I think I need to move to the Sahara, I really suffer terribly when it’s cold. 🥶
But I have heard people who suffer more when it’s hot.
I don’t think I understand why we react differently to eachother, that some are worse symptom wise when it’s scorching hot or b****y ( edited by admin) cold!
Any ideas?? Would love to know
I have fibro too for a very long time, in the last 20 years, I used to be very intolerant to heat or cold. In winter I use heat pads or a heat bags with grains, one minute and cold as an ice cube and the other, sweating like an old mare. I keep having menopause hot flashes at 81......So, my way to control it if you can call control I go with the flow, I always keep thick socks close to heat sources and change about 10 times a day or get all extra clothes aside. It is crazy, because I can tolerate clothing too close to my skin, So I always wear a long loose dress in the house, the socks help the best, there was a time I was keeping gloves too close to the heat source. I do what I can to be comfortable.
I have had fibromyalgia for over 30 years and the cold weather does not help me at all. I don’t go out if it’s wet weather if I can help it. Like you say more clothes heat pads help on some joints but when there all hurting every one keeps clear as I don’t cope to well and go very stiff. I am looking for a a club our something to go to with people how have got fibromyalgia as some times it helps to talk.
Hi, I my body used to prefer the cold weather. But has I've aged my body can't stand either hot or cold lol.
I used to hate summers I found easier in winter to warm up then summer to cool off even with a/c This winter I find myself being cold do bother me a bit
I find the hot so much more comforting for me pain and general symptom wise. For me the hotter the better!
Cold and wet really screws my fibromyalgia
I struggle with the cold weather (and even more so if it's cold & wet). I do better in warmer weather but only if it's not too hot
Same here! Cold and wet it’s the absolute worst!! I dread it! even with 34 layers on the pain still doesn’t go away.
I want it like well over 30 degrees all the time
I completely agree with you on hot and cold. I need a nice sunny but cold day as i know then i can wrap up but if it is wet and damp i struggle with wearing waterproof coats as i hate how they make me feel. If i am very cold my body warms up all except my hands. I suffer with what i call sausage fingers where my fingers swell and two or three of them are like ice blocks. Then i get red butterfly rashes across my whole face, chest and neck. It looks as though i have awful sunstroke.
My partner is always cold and hates it when i have the window wide open and my back door open but i refuse to have the feeling of uncontrollable.
Oh wow ! Poor you! My hands and feet get really cold then the fibromyalgia symptoms flare when it’s cold and wet. People laugh when I say I hate rain, well I hate it because it’s horrendous for pain! Then to add in the cold I mean it’s just disaster.
Hence why I love going on holiday in the dry hot and sunny weather it’s a huge relief
What a nightmare eh? I go away to Cyprus in September and that will be the best ever as its a different type of heat.
It is such a struggle.
both hot and cold affect me badly. My thermostat is totally screwed up. Its another aspect of our autonomic nervous system issues.
I have been in the Sahara for a winter a few years ago and it was amazing. Hot and dry - that's the key. Summers here are not so good, as they tend to be a bit too humid. But I've just come back from a winter in Southern Europe and again the drier heat really helped my symptoms. I returned to the UK a couple of weeks now and was plunged right back into it! 😂
Seriously though, I rate heat packs, those stick-on ones I find really helpful. Hot water bottles are a bit heavy, and I can stick the pads to my spine, which really helps me and allows me to keep moving. I also use olbas oil for a heat/ cold therapy.
Thank you for that tip...I find even my duvet too heavy but need so much warmth in winter...
Not sure what heat packs look like or where I get them, even? But I will ask around!
Thanks again xx
Wow wow wow!! I should move to the Amazon desert! I often go to the Carribean in the dry seasons and it’s just bliss. Hot dry and sunny I feel like I have a totally different body.
I do like the summers here when it gets to like 30 degrees ….. humidity doesn’t bother me so much
I too suffer when it is too hot or too cold. I think proberly out of the two I would rather put up with too cold as get very uncomfortable , struggle and feel panic in the extreme temperatures we get in London now, I prefer it does not go over 22c I also struggle in bright sun as have blepheritis needing to wear dark glasses all the time.
I suffer just like you!Wearing dark glasses all the time to protect me from brightness. I look forward to better Spring days but there's always a price to brightness, isn't there???
This lack of body thermostat is awkward for us all and our partners too?
Wx
I suffer both when it's cold and when it's hot. I've come to the conclusion I have an extremely wonky thermostat, which I believe is quite common with fibro.. Spring and Autumn are my friends.
Oh wow! Not come across many people who react as bad in both hot and cold. I can see why spring and autumn are your best friends! I just want and need dry hot summers all year long not too much to ask for?? Surely
I am same, worse when it’s cold. Also when it’s cold and damp the Arthritis is worse also.
Nightmare isn’t it?? Bloody nightmare
I suffer with both extremes. Can't do a thing in hot weather as I feel very ill then
hi, nine is worse in both hot and cold. if the temperature has remained constant or there and there abouts it is ok, if it then gets very cold quickly or very hot quickly it is worse, if it is cold one day then hot the next and then yoyo's it is hell
I love the dry heat of southern Europe and I recently went on a two week holiday to Egypt - a 7 night Nile cruise and 7 nights in Hurghada - and it was wonderful. Hardly any pain at all, lots of rest, laying on sun loungers, on the cruise as I didn't do most of the excursions, but I did visit Abu Simbel. That was a fantastic experience - apart from having to walk part of the way from the minibus to where I could get a golf buggy down to the temples, and back again, but it wasn't my Fibro that played up it was my COPD. *Our guide had told me that I wouldn't need my rollator as the walk was just a couple of steps - he wasn't telling the truth!) The heat in Hurghada was lovely too. The weather in January in Egypt is wonderful.
I can't stand the cold weather. I am wearing fingerless gloves at the moment while sitting at my computer and typing this! The heating is on and I'm right next to a radiator!
Hot or cold cold painful feet ankles legs
hot hot hot 
Hot 
Instead of hot water bottles cold ones
