Implant opinions : Hi everyone, after a bit... - Endometriosis UK

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Implant opinions

Pink_x profile image
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Hi everyone, after a bit of advice (again!)

I have had 2 laparoscopies (1 diagnostic and 1 removal) between the 2 I had 4 lots of Zoladex injections. After the surgeries I was still experiencing the same issues and in many ways, my symptoms were exacerbated and bleeding was way more frequent. I would have either no period for 3 months of a period for 10 days with 4 days off. This would last for at least a month.

Again, I was told my only option was Mirena. I finally caved and had an appointment with my GP for it to be fitted. Long story short, after 2 attempts & excruciating pain, it could not be fitted. I had an appointment with my consultant & the decision was made to have it fitted under anaesthetic.

I went in for my appointment & woke up after surgery to be told it couldn’t be fitted. I was told my uterus was tilted backwards and curved under its self meaning the tools couldn’t ‘get round the bend’.

I have been told that my option now, is the implant. Again, I am very hesitant with this & have been told that if I was to get it fitted, I would not feel the benefits until September time at the earliest. From speaking to friends, they said they experience heaving bleeding for several months.

I just wondered if anyone had experience with the implant & if it is worth giving it a go.

apologies for the very long post!

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Pink_x
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7 Replies
Lindle profile image
Lindle

Was your treatment lap at a specialist endo centre for severe endo? A retroverted uterus is often a sign of rectovaginal endo.

Pink_x profile image
Pink_x in reply toLindle

Hi,

Thank you for your response!

My treatment wasn’t done at a specialist centre, just a normal hospital with a gynaecologist consultant.

I was told that my endo was ‘superficial’ but was widespread. They haven’t mentioned rectovaginal, however, was told that endometriosis was removed from certain areas and from my own research, is consistent with rectovaginal endo.

Lindle profile image
Lindle in reply toPink_x

I would say the implant is only an option, certainly not the only or obligatory one. It sounds like you need an expert scan to see if you have deep endo as you do sound like a typical picture. Putting you on hormones risks masking of progression. Will DM you with more info.

AllthatGlitters profile image
AllthatGlitters

hello I have had the implant twice. I would say it masked my gynaecology problems as once I got the implant taken out for the second time, I started to have problems unknown to me at the time this was gynae related. I put on heaps of weight, it bloated me up so much and I would never touch it again. Please don’t let this put you off as it’s only my experience, however I am sure there are positive stories too.

I had endometrial ablation to help with my periods (flooding through clothing) and also HRT, this has made such a difference to my bleeding and pain levels.

X

Annabelannabel profile image
Annabelannabel

I hate all contraceptives however have to have it because of endo I found the implant was the best suited to be however gyne specialist in endo agreed it wasn't enough to control it I'm on dienogest now aswell and didn't bleed for 8 months I've started bleeding again last two month going back to gyne nurse to see what's going on. Diagnosed recto endo on bowel and uteral sacral ligaments and invasive rectal disease. Good luck give it a go see how you get on I've tried all pills coils implant but not the injections or patches. My only option now is zoladex

Pink_x profile image
Pink_x in reply toAnnabelannabel

Hi,

Thank you for your response.

They have suggested the implant and if that still isn’t effective, then I will have to take the pill as well. I just can’t help but worry about all these different hormones & what they are doing.

Thank you, I think my only option will be to give it a go. If you don’t mind me asking, how long did it take for you to feel the benefit of the implant?

Annabelannabel profile image
Annabelannabel in reply toPink_x

I know how you feel shouldn't been full of all these hormones. I've had it twice and decided to get it again as i generally preferred it and its affects with bleeding and headaches best tenderness I haven't really noticed it normally gets put in and forget about it lol. I got mine fitted in July 2022 had it ever since. I think the real benefits do take 3months with most things. My endo had progressed and got put on dienogest aswell in October 2022 to stop my bleeding. As I had experienced the implant before I was pretty confident it would help. I'm thinking of putting a post up about people experiences with zoladex and bowel endo see if maybe that would be better. I hope it helps you as it has me. If it doesn't feel right get it taken out don't let the doctor tell you to wait 3 months for things to settle I had a copper coil for 3 months heavy bleeding in agony and wish I had listened to myself and got it out sooner.

Good luck

Annabel x

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