It's a Friday night and I'm cursing myself for not checking my post box earlier. I've just received a copy of my MRI report and I can't tell whether it means I have endometriosis or not. Can anyone help with this? It has three paragraphs of medical lingo, mostly saying things are normal except for a small solid fibrotic nodule and thin adhesions to the posterior uterine serosa amd sigmoid colon, followed by this:
'Conclusion: Thickening of the sacrouterine ligaments. Fibrotic/endometriotic plaque within the pouch of douglas adherent to the colon and posterior uterine serosa.'
My follow-up appointment isn't for another three months. As it's Friday night, I can't call them for an explanation until Monday (although I certainly will be calling them first thing on Monday!). There is no other explanation about this conclusion my doc has written. It's so frustrating! Does it mean I have endometriosis?
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Hello, the jargon is extremely annoying. My MRI also reported adhesions/thickening of ligaments and an endometrial plaque. I’m four weeks post op and now officially diagnosed with Endo xx
I got a phone call from my consultant that said results showed suspected deep infiltrating endo, didn’t share any details. I was then copied into the referral letter to my local BSGE centre which showed my ovary was stuck to my pelvic wall and all sorts she never shared. 🙈
I’m not really sure. I did take it as confirmation it was but I’ve previously read that the lap is the only way to actually diagnose as they take biopsies to check cells are definitely that and not anything else. A lot more of us are diagnosed using MRI now so, I would assume it’s enough. X
I had exactly the same thing, report emailed to me with no explanation. Chased the consultant for weeks after to be told I’d been referred to an endo clinic with a 90 week waitlist! I took the report and paid for a private consultant to translate it for me (which I was so lucky to be able to do) and she confirmed endo and adeno.
There’s a group on Facebook called ‘Endometriosis Guidance and Information Resource UK’ whose admins are really helpful at translating MRI reports, you can post anonymously and redact all your info.
Hey, yes that does sound very much like Endometriosis. Also remember scans don’t show anywhere close to the full extent of disease.
My scans never showed much and then when I had my first diagnostic laparoscopy the disease was so severe they had to stitch me back up and plan a far more extensive surgery. Consultant said it was the “worst pelvis he’d ever seen”.
Best wishes to you, please feel free to message me anytime ❤️
Thank you so much for replying! Sorry to hear how bad yours was. Yes, I have heard that the scans don't pick up everything, so I guess it's likely that there is more going on. I'm lucky really as it's only been about two years since my symptoms started. I know so many people have a much longer wait for even a hint of a diagnosis!
This is rectovaginal (nodular) endometriosis, one form of deep endo with the other being DIE (deep infiltrating). For treatment purposes this is classed as severe and must only be treated in an endo centre.
You can tell that just from those few sentences? For sure?
My doc is based at an endo specialist centre fortunately. I asked to be moved to a specialist after the gynae at my local hospital refused to give me an MRI.
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Hi girls, I'm looking for some reassurance/advice since getting laparoscopy report. X
MRI results 
MRI diagnosis? 
"Is a hysterectomy with removal of the ovaries really a good treatment for endometriosis? NO,it is not." Pls read to help educate yourselves
Pain 😢😢😢
