So much pain and more

[Tillytrots]

Is everyone of our fibro friends suffering more with this horrible weather because I seem to be having an awful lot of flare ups, I can't seem to go out in my electric wheel chair and it's so cold and wet and I am in constant pain every day and sleeping the day away it's no life at all I just feel on my own I hope you don't mind me going on but ime sick of this weather. Tillytrots 🙁🙄🙁

[DoubleMalibu]

hang in there Tillytots better weather is on its way, if you can go by the forecast! Then hopefully you can get out & about.

I totally understand about always being in pain, it’s extremely draining, i don’t seem to have flares, just constant extreme pain that gets a tad too much, on top of other illnesses. I fight through it somehow, some days, to get things done, but it’s such a struggle isn’t it.

If your body needs the sleep don’t feel guilty, you’re poorly after all. Sometimes rest is repair.

Hope you have a better day today & can manage to achieve something, no matter how small😊

[Tillytrots in reply to DoubleMalibu]

Hi thanks I too have multiple illnesses, osteoarthritis degenerative spine disease also Asthma ect ect it goes on on top the dreaded fibro mmy pain is always there sometimrs I can stand it but today I I'm very bad and feel I can't go on its this site that helps me as people who do not suffer from it don't understand how bad it is they think your putting it on beleive me if I did not feel this bad I whould doing all kinds yesterday it was my birthday I am 73 but young in mind I just want to do things I feel so lazy and I am not that kind of person I am hoping this good weather coming in will be better thanks for listening to my moans it's the anxiety that come with it hope we will be pain free very soon sending you loads of fibro hugs 🤗🤗🤗🤗🤗🤗🤗🤗💜💜💜💜🤗🤗🤗😘💐💐Xxx

[DoubleMalibu in reply to Tillytrots]

Many thanks Tillytrots for the hugs, much needed today, as I too have too much pain, it’s exhausting and mind bending some days isn’t it, so I can sympathise with how you are feeling. Have you spoken to your Dr about all the pain you’re trying to deal with? I have a pain management appointment this week and am hoping that will benefit me, even in some small way at least.

Sounds like you have a lot of layered pain, probably all impacting each other. Has your Dr referred you to a pain clinic?

Belated birthday wishes to you, I hope you managed to find some good in your day yesterday or at least had a bit of cake 🎂 I’m all about the cake 🍰 whether my birthday or someone else’s🤣

I agree with you, a lot of people, but not all, find it difficult to understand our conditions, if they can’t see it, then they think we are ok, my mum could always see my pain, no matter how I tried to hide it, I have raised my children while ill and so they have grown up used to me feeling so ill, so thankfully understand. But it can’t be easy when those closest to you don’t understand, but if they care they should be willing to listen & understand at least. Maybe you could show your family a list of all your symptoms to help them understand.

I hear you over the not being lazy bit, I’m the same, it’s immensely frustrating, but I’ve stopped being so hard on myself and remind myself I’m ill. So do what I can, when I can, without overdoing it, otherwise I suffer even more.

Sending you some hugs back 🤗🤗🤗

[Smilesalot in reply to Tillytrots]

Happy belated birthday 🎂Tillytrots😊🤗🤗I'm sorry to hear ur suffering so much sweetie. I hate to hear about anyone suffering. That includes

DoubleMalibu🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗hugs to you both sweeties Dawn

[DoubleMalibu in reply to Smilesalot]

That’s kind Dawn, Thank-you😊💐

I’m sending you a Thurs morning hug back🤗

[C328]

Know how you feel, hopefully better weather will be here soon.

[Welshcatlady]

I know how you feel when it's cold, windy and raining they are my worse days. Hopefully some warm sunny weather is on the way. I did manage to get out into the garden last week, can't remember which day, everyday is much like the others because I'm retired😁, unless I've been shopping or out for a meal! I need some constant warm sunny days, not just one here or there! 😁 Hope the weather forecast for warmer days is correct.🤞

[Yassytina FMA UK Volunteer]

This weather seems too have gone on for ages🙁we’ve had a couple nice days in Suffolk then this week heatings back on, rain, strong winds , 10degrees so I totally get you being fed up, it’s always good too have a moan , I don’t want too go out when it’s cold xx

[Tisticenby]

This weather is kicking my backside. I thought I was in a flare because I've been feeling so rough. I don't know about you but the rain, cold, damp really amps up my pain but then in summer the heat makes my joints stiffen and swell. I love autumn because it's just right. Hope you get some relief soon. I hear you and if you can't vent to others that may feel the same way then where can you?

[Tillytrots in reply to Tisticenby]

Thanks yes I am exactly the same the pain seems to go on and on and with all the rest of my illnesses there is no end one way or the other but thank God for this site for people like your self and the rest I don't feel that I am on my own because I think it's such a terrible illness but nothing gets done about it and I whould like to know why it is very common in woman sorry for going on as I said thanks sending gentle fibro hugs 🤗🤗🤗🤗🤗🤗🤗💐💐x Tillytrots.

[Elaine200756]

Hi Tillytrots, sorry to hear you are suffering from flare ups. I relate by the way. And please don't worry about "going on". You are free to express how you feel and there's no judgement on here or criticism. I bet many in the group struggle with the weather too.

If you can't get out because of the weather you can soon feel isolated and lonely. Constant pain drags you down. I'm glad you reached out because others in the group will be able to understand and relate to what you are going through at the moment. Just remember that this too will pass.

Some years ago I had a major flare and I couldn't get out of bed for 5 months. I thought exactly what you have just expressed, "this is no life". But my experience of fibromyalgia is that the flares do eventually pass and I do feel better. My hope and prayer for you is that your flares will stop and you can have a life that, while maybe limited is still one you enjoy.

I've been visiting my daughter in Singapore for the past 7 years. The change in temperature always triggers a flare up of fibromyalgia. We used to go for 3 weeks but in the past couple of years visiting Singapore I had to stay for a month, as I was not functional for the first week.

Re our weather I've been fed up with it too. So much cold and wet. It seemed to me like an endless autumn or winter. This week looks hopeful though for better times. Hope you feel better soon. Love, Elaine xx 🤗