Getting the point across

[Yassytina]

Hello, I often read here and respond too members like myself who find it hard getting the point across how Fibro (let alone other health conditions🤣) can affect people on a daily basis , sometimes you feel like getting a big speaker (like they use on school sports day 😫)and shout are you listening , I’d like too think I am a decent person , a good listener , giving support threw my years too others , But it when it’s on the other foot its always amazes me how little it can come back Yep the times I feel empathy for so many members here when I read their posts , it is a good job we can talk here in our very big unwanted club. Today I stood my ground 🤣I have a long term friend who is very needy and likes everything her own way, every week it’s the same day , same time that suits her week , today I moved the time too help me as in the mornings I like too be fairly quiet and break myself in gradually in the space of my home . A few grumbles here and there from her but I’ve stuck too changing things, I think what I’m trying too say a person without health conditions will not get it unless they walk in the shoes of others, not sure if it’s an age thing too that I speak up more 63 yrs (40 in my head still 🤣 ) but if people want our company learn too adapt alittle , moan over 🤣xx

[Dinkie]

Good for you, standing your ground is never easy. I for one find my head screaming "no" and my mouth saying "yes of course", then wondering how on earth I got myself into such a situation 😂 I've just ended up fostering a dog because of the mouth speaking before the brain kicked in.

I've decided that this year I'm going to look after number 1 for a change and not do all the "just" jobs. You know the ones "could you just......" I seem to get loads of those every week from the family and friends. I have one good friend who herself has various health concerns so we do "get" each other and adapt our plans accordingly but others just don't seem to understand, even when we explain the spoon theory. To them if they can't see the actual disability it doesn't exist. Invisible illnesses are so difficult aren't they. More so fibro as one day we can appear to do something and the next can't do a single thing.

Onwards and upwards Yassytina

[Yassytina FMA UK Volunteer in reply to Dinkie]

Thankyou for your reply, I get totally what you are saying 100%,too top my day my washing machine has just gone wrong 😉in general I do see the humour in life and still find time too laugh at things , including my football team last night losing too Man Utd, we were a championship team who joined the Ranks of Premiership a tall order trying too keep up with the big guns. Lots of hugs too you x

[Dinkie in reply to Yassytina]

give the machine a swift kick - works for my daughter! Her machine has a mind of it's own and she's always calling to ask me to do her washing then whilst talking to me and kicking the machine it starts working. I'm sure all domestic appliances die as soon as the warranty runs out. I remember having my original fridge/freezer for 25 years, lucky these days if they last 5 years.

[CheetieCat]

This one might give them food for thought 🤔

Txt

[Yassytina FMA UK Volunteer in reply to CheetieCat]

Thankyou for this x

[Blue-52]

well done hun, keep it up. 🤗🤗🤗