curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about.
I’m currently taking the mini pill for 4 months and symptoms have improved but my linguinal and the right side of pelvic area is still sore. It’s a dull tingling pain that sometimes moves within that area. I wonder if there’s anything I can take to alleviate the pain.
I would like to ask my GP and private consultant if this mini pill is the right treatment for me…and see if maybe I can change to a different pill, I’m not sure.
I’m really interested in other herbal medicines instead of synthetic hormones, has anyone found tumeric substances and Chinese herbal medicines as well as omega 3 which are all anti inflammatory to be of any use?
thanks everyone for your help,
Take care
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Virginia10
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Hi Virginia10, I have a myovvi and it has helped with my pain. I have PCOS and I'm waiting for surgery for possible endometriosis. I also use a heat pad that I wear. The devices have helped me carry on at work, I'm an early years educator so always on my feet!
Thank you! Heat does definitely help. Just myovvi is very marketed at the moment so wanted to get an insight from a better source thank you and hope you get surgery soon x
I don’t use a myoovi but I do use a Livia - they’re all different versions of TENS machines. I gave up on taking paracetamol or ibuprofen for the pain as it didn’t do anything but I find using a TENS machine definitely does. They’re sometimes used in labour so you’d hope it would do something!
I would be careful for how long you use it at a time, they can irritate the skin, and the tingling sensation you get from having them can be very strange, but I’d rather have that over the pain. I find when I use mine, I can typically get on with things without being too distracted with the endo pain.
it’s not a magical cure all, but it’s at least a start to easing the pain! I’m often on my feet all day working in a lab, and so without it it feels like I can’t get on with my job sometimes.
Hi Virginia, firstly I think it’s great that you’re open to looking at more natural forms of pain relief. I 100% would recommend that as much as possible, because the medicinal route is just to cover up the symptoms as opposed to addressing the actual underlying issues and cause of the pain.
I’ve been using Myovvi now for a month or so and finding it really helpful at times. The only thing is, it just distracts from the pain. It’s like tiny points of stimulation that then take the brains focus away from the pain. So I’ve found it helps me when I’m working or doing my coaching calls etc. But I have to say, once I take it off, the pain is still unfortunately there. But I’m not so bothered about it, which is great.
For me, it enables me to do more things than I was able to due to the pain getting too much and so not able to concentrate etc.
I used to have a tens machine many years ago for fibromyalgia pain which worked really well, which is why I decided to give it a go. I am actually really surprised doctors don’t recommend it because it does help give some relief, maybe a lot more for others. I did a lot of research and there’s large amounts of women reporting them to be really good for pain relief during labour! Which really surprised me. I wear mine for hours sometimes too - and it really helps me with sitting for long periods etc. So the battery life is pretty amazing!
Any tens machine should work well. As all it is is electrodes connecting to the area where the pain is and a way of altering the level of stimulation. A physio I asked said any should be just as effective so you shouldn’t have to pay for the really expensive ones. I got a good discount with Myovvi so just went with them as they offer a good money back guarantee too. I’m happy to share it with you if you like? 🤗
Definitely look into supplements to help with reducing inflammation etc too yes. Omega 3 oils have been said to be really good for endo. I take that with a few other things. It’s definitely a multi-faceted approach for sure- but when you do that it can really help you manage the pain well.
I 100% recommend acupuncture for pain relief in general, but it works on the underlying issues - eg hormone regulation. I was managing my endo for the first year or two solely with supplements, acupuncture and Chinese herbs until sadly I ran out of money and so then had to revert to painkillers. I’ll be restarting the acupuncture again soon tho thankfully, because I think it has such huge benefits. With sleep, increasing and many things.
Hope that helps, happy to chat too if you’d like. Wishing you all the best! Lisa x
hello! I got a Myovvi about a year ago and it has worked really well for me. I’d put it on it the morning and wear it all day just on low. I found it really helped me along with an electric hot water bottle sometimes too. They are quite pricey but I felt it was worth the investment! Best of luck x
A friend gave me her Myovvi after she said it made her feel sick after using it... I am yet to try it as I'm scared it's going to do the same 😅 but she doesn't have endo so I am interested to see if it will really help with the pain!
Hi Virginia, I got a Myoovi last year and it made a huge difference to my body's response to pain. I was able to reduce the number of pain killers (totally took difene out of the equation). It helps interfere with the pain feedback to the brain. I happened to read "the way out" book on chronic pain at same time which was also focusing on "remembered pain responses". I don't use the Myoovi device as much any more as I get a skin reaction to the adhesive. But Myoovi actually offered me a refund if I wanted it because of this. Very good customer support.
It's worth a shot, it doesn't do any harm amd it could give you some much needed relief.
Thanks I ordered it and I’m a bit weary to use something electrical though. How do your return it ! I’ve asked customer care but they haven’t gotten back to me yet; do you have any instructions for it ?
I'm sure they have a returns policy. It's pretty safe to use, it's a small rechargeable battery with aot of different settings so you can suit to your preference.
I am an acupuncturist and it’s not really how it works but Tens type devices can be effective for lots of women.
I found acupuncture helpful but there are different types so going to the BAC for a practioner and recommendations by those you trust is often the best route. Chinese herbs can be helpful but can be troublesome for some to stomach and prep . I found little help with them personally even with good practitioners. I have had more success with mushroom tinctures and there’s useful studies done on both Reshi and Lions Mane - the second which is a mild dopamine agonist.
There’s plenty of studies demonstrating the necessity of high quality Omega 3 being required for endo sufferers and I find my neural pain and general inflammation significantly reduces using it. Underline however it must be the right strength of EPA and DHA in correct ratio to be effective that’s found in higher quality products taken daily. Expect any nutritional supplements or dietary changes to take at least 3 months before you can properly assess whether they are beneficial for you - longer to really see the change. Remember with supplements it’s taken a long time for this disease to develop and it will take months to effect change in the building blocks of your metabolism. It’s not the same as quick acting drugs. I use Reservatoral, Quercitin & Bromelian as well as daily cider vinegar or milk thistle extract to support liver function. In addition I did some training with a specialist pelvic physio which has been really helpful with pain relief and general wellbeing . There are one or two dietary restrictions I’ve had to make but generally found Mediterranean type diet supportive and non bloating . I have to work at getting sufficient protein for my needs from a wide range of good sources. All of the supplements I use are for a specific purpose for my particular set of endo issues and are well supported by plenty of double blind studies. Ensuring they come from a reputable manufacturer is important and are at the right dose will mean they are effective or not !
You might find Katie Edmonds book a good guide to navigate what can be a confusing area in nutrition and its why’s and wherefores. It encourages a wide range of approaches as well as medical care to manage the condition tailored to your situation. It’s very readable and reassuring. You might find it useful to look at the work of University of Edinburgh trials with Sodium Dicholoacetate (and a similar acting supplement NAC ). Both work on the intercellular lactate metabolism.
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