Living with fibromyalgia

[julie51]

It's hard going

[CheetieCat]

Aw you said it! It is hard going, this morning I woke up on my back and for some strange unknown reason my pain is always worse if I'm on my back 🤔 forgot to add in my pillows to discourage this happening 🙄 Anyway, how are you doing today?

[missmole82 in reply to CheetieCat]

This is the same for me but I got diagnosed with lumbar spondylitis in my lower back, do you get back pain when standing for too long, bending and walking? I'm just thinking you could have the same and it's not to do with the fibro . Angela xx

[CheetieCat in reply to missmole82]

I don't think it's LS, I do get lower back pain but it's mostly upper between shoulder blades and lots of pain all over, ribs particularly bad. I have neck damage so maybe something to do with that for the arms and hand pain. Who knows🤔 but thanks for your reply xx

[Yassytina FMA UK Volunteer]

Hello, yes can be very tough for us fibro s ,sometimes we have too reach out and have a chat here I’m looking out t he window and the Spring bulbs are coming up ,I cannot wait for the rain too ease off for a change , damp days and some slightly warmer weather, the colder period I hate now, does it affect your Fibro ? well I’m sending over my best wishes too you x

[EarthSitter1]

Yes, the cold weather certainly doesn’t help. I’ve been trying to help my mental health by focusing on the positives each day- even the small things like I managed to put my socks on by myself today 😂 Sometimes I sit here chuckling to myself about the absurdities of fibromyalgia 🙄 Doesn’t make it go away but it does help lift the spirits a little ❤️

[Blueoxo]

It certainly is. Having it tough at the minute. In a flare, struggling to get back into work. I was flying high before Christmas 🤷‍♀️🤷‍♀️

[Littlefighter82]

Gosh, I feel your pain julie51. Currently going through a rough patch myself. It's so hard, when you look fine on the outside!!

[Bailey13]

hi julie51,

Its so tough isnt it. Some days i just have a good cry, it just seems relentless.

[Elaine200756]

It is Julie, and there are layers of suffering. E. G., the emotional and psychological burden, the expense of cash spent trying to get some relief from our symptoms. There's the reaction and impact on us of others and there's the social aspect. Especially for those who are bed bound or house bound.

The only thing we can do is to love and support one another and keep our hope alive. Maybe this illness may one day be understood in the medical and other professions and among the public. Not just here in the UK but around the world where so many are suffering.

Maybe one day doctors will be able to offer effective treatment and support for sufferers. Who knows, it may be that these things are just around the corner, just out of sight. Be kind and compassionate towards yourself. Sending you my love and prayer, Elaine xx 🙏💕

[redkite55]

Yes, I wish it would be more consistent too. This morning I woke up feeling ok so thought I will do a woolly wash. Just hung 5 jumpers up to dry and now have really bad shoulder pain and my stomach muscles feeling I've done 500 sit ups. Now having to rest before I get something to eat. I try to do as much as I can during the day but it never feels enough. Fortunately my husband, daughter and her partner help out a lot when they get home from work but I always feel I should be able to do more.