absolutely a joke pip: long story with... - Endometriosis UK

Endometriosis UK

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absolutely a joke pip

Lynnsashalily profile image
4 Replies

long story with nerve pain endo nerve pain and endometriosis pain everywhere everyday operations constant scars , bladder bowel issues physical therapy, bipolar depression and I get zero points , on opioids painkillers everyday no justice for endo warriors but people can get pip with fuck all wrong with them I’m so annoyed 😤

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Lynnsashalily profile image
Lynnsashalily
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4 Replies
Shanpa69 profile image
Shanpa69

Hi l can understand your frustration especially when your day to day life is a struggle and you get disappointing news. Pip is a complex benefit which means you have to fit your life into the point system Did you have someone help you to complete the form ? Did you have a face to face assessment or telephone ? You really need to request you assessment report to see how they came to there decision as they would have scored you on each area.

You can do a mandatory reconsideration in which you can argue your point to say why they got it wrong for example if they say you can wash yourself without support ?

You can argue on days when your pain is severe you are unable to get to the bathroom without support this means that there are days you are unable to wash and if you do it takes you a very long time and it not done in a reasonable time frame

Pip is not really about the condition but more about how you can complete your day to day activities. I hope you have the strength to fight for what you deserve as l know it’s hard

Take care

CryBaby91 profile image
CryBaby91 in reply to Shanpa69

I'll add to this FAB advice that many people forget to add things that may seem small, but are in fact aids they use in their everyday life. For example, I didn't know that using a sink to get up and sit down on the toilet was classed as a living aid! It absolutely is, and is 1 point on the form. This also counts for a bath, so that's 2 points right there. Describing in lots and lots of detail exactly how you manage your pain, what aids you use and how many days a week this is needed is the best way. I got awarded mine on appeal years ago, and ever since have been really thorough with the detail of how I'm impacted daily. Good and bad days, and how frequent bad days are.

I absolutely agree that having someone help you fill in the forms is the best way to go! Also agree with getting a Mandatory consideration first, you'll probably be rejected again but don't be disheartened! This happens to lots of people. Appeal is the place where you can really fight your case :) get lots of info and fight it babe! X

My_Username profile image
My_Username

It's worth appealing.When my son was moved over from DLA to PIP we were very concerned as I'd heard so many awful stories of deserving people being rejected. (I suspect that it's their policy to reject a certain percentage in the hope that they get away with it.)

So hubby and I both went to his assessment and we recorded the meeting. The rules for this were very precise - We had to have 2 old style tape recorders and give one tape to the assessor at the end of the meeting.

Anyway, he got the PIP and I'm pretty sure the fact that we had taped evidence was a factor.

Inonge1 profile image
Inonge1

Like said by others PIP is about how the condition affects you on a daily basis. I personally use a website called Benefits and work (benefitsandwork.co.uk/priva... They have invaluable templates and help guides that guide you in how to answer the questions on the PIP form.And you can now ask for a recording of your assessment, so you can use that as evidence on your mandatory reconsideration or appeal if reconsideration denied.

Hope this helps.

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