Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,016 members • 52,270 posts

All posts for May 2023

Advice about Spire Liverpool!

hello!! I’m currently waiting for an gynaecology appointment that took me 6 weeks to get becsuse my GP were useless when it came to my consultants letter to...

hello!! I’m currently waiting for an gynaecology appointment that took me 6 wee...

ejc4

•1 year ago

7 Replies

Implant opinions

Hi everyone, after a bit of advice (again!) I have had 2 laparoscopies (1 diagnostic and 1 removal) between the 2 I had 4 lots of Zoladex injections. After...

Hi everyone, after a bit of advice (again!) I have had 2 laparoscopies (1 diag...

Pink_x

•1 year ago

7 Replies

Mirena and Estrogen patches

Hi there, I was diagnosed with Endo at 47 (my pain was undiagnosed for years) and had an oophorectomy (1 ovary) a year later and been trying different hormone...

Hi there, I was diagnosed with Endo at 47 (my pain was undiagnosed for years) an...

Ruthie72

•1 year ago

1 Reply

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Need some advice regarding an appointment with endo specialist

Had a appointment with endo specialist as was dignosed with endo nodule on uterosacral ligament and superficial endo in pouch of dogulas in Nov 2022. Nothing...

Had a appointment with endo specialist as was dignosed with endo nodule on utero...

me94

•1 year ago

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remove ovaries or not? Confused & worried!

hi, I’m early perimenopausal at 48. I just been diagnosed with endo on my ovary and adenomyosis. I’ll try and keep this short, but after years of being on...

hi, I’m early perimenopausal at 48. I just been diagnosed with endo on my ovar...

Tori15

•1 year ago

3 Replies

Mirena coil and double desogestrel. Is it too much?

hi, first time posting. Short version - I currently have the coil in and my dr has just told me to double my desogestrel. Firstly, I’m worried about the safety...

hi, first time posting. Short version - I currently have the coil in and my dr h...

Overtherainbow123

•1 year ago

2 Replies

Oestrogen only HRT

Hello. Does anyone have any experience of taking oestrogen only HRT after a partial hysterectomy? I've been recommended this,by a BSGE consultant, but didn't...

Hello. Does anyone have any experience of taking oestrogen only HRT after a pa...

Albicat

•1 year ago

17 Replies

Feeling sick

Does endometriosis make one feel sick with fever?

Precious5

•1 year ago

9 Replies

Decapeptyl and bone thinning

A quick summary of my journey so far: I was diagnosed with extensive endometriosis in October 2015. I have had two surgeries to removed cysts and...

A quick summary of my journey so far: I was diagnosed with extensive endometrio...

tiger6

•1 year ago

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Discharge post endometrial ablation.

I'm 20 days post endometrial ablation and mirena coil for "Carrie level" periods. Everything has been fine so far, just wondering though when the watery/...

I'm 20 days post endometrial ablation and mirena coil for "Carrie level" periods...

NikkiJR

•1 year ago

5 Replies

Stopping Prostap, How do I stop Hrt? Do I wean off slowly? I'm unsure and scared xxx

I've had Prostap injections twice now and really struggling mentally, I'm not having a third injection and therefore unsure how to manage the hrt side of...

I've had Prostap injections twice now and really struggling mentally, I'm not ha...

Victoria101986

•1 year ago

17 Replies

Lap surgery then hysterectomy surgery wait time

I am having a lap next week to in the words of my surgeon 'have a look around' and then followed up with a hysterectomy including removing womb, cervix,...

I am having a lap next week to in the words of my surgeon 'have a look around' a...

Katiahead

•1 year ago

3 Replies

Pain 4 weeks after oophorectomy

Hello all, I'm just posting in the hopes that someone else has also experienced something similar and that I'm not alone! A quick timeline of my endo journey...

Hello all, I'm just posting in the hopes that someone else has also experienced...

AGI1994

•1 year ago

Be the first to reply

anyone had prostap without Tibolone?

Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pre hysterectomy) .. I didn’t take the Tibolone due to my fears for the first 3...

Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pr...

Batwoman3

•1 year ago

11 Replies

Salpingectomy / Hydrosalpinx?

I (23F) had a laparoscopy 2 years ago where they found out I had a blocked fallopian tube. The pain in that side has been getting worse ever since then, and...

I (23F) had a laparoscopy 2 years ago where they found out I had a blocked fallo...

wavyyyladyyy

•1 year ago

10 Replies

Private consultation and NHS

Hello endo warriors! I will cut my story short as my history is simiar to all of you, fighting with endometriosis. After i have been discharged from the...

Hello endo warriors! I will cut my story short as my history is simiar to all of...

Pisi

•1 year ago

16 Replies

Your bespoke prayer poem on faith and hope

Prayer poem for Elisabeth Linsdon on faith, hope and love It is in this, my hour of serious illness That of faith I have most need Then lord, be there to...

Prayer poem for Elisabeth Linsdon on faith, hope and love It is in this, my hour...

JULIETstevens

•1 year ago

6 Replies

good vitamins?

Hi, I’m doing some of my own problem solving as closer to my periods the tiredness and pain gets worse, just wondering if anyone has any idea on what vitamins...

Hi, I’m doing some of my own problem solving as closer to my periods the tiredn...

ashleytt

•1 year ago

5 Replies

prostap injection

hi, I just wanted to know when you’re periods stop while your on the prostap injection? As I’m worried, I’ve been on it for 4 months and I’m still having my...

hi, I just wanted to know when you’re periods stop while your on the prostap inj...

Ru1989

•1 year ago

1 Reply

Copper IUD and Endometriosis link

Hi, I’m curious to find out if having the copper coil (non hormonal one - not Mirena) may have triggered my endometriosis. Especially where mine was (uteral...

Hi, I’m curious to find out if having the copper coil (non hormonal one - not M...

Irma-T

•1 year ago

4 Replies

I am so upset and don’t know where to go from here…

I went to the doctors with 3 months of pain while going for a pee, I have been on two antibiotics and none have worked. So, I made an appointment with the...

I went to the doctors with 3 months of pain while going for a pee, I have been o...

Sky342

•1 year ago

17 Replies

consultation post diagnosis and accessing more care

SupportI have a consultation with my local NHS Endo specialist this week. I was diagnosed in March 2021 following laparoscopy which should’ve been with this...

SupportI have a consultation with my local NHS Endo specialist this week. I was ...

Claire_Alexandra

•1 year ago

2 Replies

Looking for others who have had a hysterectomy with ovaries removed in their 30s - to get your experiences

Hi all, I'm looking for personal experiences of those who had a hysterectomy with ovaries removed in their 30s. Little about me and why I'm asking. I have...

Hi all, I'm looking for personal experiences of those who had a hysterectomy wit...

Shorty9

•1 year ago

7 Replies

MRI results

Had an appointment with a lovely consultant yesterday after a MRI in Jan. Pain subsided as it has a habit of doing! Main issue is with bowels. So when asked...

Had an appointment with a lovely consultant yesterday after a MRI in Jan. Pain s...

Tipps

•1 year ago

2 Replies

absolutely a joke pip

long story with nerve pain endo nerve pain and endometriosis pain everywhere everyday operations constant scars , bladder bowel issues physical therapy,...

long story with nerve pain endo nerve pain and endometriosis pain everywhere eve...

Lynnsashalily

•1 year ago

4 Replies

Worried

Hello, My Symptoms started abdominal right pain in 2019 and its progressively become worst since that time.I’ve had lots of scans all of which amounted to...

Hello, My Symptoms started abdominal right pain in 2019 and its progressively be...

PauChin

•1 year ago

1 Reply

Fibrotic Endometriosis

I have had an absolute joke of an endo journey. To cut a long story short - after years of scans, a coil for 'treatment', pain etc... I finally had a lap 1.5...

I have had an absolute joke of an endo journey. To cut a long story short - afte...

Ethel-Cloud

•1 year ago

13 Replies

Expedited Appointment

Hello everyone, I received a message from my GP surgery yesterday explaining that they have requested an expeditited appointment with a gynaecologist sooner...

Hello everyone, I received a message from my GP surgery yesterday explaining tha...

Chooklady

•1 year ago

7 Replies

Belly button infection

Three weeks after surgery and belly button infection.... Leaking a pinkish fluid. GP has put me on antibiotics. I'm so upset. Has anyone else has this? How...

Three weeks after surgery and belly button infection.... Leaking a pinkish fluid...

Smeee12

•1 year ago

4 Replies

I’m clueless!

Hello, First post. Joined today! I have been back and forth to gynae since 2018 with severe pelvic pain. In 2021 the consultant said he was convinced...

Hello, First post. Joined today! I have been back and forth to gynae since 2018...

CristinaYork

•1 year ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for May 2023

Advice about Spire Liverpool!

Implant opinions

Mirena and Estrogen patches

Need some advice regarding an appointment with endo specialist

remove ovaries or not? Confused & worried!

Mirena coil and double desogestrel. Is it too much?

Oestrogen only HRT

Feeling sick

Decapeptyl and bone thinning

Discharge post endometrial ablation.

Stopping Prostap, How do I stop Hrt? Do I wean off slowly? I'm unsure and scared xxx

Lap surgery then hysterectomy surgery wait time

Pain 4 weeks after oophorectomy

anyone had prostap without Tibolone?

Salpingectomy / Hydrosalpinx?

Private consultation and NHS

Your bespoke prayer poem on faith and hope

good vitamins?

prostap injection

Copper IUD and Endometriosis link

I am so upset and don’t know where to go from here…

consultation post diagnosis and accessing more care

Looking for others who have had a hysterectomy with ovaries removed in their 30s - to get your experiences

MRI results

absolutely a joke pip

Worried

Fibrotic Endometriosis

Expedited Appointment

Belly button infection

I’m clueless!

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