Yes iam the same. Always in pain most of the time a lot of pain. Morphine and Zapain does help a bit. What gets me is no one seems to have any answers. The GP's seem to be unable to help. The only thing I do now, is live for today but prepare for tomorrow. Good Luck and hope God can give you some peace. Phil
Hi PastafoxFibro is indeed random and varied with its "gifts" and can give us extreme emotions, naturally that is aggravated by life's losses and struggles.
It can be made worse by multiple losses, job,health,grief,friendships etc. so as we accept one, another knocks us off our feet. This can give a confusing up and down feeling.
It is sometimes hard to reach out and check new symptoms. These requests sometimes fall on stoney ground.
Always best to check out new or extreme pain. Sadly other conditions are available.
I hope you find some balance and peace and things improve.
I am sorry to hear that you are going through this, I can relate to this 1000%. I currently work in a stressful job and because of my conditions I have had to take a lot of time off. My colleagues don't seem to understand why I have been off.
Some days I feel great about everything but the last few months I have hated it.
My manager is one of those who agrees with what you say then will speak to someone else and then change her mind and come back to you almost questioning why you said or did something.
I am due to have an interim health review after a first health review, Knowing full well what they are trying to line me up for.
I read your post and totally understand as I too went through the same journey you are going through now.
I am now retired now, however I look back and see how I was treated and what I put myself through by feeling guilty for having a condition 🙃 I could not control.
I become scared about questions that were going to come my way as I felt Constantly watched by my manager and HR . There are loads of things I really regret.
Not sharing with them how they made me feel.
Mistakes I made .
Anxiety they created at my workplace entered into my life all the time as I never stop thinking about it.
There attitude towards my illness affected my job role as I felt they looked at the illness and not me doing my job role. My knowledge and my experience to carry out my tasks.
If I went sick the atmosphere on my return to work use to be awkward 🙃 and make me feel guilty I had taken time off sick.
I isolated myself in not sharing how my work environment and colleagues and Manger made me feel . I was always stressed and lost my confidence to speak out. 🙃
This whole behaviour throughout the workplace and homelife affected me as I changed my personality.
I stop sticking up for myself as people didn't understand. I stop talking about my illness.
These are the things I should have shared with them to support me more.
There Attitude toward me ?
Manger talking behind my back .
Stress they added to my situation.
Making me feel guilty for being ill.
Not really understanding how they could support me in the workplace.
Trust , they made me feel they didn't trust my feedback
Making up my symptoms 😫 not listening to me as a person. Fibromyalgia can be a positive thing to Manger if you are supported the correct way.
Changing my behaviour due to the unpleasant and emotions Environment I worked in.
And so much more .
My advice to you is share how you feel with a meeting with your manager and HR .
Show your emotions about your job and your mindset and ongoing illness through work
And what they could do to help you feel better about how to deal with your job / tasks at work. Ask if they could consider more breaks or support you with reviewing your hours when you have a flare-up.
There are lots of things they can do to help you .
Your a human being and unfortunately can not control what happens to you through illness.
Step out of the unsecured world and have the strength to kick back at the portion they are putting you in. You owe that to yourself. Be strong . Be clever to educated these people on your illness. Print of information on fibromyalgia and give them a copy to read.
Bring back YOU. Because you are the brave one who still works and silently go through the torture of them not believing in you.
Be proud of you and your mindset. they are in the wrong.
To support you and give you strength go to the website of talking therapist and register your name .this team will call you and talk through your concerns about anything you need help with.
I so wish at the time I went through this I had some one who could have given me support and advice 😪 but now i am older you offen reflect why did I let that happen.
Get more support from you GP and tell them your worries about work they may suggest something that could help. 😉
Anybody that has any illness is the brave soul as they live through the symptoms and feelings .
Good luck my brave friend. Please kick back at this Negative approach. 🙏 stay safe and god bless xx
Yes, I am the exact same, getting very angry 1 min and crying the next. I know it's bcoz I'm so fed up, I mourn my old life, the one where I could work. Like this month I have 2 of my children's birthdays 2 days apart (they are 1 year and 2 days apart from each other), there's Easter and the holidays, Mothers day and how do I manage all this on benefits 🤷🏻♀️ I can't! I honestly don't know what to do. It's times like this that I get so angry and upset. I feel like a failure 😞 I just want to go back to work but I'm no longer able to. I have other health complications but I'm only 43 years old and I feel my life is over before it even began!
So I know how you feel. I see a psychologist every fortnight via video link, sometimes it helps, sometimes it can make me feel worse. One thing that I have learnt to do though is write my feelings down, it's my way of getting things off my chest. Don't get me wrong, I don't always do it, I hide away mostly and sleep bcoz what else is there to do 😢
Hi miss picky, I know what you are going through. I was diagnosed with fibromyalgia and CFS/ME and company as I call all those other health problems that like to join in back in my early 30 to mid 30’s. I am now 63. I have mourned the loss of my life of who I use to be and do. I still do. I have felt like a failure in life of losing my health, career and ministry, only one of 4 siblings who went through a terrible divorce, loss my family as I knew it. Remarried but second husband turned out to be verbally and sexually abusive always talking down to me. We stayed married even though marriage was rocky. He caught COVID in the hospital and died a little over 3yrs ago. So I am scared to enter into a new relationship now. My first husband was diagnosed with narcissist personality disorder in his second marriage but when his second marriage ended she sent me his medical records. It surfaced its ugly head in the last year of our marriage when his personality did a 180. So now I need to heal me. It is hard to go from a decent income from working to going on disability on a tight income especially when you have children. Things do kinda get better as you go on this journey with your health. You become stronger because of all that we go through. Yes it is a hard journey but try to embrace the little things the love and hugs from your children. A sunny ☀️ warm day. Know God has us here for a reason. It isn’t always clear but to help and encourage others who are struggling with the same things we are. Blessings and hugs 🤗 💕
I’m sorry to hear about your struggles with what you’re experiencing.
The pain and symptoms you described are not just aches and pains. I think you should take notes of everything you have gone/going through in detail and see your GP soon.
I’m very concerned about you love. Please let us know how you’re getting on.
Hi Pastafox, yes being in constant pain does affect us emotionally and spiritually. I have been going through some different levels of pain and other symptoms over the last year and a half which has brought anxiety into the picture. Depression has been there prior to this but has worsened which it isn’t as bad now but the anxiety 😥 has really been an issue. You are not alone. Have you sought out mental health services to help deal with the emotional side? I know it is not always easy to find the “right fit” when it comes to a counselor. I hope this brings you some comfort. Sending hugs 🤗 💕
Indeed the mixed emotion s, feel angry, frustrated, poorly, sometimes happy, wanting too cry, trying too find the strength too keep going, thank goodness we can chat here with each other and people that understand .
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feeling strange
Is this fibro?
Fibromyalgia queries?
Arms and legs suddenly went numb and hasn't been the same since someone please give advice ?
Is this typical of fibromyalgia 
