Sleep (joke): Hi Brothers and Sisters... - Fibromyalgia Acti...

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Sleep (joke)

Pastafox profile image
29 Replies

Hi Brothers and Sisters anyone else find just as getting settled down to sleep I need to pee am going anything upto 10 x a night During the day is worse

Climbing the stairs is great way to exercise I know if this carries on I will be cracking rocks

He he

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Pastafox profile image
Pastafox
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29 Replies
Dizzytwo profile image
Dizzytwo

Hi, are you also drinking more ?

Pastafox profile image
Pastafox in reply toDizzytwo

Hi Dizzytwo no am not drinking more I constantly feel I need to pee I try and stay busy in the day when able I often go to bed wacked soon as my head finds the pillow BING am wide awake Ruminating everything and nothing stay safe...

Janecc12 profile image
Janecc12

God yes!! But mine is mainly due to perimenopause... I'm gathering your's isn't!? Speaking of sleep - I'm going to piss everyone off now.... Last Tuesday I had 5 straight hours of sleep!!!!! I haven't had that in years. Needless to say I haven't slept well since as per the norm. I shall always remember the 13 th of March 2025 ; )

giraffe8 profile image
giraffe8 in reply toJanecc12

Ha I had 4 hours once I was so surprised ha !

Janecc12 profile image
Janecc12 in reply togiraffe8

I know, it's mad isn't it!

KytttyKatt profile image
KytttyKatt

I had the same issue and my GP prescribed Mirabegron. I really did not want to take any more medication but so far they have worked for me. I hardly go during the night. The urgency to go is so much better.

jojotom profile image
jojotom in reply toKytttyKatt

I'm on solifenacin honestly a life saver

CWLL profile image
CWLL

I think you need to check for diabetes. If that's clear have a prostate test done. Hope this helps

Dizzytwo profile image
Dizzytwo in reply toCWLL

I agree that's why I asked was he drinking more. Thirst and going to the toilet more can be a sign of diabetes 👍

Pastafox profile image
Pastafox in reply toCWLL

CWLL I do type 2 was told at my last review I have sent running checked my blood sugar today first reading was 18.5 then after 2pts of water an hour or so later it went down 8.6 Am going to chew the Docs ear off Tuesday bless her...stay safe

giraffe8 profile image
giraffe8

Yes my bladder feels even more irritable at night. I am told I have irritable bladder alongside IBS. Having a cystocele and rectocele do not help matters I guess. Pain , discomfort up and down to bathroom all night for years. . I think to myself though at least I get to move in night constantly as stiffness and pain if one tried to move after a good nights sleep would be even worse , Goodnight sleep Whats that ? Ha !Hope this makes sense,

jojotom profile image
jojotom in reply togiraffe8

I've got the same as you cystocele and rectocele I got tablets off doctor called solifenacin honestly they have helped hugely and the bladder actually holds more and don't get that urge to quickly get to loo definitely speak to doctors

giraffe8 profile image
giraffe8 in reply tojojotom

Thank you for letting me know.

jojotom profile image
jojotom in reply togiraffe8

You're welcome and let me know what the docs says I'm on the initial dose my doc first prescribed but a friend of mine was same as you up and down all night she was prescribed solifenacin they didn't really help but doc increased her dosage and they've been like a miracle cure in her words lol good luck

jojotom profile image
jojotom

Definitely get it checked out as others have said

Pastafox profile image
Pastafox in reply tojojotom

Hi Brothers and Sisters Seen the Doc yesterday full blood test including prostate xray next week then following up 3wks and further investigations into other areas thanks to you all for your encouragement to sort it you all

Hello, just read your post, could it be your prostate that is causing you to pee a bit, I had/ have similar issues( peeing about 20 times a day), after a lot of tests and embarrassment, it turns out to be an enlarged prostate, just a thought, take care and hope i havnt embarrassed you

Pastafox profile image
Pastafox in reply to

Not at all appreciated ...stay safe

Pastafox profile image
Pastafox in reply to

Falling apart Not at all really do appreciate you sharing stay safe brother I have been told I have good ear stay safe brother...

Sarahvit profile image
Sarahvit

Hi Pastafox, 2 words Interstitial Cystitis. I know the feeling. I was diagnosed with IC oh probably 15-17yrs ago. This is very annoying to have to go very time I turn around. Interstitial cystitis is common with fibro and I also have noticed aging affects the frequency of having to get up at night to use the restroom. I don’t know your age but it seemed to me hit me around age 61 all these “wonderful” changes (not). The test for IC is pretty simple either you have it or don’t after or during the procedure of fluids going into the bladder. If it stings (positive) if it doesn’t ( negative). The treatment is usually a couple of medications that numbs the bladder that cuts back on the urge to go. Avoiding high citrus acid foods and caffeine also decreases the frequency of having to run to the restroom. I am sorry you are having to deal with this. Drinking water helps flushes the irritants out.

Breakfast has arrived.
Beakybird58 profile image
Beakybird58 in reply toSarahvit

I too was going to suggest IC. I’ve had it for years. Had bladder instillations, which helped but it meant weekly trips to the hospital. I used to self administer but now my back has deteriorated I find it too awkward.

Sarahvit profile image
Sarahvit in reply toBeakybird58

I never had the bladder instillations. Was that something that numbed the bladder? I use to take the numbing pills (don’t remember the name but there are 2 different ones) and even had the bladder stimulater implanted but my body kept pushing the leads out so was more hassle so just had it removed. So now I just live with it. Yeah this aging thing…causes degenerative changes in our bodies.

Beakybird58 profile image
Beakybird58 in reply toSarahvit

Sorry for late reply, thought I had!

The instillations were hylauronic acid to coat the bladder. The newer ones have something extra in them but can’t remember what! Maybe worth asking about them in urology. My next appointment has been pushed back till September- as with a few others. Madning.

Sarahvit profile image
Sarahvit in reply toBeakybird58

Thank you Beakybird58. I have done the same thing where I thought I replied back but got distracted and didn’t. No worries 😉 I have stopped going to urology. Just am dealing with going to restroom frequently. I appreciate you getting back to me.

Beakybird58 profile image
Beakybird58 in reply toSarahvit

I know how you feel! Take care. X

Can so relate as a fellow male species! 6 times last night, & each morning I feel so lacking energy. I’ve carefully monitored what I drink and how to stay hydrated, but the need to go for a wee still is there with me wondering where’s it coming from. It’s hard going I tell you that

Hopeless emoji

I don't mean to be rude, but are you getting to that age where you might be forgetting things? (I am.) A before bed checklist works. Doesn't stop all the ruminations, but helps.

Pastafox profile image
Pastafox in reply toNothing_but_books

My sleep had been like this on and off for ad long as I can remember my mum once told I apper asleep in her arms then as just lay me down I would and stare through her ...

Bantamdyno profile image
Bantamdyno

Cut out the fizzy drinks and alcohol and any thing with citric acid in it ...fizzy drinks😱

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