Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,493 members • 52,981 posts

All posts for March 2024

Recent surgery surprise!

Hello everyone, I wanted to give an update on my situation, as I have been posting on here with 101 questions over the past 3 years! I strongly believed...

Hello everyone, I wanted to give an update on my situation, as I have been pos...

Kittie5117

•7 months ago

4 Replies

Where do I begin?

Hi all, this is all quite unexpected for me to be honest so heres my story. I have recently been diagnosed with blood cancer but during my investigative tests,...

Hi all, this is all quite unexpected for me to be honest so heres my story. I ha...

Vdb88

•7 months ago

4 Replies

endometriosis ‘flare’

hello, I just wanted some advice regarding symptoms. I cannot stop going to the toilet and have so much back and pelvic pain. My period ended 5 days ago but...

hello, I just wanted some advice regarding symptoms. I cannot stop going to th...

Ecclesiastical

•7 months ago

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Advice on hormonal treatment?

hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered...

hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and t...

Apprentice_Hag

•7 months ago

2 Replies

Worst flare up to date.

Hi everyone I guess I'm just needing to vent as I feel so scared and alone. I have suspected Endometriosis but I'm 90 percent certain I have it. So yesterday...

Hi everyone I guess I'm just needing to vent as I feel so scared and alone. I ha...

KB1987

•7 months ago

3 Replies

Advice on shrinking endometrioma

Hi, I've been recently diagnosed with endo and have a large endometrioma on my ovary. I've been advised the only way to get rid of it is with surgery. However...

Hi, I've been recently diagnosed with endo and have a large endometrioma on my o...

SB0910

•7 months ago

6 Replies

shooting pains post lap

Hi Just wondering if anyone had experienced shooting pains up the central part of your vagina(sorry it’s the only way I can describe it) after having a lap...

Hi Just wondering if anyone had experienced shooting pains up the central part...

Gingerlove195

•7 months ago

9 Replies

Desperate for some advice

Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've...

Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 yea...

Marvel-

•7 months ago

3 Replies

Infertility with IV Endo & Ando

I’m 39 been trying for a baby for 6yrs, undergone 6xIUIs, various IVFs inc 4xEC with transfers, 6xFETs with mine & wife’s embryos. 2x early pregnancy losses,...

I’m 39 been trying for a baby for 6yrs, undergone 6xIUIs, various IVFs inc 4xEC ...

Amelia1984

•7 months ago

5 Replies

Cancelled appointments

Hi Just a query, does anyone else keep getting their hospital appointments cancelled at the last minute and rescheduled for 6 months later ? I was due to see...

Hi Just a query, does anyone else keep getting their hospital appointments can...

ElenaJune

•7 months ago

4 Replies

Second lap or treat naturally?

I was diagnosed in 2017 with stage 3 Endo. It was fused to my colon. It was excised by a specialist and it helped with the pain, but I remained infertile. I’m...

I was diagnosed in 2017 with stage 3 Endo. It was fused to my colon. It was exci...

lauraca1

•7 months ago

1 Reply

Blood test confusion

Hi there, I’ve never been formally diagnosed with endometriosis but was told by my GP at 14 that I likely had it, but there was no point in confirming as the...

Hi there, I’ve never been formally diagnosed with endometriosis but was told by...

irishwife93

•7 months ago

9 Replies

Universal credits and endo

Had to go to the job centre today and I'm in the middle of a flare up. My experience today has actually got me stressing out and anxious. So before I'm even...

Had to go to the job centre today and I'm in the middle of a flare up. My experi...

Chronic21

•7 months ago

5 Replies

Perculiar symptom (earache)

Hi all, This is a really random symptom I have and I am convinced it's linked to high estrogen levels or hormones. Every month I will get an earache with...

Hi all, This is a really random symptom I have and I am convinced it's linked to...

Kirsty360

•7 months ago

10 Replies

Experiences, please?

Hi all, Over the course of the last 6 years (at least), I have been literally housebound with severe and disabling symptoms. After repeatedly requesting...

Hi all, Over the course of the last 6 years (at least), I have been literally ...

JustEndoThings

•7 months ago

2 Replies

Possible Endometriosis?

Hi! I should preface this by saying that I’m 18. I’ve been having problems for the past 3 months and I was wondering if they could possibly be endometriosis?...

Hi! I should preface this by saying that I’m 18. I’ve been having problems for t...

warblerwool

•7 months ago

1 Reply

Endometrial build up on right uterine wall

I had a hysteroscopy and laparoscopy two weeks ago and currently waiting for results of biopsies . I just got a letter about what he found during surgery and...

I had a hysteroscopy and laparoscopy two weeks ago and currently waiting for res...

Katon

•7 months ago

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Ivf journey

I have had 1st ivf cycle but it didnt work 😭. 7 eggs collect but ended up with only one has anyone got any advice in order to improve egg quality. Thanks for...

I have had 1st ivf cycle but it didnt work 😭. 7 eggs collect but ended up with ...

_Sunflower

•7 months ago

3 Replies

Painful sex

I am 19 years old and at university and have never experienced sex that hasn't been incredibly painful for me to the point where I have given up trying. Due to...

I am 19 years old and at university and have never experienced sex that hasn't b...

endodragon

•7 months ago

17 Replies

Endometriosis and Emetephobia

Hi, I have struggled with severe symptoms of endometriosis since I was 13 such as vomiting and passing out due to the pain I was experiencing. I have been put...

Hi, I have struggled with severe symptoms of endometriosis since I was 13 such a...

endodragon

•7 months ago

8 Replies

Advice re dizziness 5 days post op

I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pain is getting better I'm off the strong meds but was on morphine for a couple...

I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pa...

DarkStar85

•7 months ago

5 Replies

Endo clinics UK

Hello,I've suspected I've had endometriosis for some years now, with a similar story to most people of being dismissed for other symptoms e.g. IBS and having...

Hello,I've suspected I've had endometriosis for some years now, with a similar s...

Hotpinkpizza

•7 months ago

14 Replies

help with mri review “no active endo”

Hi I’m having a nightmare with my hospital at the moment who have made several big mistakes - was told one diagnosis two months ago and told this week it was...

Hi I’m having a nightmare with my hospital at the moment who have made several...

asread

•7 months ago

1 Reply

Could I have endometriosis?

Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have...

Hello, I am really struggling with symptoms at the moment and I still have no an...

PennyCrowe

•7 months ago

9 Replies

Does a hysterectomy make a difference?

Has anyone found long term benefits from having a hysterectomy to treat endometriosis? Han x

Has anyone found long term benefits from having a hysterectomy to treat endometr...

Han93

•7 months ago

6 Replies

1 year post op with continuing issues

Hi all,I'm coming up to having my year post lap appointment after having an extensive surgery last March. Bit of background: I have deep infiltrating endo...

Hi all,I'm coming up to having my year post lap appointment after having an exte...

Leanne102

•7 months ago

2 Replies

Desogestral and endometriosis

Hey guys, Just wondering if anyone else is on the desogestral (progesterone only) pill. I had a laproscopy in December 2022 to discover stage 4 endometriosis...

Hey guys, Just wondering if anyone else is on the desogestral (progesterone onl...

DoodleBug90

•7 months ago

2 Replies

does your period ever wait for you?

Fully prepared to be the only one as I haven’t ever heard anyone else say this, but does anyone’s period ever “wait” for them? I haven’t been woken up with...

Fully prepared to be the only one as I haven’t ever heard anyone else say this, ...

wonderlander

•7 months ago

9 Replies

Advice request - going in circles with doctors

Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might...

Hi all, I've been suffering with endometriosis for years but I'm really struggli...

Bookworm321123

•7 months ago

2 Replies

bilateral oophorectomy at 34

Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with...

Hi all, I am looking to hear from real people (you folks on this forum) about...

HomebodyFig

•7 months ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2024

Recent surgery surprise!

Where do I begin?

endometriosis ‘flare’

Advice on hormonal treatment?

Worst flare up to date.

Advice on shrinking endometrioma

shooting pains post lap

Desperate for some advice

Infertility with IV Endo & Ando

Cancelled appointments

Second lap or treat naturally?

Blood test confusion

Universal credits and endo

Perculiar symptom (earache)

Experiences, please?

Possible Endometriosis?

Endometrial build up on right uterine wall

Ivf journey

Painful sex

Endometriosis and Emetephobia

Advice re dizziness 5 days post op

Endo clinics UK

help with mri review “no active endo”

Could I have endometriosis?

Does a hysterectomy make a difference?

1 year post op with continuing issues

Desogestral and endometriosis

does your period ever wait for you?

Advice request - going in circles with doctors

bilateral oophorectomy at 34

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