I think I need to move to the Sahara, I really suffer terribly when it’s cold. 🥶
But I have heard people who suffer more when it’s hot.
I don’t think I understand why we react differently to eachother, that some are worse symptom wise when it’s scorching hot or b****y ( edited by admin) cold!
Any ideas?? Would love to know
I have fibro too for a very long time, in the last 20 years, I used to be very intolerant to heat or cold. In winter I use heat pads or a heat bags with grains, one minute and cold as an ice cube and the other, sweating like an old mare. I keep having menopause hot flashes at 81......So, my way to control it if you can call control I go with the flow, I always keep thick socks close to heat sources and change about 10 times a day or get all extra clothes aside. It is crazy, because I can tolerate clothing too close to my skin, So I always wear a long loose dress in the house, the socks help the best, there was a time I was keeping gloves too close to the heat source. I do what I can to be comfortable.
I have had fibromyalgia for over 30 years and the cold weather does not help me at all. I don’t go out if it’s wet weather if I can help it. Like you say more clothes heat pads help on some joints but when there all hurting every one keeps clear as I don’t cope to well and go very stiff. I am looking for a a club our something to go to with people how have got fibromyalgia as some times it helps to talk.
Ha ha can you imagine use wearing heat pads like everywhere?? We would look really quite hilarious!
I hate feeling that horrible stiffness, I find I have to go for a walk and push my legs to move
Hi, I my body used to prefer the cold weather. But has I've aged my body can't stand either hot or cold lol.
I used to hate summers I found easier in winter to warm up then summer to cool off even with a/c This winter I find myself being cold do bother me a bit
I find the hot so much more comforting for me pain and general symptom wise. For me the hotter the better!
Cold and wet really screws my fibromyalgia
I struggle with the cold weather (and even more so if it's cold & wet). I do better in warmer weather but only if it's not too hot
Same here! Cold and wet it’s the absolute worst!! I dread it! even with 34 layers on the pain still doesn’t go away.
I want it like well over 30 degrees all the time
I completely agree with you on hot and cold. I need a nice sunny but cold day as i know then i can wrap up but if it is wet and damp i struggle with wearing waterproof coats as i hate how they make me feel. If i am very cold my body warms up all except my hands. I suffer with what i call sausage fingers where my fingers swell and two or three of them are like ice blocks. Then i get red butterfly rashes across my whole face, chest and neck. It looks as though i have awful sunstroke.
My partner is always cold and hates it when i have the window wide open and my back door open but i refuse to have the feeling of uncontrollable.
Oh wow ! Poor you! My hands and feet get really cold then the fibromyalgia symptoms flare when it’s cold and wet. People laugh when I say I hate rain, well I hate it because it’s horrendous for pain! Then to add in the cold I mean it’s just disaster.
Hence why I love going on holiday in the dry hot and sunny weather it’s a huge relief
both hot and cold affect me badly. My thermostat is totally screwed up. Its another aspect of our autonomic nervous system issues.
Autonomic nervous system issues!!!Yes, this is it. Thank you Fibrooh. Thank you for naming it for me. THis makes sense to me.
I am getting much older, long retired now, but I had this unexplained sensitivities to all sorts of things, which not only my life misery, but made me unpopular with my very healthy and adventurous family because when everyone was having great time i just could not keep up. I was always too hot, or too cold. could not stand bright sunshine (even if I liked sunny days).
My clothes although made all from natural fibres BTW) were itching, irritating, uncomfortable, even when especially taylor made for me because I was so skinny ( I never had much appetite.) I really, really tried no to complain very often, but things could be quite unbearable at times (like sitting on sunny beach etc, labels on my clothes etc, etc).
I have ealso suffered with chronic migraine through all my adult life, but about 15 years ago they just stopped. Still a mystery, but blessed relief, all the same.
Do you know what my Mother called me as a child Princess on The Pea (from Angersen fables). I did not even protest, because I knew it was true. I am sure I could feel that pea under dozens of mattresses in my bed.
I had no idea that this might be sensitivity caused by the failings of autonomous nervous system issues. I was only diagnosed with fibromyalgia over 20 years ago, but I have obviously suffered from it since I was born.
When did you become aware that there is connection between Firbromyalgia and issues with autonomous nervous system, Fibrooh?
Arnika
I have been in the Sahara for a winter a few years ago and it was amazing. Hot and dry - that's the key. Summers here are not so good, as they tend to be a bit too humid. But I've just come back from a winter in Southern Europe and again the drier heat really helped my symptoms. I returned to the UK a couple of weeks now and was plunged right back into it! 😂
Seriously though, I rate heat packs, those stick-on ones I find really helpful. Hot water bottles are a bit heavy, and I can stick the pads to my spine, which really helps me and allows me to keep moving. I also use olbas oil for a heat/ cold therapy.
Thank you for that tip...I find even my duvet too heavy but need so much warmth in winter...
Not sure what heat packs look like or where I get them, even? But I will ask around!
Thanks again xx
Wow wow wow!! I should move to the Amazon desert! I often go to the Carribean in the dry seasons and it’s just bliss. Hot dry and sunny I feel like I have a totally different body.
I do like the summers here when it gets to like 30 degrees ….. humidity doesn’t bother me so much
I too suffer when it is too hot or too cold. I think proberly out of the two I would rather put up with too cold as get very uncomfortable , struggle and feel panic in the extreme temperatures we get in London now, I prefer it does not go over 22c I also struggle in bright sun as have blepheritis needing to wear dark glasses all the time.
I suffer just like you!Wearing dark glasses all the time to protect me from brightness. I look forward to better Spring days but there's always a price to brightness, isn't there???
This lack of body thermostat is awkward for us all and our partners too?
Wx
Thank you for you reply I also stuggle in restaurants , so many bright spot lights over tables Shops also and many public places have installed really bright harsh lighting, I am sensitive to all the loud noise and alarms that seem to go off everywhere too. Take care x
Yes definitely, public places hv such bright lights, don't they?I do now ask 2 change tables in a restaurant if there's one of those bright spotlights!!!
Or my partner has to bear it!!!
Poor chap?
Glad to share this disability with others like yourself... xx
Wx
I am glad I am not the only one having to change tables , I will let my family know I am not alone in this necessity. I find often that the Hotel or restaurant staff dont understand and find me a nusiance although I am very aplogetic. Flashing cycle lights are terrible too I will be glad the lighter evenings are coming Take care x
I suffer both when it's cold and when it's hot. I've come to the conclusion I have an extremely wonky thermostat, which I believe is quite common with fibro.. Spring and Autumn are my friends.
Oh wow! Not come across many people who react as bad in both hot and cold. I can see why spring and autumn are your best friends! I just want and need dry hot summers all year long not too much to ask for?? Surely
I am same, worse when it’s cold. Also when it’s cold and damp the Arthritis is worse also.
Nightmare isn’t it?? Bloody nightmare
I suffer with both extremes. Can't do a thing in hot weather as I feel very ill then
The hot weather makes you feel unwell?
Feel ready to collapse when very hot.
hi, nine is worse in both hot and cold. if the temperature has remained constant or there and there abouts it is ok, if it then gets very cold quickly or very hot quickly it is worse, if it is cold one day then hot the next and then yoyo's it is hell
Yes I think that’s what doesn’t help me when it suddenly goes really really cold, it’s like we go into Fibro shock, if that’s such a thing?!
I love the dry heat of southern Europe and I recently went on a two week holiday to Egypt - a 7 night Nile cruise and 7 nights in Hurghada - and it was wonderful. Hardly any pain at all, lots of rest, laying on sun loungers, on the cruise as I didn't do most of the excursions, but I did visit Abu Simbel. That was a fantastic experience - apart from having to walk part of the way from the minibus to where I could get a golf buggy down to the temples, and back again, but it wasn't my Fibro that played up it was my COPD. *Our guide had told me that I wouldn't need my rollator as the walk was just a couple of steps - he wasn't telling the truth!) The heat in Hurghada was lovely too. The weather in January in Egypt is wonderful.
I can't stand the cold weather. I am wearing fingerless gloves at the moment while sitting at my computer and typing this! The heating is on and I'm right next to a radiator!
Ah yes the Egyptian heat! Pure desert! I need a house there
So glad you still manage to get away, I make sure I go away once or twice a year at least I need a break from work and life
I agree, I go away as often as possible, we are both retired so it makes it so much easier, just have to work around dentist, GP and hospital appointments! lol x
How lovely! Make the most of it and good for you! I cannot wait until I can retire
Best thing I ever did!
Can I ask did you have to retire early?
I was made redundant at the age of 54, couldn't get a job after that. I was fussy in that I wanted a job closer to home, been commuting to Cardiff for 9 years any was fed up of traffic jams and journeys taking 2 hours when they only take half to three quarters of an hour in normal traffic. I didn't realise at the time I was menopausal too.
The weather needs to be not too hot, and not too cold. Just right is what I like.👩🏻🦰 If we are having rain, then I prefer it not to be wet rain. I don't mind a warm wind either. Today was pretty nice. 14 degrees and togged up for colder, I was toasty out on my walk.
Actually it’s been ok lately temperature wise (well I would rather it be double!!) but it’s when it’s warm and wet it’s so contradictory as the warm is good but the wet makes me hurt.
I had a walk during my lunch break was really quite pleasant
I think most fibros (I know), are like a Goldilocks Princess. They notice and are upset by the slightest thing that isn't right and comfy. If you swap out my pillow, in the dark I'm going to notice. A lumpy bed, a change in washing liquid (smell or how our laundry feels), too many or not enough covers in bed, you name it, one or all of us will complain. The barometer dropping or whatever it does is often a trigger. How fragile are we that we notice air pressure? I find it weird how 'normal' folks are so lacking in discernment but of course it's us what are the odd balls.
I have in my short time of having FM broken so many hairdryers I make sure I get the insurance I need the heat in certain places but keeping the heat in the spot you need is a constant fight as it’s all over yep I have a electric blanked for my bed but I cannot stay in one position for too long and even when I knock out thanks to the heat I wake up in so much pain as I’ve been in that position for a duration how do we win 😢🥺😱
Hot or cold cold painful feet ankles legs
hot hot hot 
Hot 
Instead of hot water bottles cold ones
