High anterior resection due to Endometriosis - Endometriosis UK

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High anterior resection due to Endometriosis

Adnalim profile image
5 Replies

Has anyone had a bowel resection because of their endometriosis?

I have a large ‘mushroom lesion’ that potentially could become an obstruction. I don’t have all the details yet but am just wondering if anyone else has had this/ had this op and could give me some insight.

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Adnalim
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Guineafowlrach profile image
Guineafowlrach

Would love to know too! Am scheduled for bowel resection in October and hella nervous TBH.

Adnalim profile image
Adnalim in reply to Guineafowlrach

Would you mind sharing any thing they’ve told you? I only know this is the plan off the back of an mdt meeting- I’ve not been seen since my scans 🫶🏼

Guineafowlrach profile image
Guineafowlrach in reply to Adnalim

Sure, not that I know that much. They are giving me a full hysterectomy and at the same time a second surgeon will either resection or (they hope), just shave my bowel to get it free of the endo. It really does hurt to go to the loo so I am just pleased someone is going to do something about it before things get worse / blocked completely. He said only 1 percent of his patients need a bag thingy afterwards. Phew. Odds are I wont then. Screw that!!

Not much help, I know, sorry.

Adnalim profile image
Adnalim in reply to Guineafowlrach

What were your symptoms? Did you bleed?

Initially with this issue I was referred out because they thought I had bowel cancer due to the amount of blood in my stool. I’m only 27 so I couldn’t believe it. They removed polyps during a colonoscopy which were not malignant thank god but then they didn’t know what to do with me.

I told gynae my issue and they knew I had bowel endometriosis and sent me for up to date scans to bring to an mdt - they now know there’s a big leison- no clue how the colonoscopy didn’t see this!?

Guineafowlrach profile image
Guineafowlrach

Sorry to hear that. Perhaps they didnt see it because the lesion could maybe be pressing in from the outside?? Not that I have a clue what I am talking about though. I had blood too, and had to have a colonoscopy first to rule out the big C. SO much fun that is. I also had a massive belly and had stopped going to the loo for a week maybe? It got pretty bad, but sorted itself out somehow and now it just hurts to go. I mean, gripping the walls crying, that much pain. Cant wait for it to be hopefully over. Hope they sort yours out soon, its just so depressing.

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