Worst flare up to date.

[KB1987]

Hi everyone I guess I'm just needing to vent as I feel so scared and alone. I have suspected Endometriosis but I'm 90 percent certain I have it. So yesterday morning when I woke up and my bladder was full I was feeling very sore round my pelvic region so went for a pee then after I went everything just seemed to flare up, it felt like my organs were being ripped apart with a real heavy feeling in my pelvic region all day along with the sharp stabbing pains and burning pains. I first thought maybe it was a bladder infection but it's definitely not as I've had loads off them over the years. I guess I'm just wanting to know if it's normal too experience this sort off flare up with Endo, like it feels like a bladder infection but it's not? Any advice would be really appreciate as yesterday scared the hell out off me as that's been the worst flare up yet xx

[MonieBL]

Hey lovely. So sorry to hear you’ve been in pain, but yes, those symptoms are exactly what I feel when I have a bad endo flare. It doubles you over as the pain is so sharp and raw, you’ll unfortunately feel tender and probably because pressure in the area for a few days following this episode, I normally do. I haven’t found anything yet that fully stops the pain when I have these episodes but a hot bath, hot water bottle, ibuprofen and paracetamol and rest tends to at least ease the symptoms. I’ve been trying to track patterns as to what causes these flare ups in order to prevent them happening but unfortunately can’t put my finger on it, the only thing I could think of was being due on my period?? It definitely sounds like an endo flare to me lovely xxx

[KB1987 in reply to MonieBL]

Hey thank you so much for the reply. Sorry to hear your struggling with the same symptoms. They are awful. I'm ovulating atm and my symptoms are always worse then. I ate spicy food on Saturday night so was wondering if that's what the cause was that caused the extreme flare up. Have you had surgery yet for your symptoms or Endo? Xx

[MonieBL in reply to KB1987]

I’m exactly the same when I eat something spicy so it’s most likely that! Also things that are quite stodgy like pastry or bread. I had surgery in 2017 to remove a large cyst and that’s when they found the endo in the first place. I was referred again to see a consultant last year and I had an MRI which showed severe endo so I’m having surgery again this year to remove ovaries and fallopian tubes but not had a date for that yet. Are you under a consultant at the moment investigating your symptoms? I found it helpful to use a food and pain diary where I could write down my symptoms, it makes it easier to present to the consultant xxx