MRI report

[CitizenErased]

Hi everyone,

I hope you are all okay.

It's a Friday night and I'm cursing myself for not checking my post box earlier. I've just received a copy of my MRI report and I can't tell whether it means I have endometriosis or not. Can anyone help with this? It has three paragraphs of medical lingo, mostly saying things are normal except for a small solid fibrotic nodule and thin adhesions to the posterior uterine serosa amd sigmoid colon, followed by this:

'Conclusion: Thickening of the sacrouterine ligaments. Fibrotic/endometriotic plaque within the pouch of douglas adherent to the colon and posterior uterine serosa.'

My follow-up appointment isn't for another three months. As it's Friday night, I can't call them for an explanation until Monday (although I certainly will be calling them first thing on Monday!). There is no other explanation about this conclusion my doc has written. It's so frustrating! Does it mean I have endometriosis?

[Tangoandmax]

Hello, the jargon is extremely annoying. My MRI also reported adhesions/thickening of ligaments and an endometrial plaque. I’m four weeks post op and now officially diagnosed with Endo xx

[CitizenErased in reply to Tangoandmax]

I know, I can't believe they've just sent me the results but not told me what it means. Why bother sending the results in the first place!

Thank you for letting me know that. So was that info on your MRI not enough for a diagnosis?

[Tangoandmax in reply to CitizenErased]

I got a phone call from my consultant that said results showed suspected deep infiltrating endo, didn’t share any details. I was then copied into the referral letter to my local BSGE centre which showed my ovary was stuck to my pelvic wall and all sorts she never shared. 🙈

I’m not really sure. I did take it as confirmation it was but I’ve previously read that the lap is the only way to actually diagnose as they take biopsies to check cells are definitely that and not anything else. A lot more of us are diagnosed using MRI now so, I would assume it’s enough. X

[CitizenErased in reply to Tangoandmax]

Okay, good to know. Thank you so much for replying. It really helps to talk to people who have had similar experiences!x

[Tangoandmax in reply to CitizenErased]

It really does. No problem at all x

[Bagelhan]

I had exactly the same thing, report emailed to me with no explanation. Chased the consultant for weeks after to be told I’d been referred to an endo clinic with a 90 week waitlist! I took the report and paid for a private consultant to translate it for me (which I was so lucky to be able to do) and she confirmed endo and adeno.

There’s a group on Facebook called ‘Endometriosis Guidance and Information Resource UK’ whose admins are really helpful at translating MRI reports, you can post anonymously and redact all your info.

I hope you get some answers quickly! X

[CitizenErased in reply to Bagelhan]

Thank you so much for replying. Sorry to hear you had a similar experience. I will check out the FB group, thanks for the tip!x

[Lily1986]

Hey, yes that does sound very much like Endometriosis. Also remember scans don’t show anywhere close to the full extent of disease.

My scans never showed much and then when I had my first diagnostic laparoscopy the disease was so severe they had to stitch me back up and plan a far more extensive surgery. Consultant said it was the “worst pelvis he’d ever seen”.

Best wishes to you, please feel free to message me anytime ❤️

[CitizenErased in reply to Lily1986]

Thank you so much for replying! Sorry to hear how bad yours was. Yes, I have heard that the scans don't pick up everything, so I guess it's likely that there is more going on. I'm lucky really as it's only been about two years since my symptoms started. I know so many people have a much longer wait for even a hint of a diagnosis!

Thank you for your kind words ❤️

[Adnalim]

I would say this is your diagnosis 🩷

[Lindle]

This is rectovaginal (nodular) endometriosis, one form of deep endo with the other being DIE (deep infiltrating). For treatment purposes this is classed as severe and must only be treated in an endo centre.

[CitizenErased in reply to Lindle]

Thank you for replying.

You can tell that just from those few sentences? For sure?

My doc is based at an endo specialist centre fortunately. I asked to be moved to a specialist after the gynae at my local hospital refused to give me an MRI.