Its been a long time

[Jbell22]

Its been about 4 years I think since I have posted on here. I don't know why its been so long?? I know a fair bit about my illness but have never really been part of any community. I haven't really had a lot of people who understand the day to day issues of just living a life like a normal human. For some reason I'm getting all emotional.... but i guess its because I have missed explaining whats going on in my life. I have been having alot of bad days recently and at the beginning of the year had to make a choice regarding what to do next with my health and pain management. I have been holding off for as long as I can but I don't think I can much longer... I'm afraid it will affect what I'm trying to do with my life at the time I finally decided to dry and do what I have always wanted which is to help people the way I never always got to be treated. I know I'm rambling but thanks for listening. And anyone who replies it means alot. I still have a lot to learn about my illness i am still young but I think now is when I need a community to help me.

Have a good evening everyone xx

[M0AL61 Moderator Volunteer]

Hi Jbell22, and a very warm welcome back to the forum. xx

[Jbell22 in reply to M0AL61]

Thank you xx

[cynanwyl]

Sounds like you have a lot on your mind and you need to be heard, Jbell, but you’re too distressed to explain in detail right now.

If you think it will help you to explain more fully...We’re here to listen.

Just take your time....relate a small piece per posting whenever you feel up to it. Members can piece them all together to appreciate your ‘ big picture’ over time and try to support you. x

[Jbell22 in reply to cynanwyl]

Thank you. And I appreciate your advice. Sometimes it is hard to talk about and alot has happened thank you xx

[1499]

Hi There, I don't write very often these days either but have been replying and things more so over the last few weeks. I do tend to call on all our Fibro-Warriors on this forum when I am really struggling with this horrible condition, and I think everyone of us who has it and other conditions along with it struggle badly, it is great getting replies from others who totally understand what it is like. what

Sometimes if you can help people less fortunate than yourself it can be a great therapy if your Fibro condition allows, and you will get so much from it and those you are helping. We all have to try and pace ourselves to avoid flare-ups so bear that in mind! People just don't understand this condition and unfortunately some Dr's don't either. I hope whatever you intend to do works out for you. I have found my Fibro has got worse the older I have become and you still have youth on your side. I think we all need an outlet of some kind. I have some hobbies some I can't manage so much these days with my neck and back issues now but doing something we enjoy is a boon when having Fibro Good luck to you Xx

[Jbell22]

thank you so much i appreciate your advice xx

[Blue1927]

Hi, welcome. I do not write often, but everyone on here is amazing. It’s hard when people do not understand and I often get the look where they are thinking there is nothing wrong with her, but they cannot see what is going on inside. I am still trying to understand and deal with this and I feel you emotions. The best thing to do is talk and people here understand this horrible condition. Sending you a gentle hug 🤗 x

[Jbell22 in reply to Blue1927]

Thank you xx