Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,601 members • 66,674 posts

All posts for August 2020

Hand rails

Can anyone help please as I don't know where to start. I need to get another hand rail put up the stairs as currently I'm crawling up there. Does anyone know...

Can anyone help please as I don't know where to start. I need to get another han...

Keldog

•4 years ago

8 Replies

Partly deaf

Hello Bad day yesterday again, never rains when it pores, I had my hearing test yesterday and it came back that I was moderate to serve death. Ive also now...

Hello Bad day yesterday again, never rains when it pores, I had my hearing test ...

Keldog

•4 years ago

29 Replies

Worry over pain and pip

So much pain last few months and now have worry that my pip could stop again. Won appeal last time they stopped it but doesn't make it any easier. I have got...

So much pain last few months and now have worry that my pip could stop again. Wo...

Jackley

•4 years ago

1 Reply

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What doctors don't know. Fibro descriptors... Lamens terms....

Fibromyalgia: Is like having 5 heavy books and a headache and a stocking over your head with woodworkers G-clamps on every muscle in a human body that...

Fibromyalgia: Is like having 5 heavy books and a headache and a stocking over yo...

Hidden

•4 years ago

5 Replies

PIP Appln

My wife has higher rate DLA.She is now being asked to apply for PIP. She was diagnosed back in 2005. Her condition has got steadily worse.She also has other...

My wife has higher rate DLA.She is now being asked to apply for PIP. She was dia...

Hidden

•4 years ago

13 Replies

Help, My Fibro symtoms have got worse

Hi, I'm new here. My GP diagnosed Polymyalgia Rheumatica in December 2018 and in April 2019 the Consultant diagnosed Fibromyalgia instead. I have been taking...

Hi, I'm new here. My GP diagnosed Polymyalgia Rheumatica in December 2018 and i...

Larnie1

•4 years ago

11 Replies

PIP AWARD

I have just received my PIP Award today I was awarded the standard daily living amount but no mobility but it’s a start so feeling grateful 🥰

I have just received my PIP Award today I was awarded the standard daily living ...

Hidden

•4 years ago

66 Replies

How did you find your diagnosis?

Having looked at the symptoms and comments, I strongly feel my auntie has this Fibromyalgia. She’s been offered talking therapy but she’s in so much pain...

Having looked at the symptoms and comments, I strongly feel my auntie has this F...

Rosiea1

•4 years ago

6 Replies

Becoming a pensioner!!

UDATE : , thank you are for you replies to this, some good news today, I am getting some help from pension credits, albeit reduced , it still brings me back to...

UDATE : , thank you are for you replies to this, some good news today, I am gett...

angelm54

•4 years ago

19 Replies

Its been a long time

Its been about 4 years I think since I have posted on here. I don't know why its been so long?? I know a fair bit about my illness but have never really been...

Its been about 4 years I think since I have posted on here. I don't know why its...

Jbell22

•4 years ago

8 Replies

Feel like I'm going mad

Hi, what a terrible few days I've had, non stop pain, migraines, hot flushes, thought I was going to lose my mind. 3 nights in a row now with bad migraines,...

Hi, what a terrible few days I've had, non stop pain, migraines, hot flushes, th...

Keldog

•4 years ago

10 Replies

Positive Time

Hello everyone, especially our new members. I have experienced fibromyalgia since the age of 40. My first experience was directly post an operation. At its...

Hello everyone, especially our new members. I have experienced fibromyalgia sinc...

Tootiepie

•4 years ago

7 Replies

Early retirement Ill health turned down .... now what

I have been turned down for my early retirement on the grounds of ill health. I also applied for VR and was turned down for this also. My occ health adviser...

I have been turned down for my early retirement on the grounds of ill health. I...

Flakelydove

•4 years ago

14 Replies

PIP ASSESSMENT

Hi all, I have a pip telephone assessment next week, any tips are gratefully receieved x

Hi all, I have a pip telephone assessment next week, any tips are gratefully re...

Macdoual

•4 years ago

34 Replies

Meds

hello, Does anyone take Amitriptyline for pain relief for fibro as I have just started it, Thanks

hello, Does anyone take Amitriptyline for pain relief for fibro as I have just s...

Missjen

•4 years ago

11 Replies

Sore points on lower back

Evening guys. Does anyone have any sore points of the lower back? I have two on each side, like a knot but causes extreme pain when touched and makes me feel...

Evening guys. Does anyone have any sore points of the lower back? I have two o...

jjsmum

•4 years ago

4 Replies

Finger pain

Hi every one dose any one else get sharp pain in the fingers and hands with some times I’m sitting watching TV then suddenly I get this sharp pain it starts in...

Hi every one dose any one else get sharp pain in the fingers and hands with some...

hitman57

•4 years ago

7 Replies

Duloxetine

Hi. Does anyone have experience with Duloxetine. Prescribed for Post Viral Fatigue Syndrome to regulate sleep. Not sure I want to take it.

Hi. Does anyone have experience with Duloxetine. Prescribed for Post Viral Fatig...

Seraphina56

•4 years ago

20 Replies

B1 treatment

Snox here , I’m looking for information on B1 treatment & fibromyalgia thx

Snox

•4 years ago

Be the first to reply

Feeling Hopeless

I spoke to my doctor about getting a diagnosis 2 years ago, after numerous visits to numerous GP they've finally ruled out more or less everything else. They...

I spoke to my doctor about getting a diagnosis 2 years ago, after numerous visit...

No_Saint

•4 years ago

9 Replies

I'm new to this damned illness!!

Hi everyone, was 'officially' diagnosed with Fibromyalgia half way through lockdown. It couldn't have come at a worse time as I was just coming out of a...

Hi everyone, was 'officially' diagnosed with Fibromyalgia half way through lockd...

rifleman

•4 years ago

31 Replies

Is there a link between hemiplegic migraine and Fibromyalgia at all please ?

Rather specific, I know !

Lehuquetif

•4 years ago

7 Replies

Does anyone have a Fibro flare kit or just a box with stuff to help your fibro by your bed/where you frequently relax?

what's in it & how have you stored it? Looking for inspiration of things that may help / what to keep close to hand.

what's in it & how have you stored it? Looking for inspiration of things that ma...

Hidden

•4 years ago

4 Replies

Lifestyles fibromyalgia

Hello all, I have fibromyalgia disease and I don't know what to do, I will be grateful if you will give me any advice on what diet to follow that helps...

Hello all, I have fibromyalgia disease and I don't know what to do, I will be gr...

Meriem

•4 years ago

9 Replies

Exercise

Hi Everyone. This is my first post although I have been lurking a while. I would like to start getting myself a bit fitter. I currently do a few minutes of...

Hi Everyone. This is my first post although I have been lurking a while. I woul...

Ellymoon

•4 years ago

8 Replies

Fybramalgia I'm told I have, please read and offer any advice, thanks in advance

Hello all, First post, sorry it's a bit long. I have been struggling physically for the last 6 months, after falling off a ladder only 2 MTRS and fell on my...

Hello all, First post, sorry it's a bit long. I have been struggling physically...

Harry-Hill

•4 years ago

36 Replies

Gallstones

Anyone know the best thing to help with the bloating. Doctor has given me mebeverine which isn't working and my hernia has kicked off as well. My morphine is...

Anyone know the best thing to help with the bloating. Doctor has given me mebeve...

Tra70

•4 years ago

11 Replies

Pip form help

is there anyone or anywhere you can go to get help to fill in pip please

sharonwelsh

•4 years ago

10 Replies

pain in left arm

left arm pain while sitting and get woken from sleep

jgeddes

•4 years ago

6 Replies

Botulinum Toxin Injections

Morning all, Hope you are all well. I have a neurologist consultation today and I think I will be having the above injections for pain. Has anyone had these...

Morning all, Hope you are all well. I have a neurologist consultation today and...

aaron1234

•4 years ago

7 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for August 2020

Hand rails

Partly deaf

Worry over pain and pip

What doctors don't know. Fibro descriptors... Lamens terms....

PIP Appln

Help, My Fibro symtoms have got worse

PIP AWARD

How did you find your diagnosis?

Becoming a pensioner!!

Its been a long time

Feel like I'm going mad

Positive Time

Early retirement Ill health turned down .... now what

PIP ASSESSMENT

Meds

Sore points on lower back

Finger pain

Duloxetine

B1 treatment

Feeling Hopeless

I'm new to this damned illness!!

Is there a link between hemiplegic migraine and Fibromyalgia at all please ?

Does anyone have a Fibro flare kit or just a box with stuff to help your fibro by your bed/where you frequently relax?

Lifestyles fibromyalgia

Exercise

Fybramalgia I'm told I have, please read and offer any advice, thanks in advance

Gallstones

Pip form help

pain in left arm

Botulinum Toxin Injections

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