yup I get this

Tommygurl

•4 days ago

1 Reply

Pip review

Hi still awaiting my PIP review which ends June 2024 they have had all the paperwork since last July 2023. Had a letter to say payments will go up on 8th...

Hi still awaiting my PIP review which ends June 2024 they have had all the paper...

Debbiedo2

•4 days ago

10 Replies

I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful

check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can...

check the side effects of your medicine ( all of them) perhaps your doctor can s...

Skylane2

•4 days ago

1 Reply

Shaking

Does anyone feel like they shake on the inside? My legs randomly start shaking when I am sitting.

Does anyone feel like they shake on the inside? My legs randomly start shakin...

Laupecyndi

•5 days ago

10 Replies

Pip telephone assessment

HiFirst time poster here. I have a multitude of condition, emphysema, lower back nerve compression ( a result of dystectomy surgery now build up of scar...

HiFirst time poster here. I have a multitude of condition, emphysema, lower back...

Jaxm66

•5 days ago

11 Replies

Well done Katrina!

This is a little (late night/early morning) post to say well done to Katrina for her C5 interview last night on "Long Term Sick Leave" and your struggle with...

This is a little (late night/early morning) post to say well done to Katrina for...

Uellow22

•5 days ago

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Lady Julia

Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the...

Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live...

ladyjulia

•6 days ago

10 Replies

eight weeks on LDN update

So eight weeks ago, I posted that I started taking low-dose naltrexone. Fatigue greatly reduced brain fog greatly reduced it’s too early to reduce pain...

So eight weeks ago, I posted that I started taking low-dose naltrexone. Fatigue...

Astonvilla68

•6 days ago

10 Replies

New diagnosis

I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life...

I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Gia...

Miacaro45

•6 days ago

7 Replies

Anxiety/ brain fog

I feel I want to get back to work but the anxiety gets worse when there's any pressure. My friends feel it will.help to go back and wase myself back in to a...

I feel I want to get back to work but the anxiety gets worse when there's any pr...

Laupecyndi

•7 days ago

25 Replies

E45 to stop itching

I can't remember when but a lady on here was asking about something to stop itching to the whole body.After some nosing I found an E45 with a mild oh god brain...

I can't remember when but a lady on here was asking about something to stop itch...

Smilesalot

•7 days ago

7 Replies

Channel 5 news tonight

Katrina will hopefully be featuring part of her fibro story on Channel 5 news tonight. We know that it is related to being off sick from work and the new...

Katrina will hopefully be featuring part of her fibro story on Channel 5 news to...

desquinn

Partner•7 days ago

12 Replies

PIP higher rate

Hello, I had a letter at the end of March to say I’d be receiving a bit more money from 8th April from my PIP . I was still paid the same amount even though...

Hello, I had a letter at the end of March to say I’d be receiving a bit more m...

Marleymoo13

•8 days ago

13 Replies

Costochondritis in fibromyalgia

This can be so painful and scary

Tommygurl

•8 days ago

19 Replies

Covid with FM and returning to work

Good morning, hope your all having a better day. I have Fibromyalgia and long Covid and want to return to work? I have been advised by employer I need to do...

Good morning, hope your all having a better day. I have Fibromyalgia and long C...

Geeforce99

•8 days ago

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Pip call

Dwp just called me regarding my mandatory reconsideration. At no point did they say it was to negotiate my claim, or tell me how much I would receive. But now...

Dwp just called me regarding my mandatory reconsideration. At no point did they ...

Spectralvix

•9 days ago

13 Replies

Getting a job with fibro, college and dont know what to do...

Hi hope you are alright, i just would like some advice about working, someone in my family made a conment that really upset me about working it made me feel...

Hi hope you are alright, i just would like some advice about working, someone in...

fibrogirl41

•9 days ago

18 Replies

Nhs I’ll health retirement

hi all, I’m on the way to the site after 20 years of my NHS job have been dismissed on medical grounds due to the main one being fibromyalgia. I have applied...

hi all, I’m on the way to the site after 20 years of my NHS job have been dismi...

10x10

•9 days ago

10 Replies

Yeah Yeah

Good morning My Fibro Family 0400 in the morning, Can't sleep for toffee, (Hmmmm I probably could actually, And that right there is the reason I'm larger...

Good morning My Fibro Family 0400 in the morning, Can't sleep for toffee, (H...

Debsdelight72

•9 days ago

5 Replies

bowel tests and laxatives

hi, I’ve got a proctogram, endo anal / rectal scan and transit study on the 8th June. The instructions on letter were vague and i was told to read enclosed...

hi, I’ve got a proctogram, endo anal / rectal scan and transit study on the 8th ...

Beakybird58

•10 days ago

4 Replies

heat pads

hi everyone Newbie here. I’ve got fibromyalgia… it runs in my family I just wanted to ask about the rules of heating pads in the work place. My daughter is...

hi everyone Newbie here. I’ve got fibromyalgia… it runs in my family I just ...

Hidden

•10 days ago

5 Replies

PIP telephone consultation

hi I have a telephone consultation in a couple of weeks. I’m a bit nervous about this. Can anyone please advise or help with what to expect., and how long it...

hi I have a telephone consultation in a couple of weeks. I’m a bit nervous abou...

Off7

•10 days ago

5 Replies

So much pain and more

Is everyone of our fibro friends suffering more with this horrible weather because I seem to be having an awful lot of flare ups, I can't seem to go out in my...

Is everyone of our fibro friends suffering more with this horrible weather becau...

Tillytrots

•11 days ago

11 Replies

Plans to help me and support,

Hi hope you are all okay, im wondering if people have had good support from their doctors re fibro, plans to help, therapies, hydro therapys, more physio or...

Hi hope you are all okay, im wondering if people have had good support from thei...

fibrogirl41

•11 days ago

8 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

how do we know?

PIP ASSESSMENT

Swollen stomach

Hugs 🤗

Fatigue and feeling down

blue badge renewal

Our nervous system

Pip review

I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful

Shaking

Pip telephone assessment

Well done Katrina!

Lady Julia

eight weeks on LDN update

New diagnosis

Anxiety/ brain fog

E45 to stop itching

Channel 5 news tonight

PIP higher rate

Costochondritis in fibromyalgia

Covid with FM and returning to work

Pip call

Getting a job with fibro, college and dont know what to do...

Nhs I’ll health retirement

Yeah Yeah

bowel tests and laxatives

heat pads

PIP telephone consultation

So much pain and more

Plans to help me and support,

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