Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,851 members • 52,605 posts

All posts for March 2022

Bleeding and cramping a week after lletz

I’m not sure if this is the right forum but I am just so mentally drained and I don’t know where else to turn to 😔 About a month ago I had to have a biopsy...

I’m not sure if this is the right forum but I am just so mentally drained and I ...

Chrysta123

•2 years ago

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Hysterectomy update

Hi, so I had my hysterectomy on Monday. It went well though when they opened me up they found things were worse than expected. The cyst had grown from 6cm in...

Hi, so I had my hysterectomy on Monday. It went well though when they opened me...

Jenn2022

•2 years ago

33 Replies

Endometriosis kind

Hi has anyone on here had 2 double thick lining of endometriosis and is high risk of cancer? Also bleeding bad with clots, pain in left side, now also the...

Hi has anyone on here had 2 double thick lining of endometriosis and is high ris...

nikkimatt2019

•2 years ago

2 Replies

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Hi everyone my first post hopefully get some answers :) x

I have had symptoms of endometriosis since I was 18, I’m now 27 and just got diagnosed after a ultrasound & laparoscopy in November. Had nothing but issues...

I have had symptoms of endometriosis since I was 18, I’m now 27 and just got dia...

Terrix

•2 years ago

8 Replies

Anyone have bladder endometriosis?

I’ve been having severe ripping pain in my lower middle abdomen every time I go to the toilet. I have had many UTI in the past and this feels different, at...

I’ve been having severe ripping pain in my lower middle abdomen every time I go ...

Sky342

•2 years ago

2 Replies

Help

Hi all Just after advise. I’m finding I’m having to go a&e with a hospital admission ever few months does anyone have any advise that can help prevent flares ?...

Hi all Just after advise. I’m finding I’m having to go a&e with a hospital admis...

Adeno2020

•2 years ago

3 Replies

Cycle after laparoscopy

Hi, I just wondered how long it takes for your monthly cycle to go back to normal after a laparoscopy for endometriosis . After surgery my first period was...

Hi, I just wondered how long it takes for your monthly cycle to go back to norma...

TheZeeDee

•2 years ago

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Pain all throughout the month?

I used to get pain only during my period. Which would start 1 day before I'm due and about 3-4 days after it stops. However lately the pain although not as...

I used to get pain only during my period. Which would start 1 day before I'm due...

EndoRabbit08

•2 years ago

5 Replies

Endometriosis march

How many people would gather around to do an endometriosis march to make this well aware and for us to voice and get this taken seriously and are treatment to...

How many people would gather around to do an endometriosis march to make this we...

nikkimatt2019

•2 years ago

2 Replies

Endometriosis

In server pain and lot bleeding was recently diagnosed with 2 double thick lining of endo and waiting for next stage I'm at high risk of getting cancer.

In server pain and lot bleeding was recently diagnosed with 2 double thick linin...

nikkimatt2019

•2 years ago

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Has anyone been diagnosed with endometriosis in the liver?

I have severe endometriosis that affects several organs. Following a recent laparoscopy (have had several over the years), my consultant has found something on...

I have severe endometriosis that affects several organs. Following a recent lapa...

VEMS17

•2 years ago

10 Replies

How does the pill help and I'm back in period hell.

I missed one day of the degestorol pill by mistake and I've been in agony for 8 days now. Period from just like a year ago before I went on then progesterone...

I missed one day of the degestorol pill by mistake and I've been in agony for 8 ...

Peppermints

•2 years ago

8 Replies

Laparoscopy shoulder pain

I had my laparoscopy on Friday and the shoulder pain is the worst bit! I’m still suffering with it now, almost 5 days on. The only thing that’s given me any...

I had my laparoscopy on Friday and the shoulder pain is the worst bit! I’m still...

RosieLou94

•2 years ago

2 Replies

Endo Misery, still suffering at 40, trying gabapentin, anyone else tried this?

I have suffered since l was 11 diagnosed at 38 & now at 40 l find myself childless because of this condition devastated is an understatement. I am still...

I have suffered since l was 11 diagnosed at 38 & now at 40 l find myself childle...

SarahAnne81

•2 years ago

3 Replies

Family planning - where to start?

Hi, I was diagnosed with Endo around 3 years ago via a laparoscopy where they found endo in various places including left ovary which is increasingly...

Hi, I was diagnosed with Endo around 3 years ago via a laparoscopy where they f...

CPow17

•2 years ago

2 Replies

Post-laparoscopy Sleeping

Hi guys. I’m having my laparoscopy in a few weeks time and trying to get as prepared as possible! 🙈 I was just wondering about sleeping positions after...

Hi guys. I’m having my laparoscopy in a few weeks time and trying to get as prep...

R_elep

•2 years ago

16 Replies

What Uncool Things Have Doctors Said to You About Your Endometriosis?

mine said just try to relax and the pain can't be that bad! Grrrr

nadinenads

•2 years ago

18 Replies

What to expect?

Hi all, I've been following the page and your posts for a while, they have been very helpful. I've been suffering with pain for a while now, with a rather weak...

Hi all, I've been following the page and your posts for a while, they have been ...

nw417

•2 years ago

1 Reply

Does yeast infection diet really work, or it is a loss of time? (vaginal)

I am interested in personal experiences with this diet. I am kind of desperate. It's been almost 8 months of treatment and although there is an improvement...

I am interested in personal experiences with this diet. I am kind of desperate. ...

MariaREC

•2 years ago

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Follow up Letter?

Hi everyone, I was diagnosed with Endo & PCOS on December 8 during a phone appointment with my gynaecologist. Both myself and my GP have still not received a...

Hi everyone, I was diagnosed with Endo & PCOS on December 8 during a phone appoi...

Yellow-Moo

•2 years ago

7 Replies

Family planning in the hands of a waiting list, struggling to deal with this!

Hi all! I’m new to this group and just wanted to thank everyone on here first of all, its been a massive help in my journey to feel part of a community. I...

Hi all! I’m new to this group and just wanted to thank everyone on here first of...

Runningforsunshine-

•2 years ago

1 Reply

Just some of your stories

Hello, Have had 2 surgies within 2 and half years and currently on my second round of 5 months Decapeptyl injections + merina coil. Got one more month then i...

Hello, Have had 2 surgies within 2 and half years and currently on my second rou...

EQAC

•2 years ago

1 Reply

I am desperate for help

Desperate for help. I have a long story and history but I’m being palmed off and being told it’s just “ chronic Pelvic pain through unknown cause” I have every...

Desperate for help. I have a long story and history but I’m being palmed off and...

Jmm19

•2 years ago

8 Replies

Endo referrals?

Has anyone had success with any London-based nutritionist/dietitian/physio/etc for maintenance/keeping their endo in check? I have been strongly pushed by my...

Has anyone had success with any London-based nutritionist/dietitian/physio/etc f...

MimiM14

•2 years ago

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How do you know if you have both PCOS and endo?

Hi. I have PCOS and I suspect that I have endometriosis as well. I am only 20 and my last ultrasound was a few years ago. If anyone has both PCOS and endo...

Hi. I have PCOS and I suspect that I have endometriosis as well. I am only 20 an...

Lily2491

•2 years ago

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Can your immune system be lowered post op?

I’ve felt a bit worse for wear since my lap and hysteroscopy 4 weeks ago. This past week I’ve felt really run down and poorly. Like I’ve had a really bad bug,...

I’ve felt a bit worse for wear since my lap and hysteroscopy 4 weeks ago. This p...

Bluerock7

•2 years ago

4 Replies

Severe Flare up but no bleeding..

Hi, Is anybody else experiencing painful flare ups but no bleeding? If so, how are you managing? I'm currently on Naproxen 500mg twice a day, codeine 30mg...

Hi, Is anybody else experiencing painful flare ups but no bleeding? If so, how a...

LaLuz

•2 years ago

6 Replies

Awaiting diagnostic lap

Hi does anyone get bad lower right abdomen pain during period and randomly in the month? I'm awaiting a diagnostic lap but was wondering if this is one of the...

Hi does anyone get bad lower right abdomen pain during period and randomly in t...

me94

•2 years ago

16 Replies

Endometriosis and Fertility

Hi, I'm 28 years old and was diagnosed with stage II endometriosis two years ago. Now I am considering getting pregnant but I'm afraid it might be too...

Hi, I'm 28 years old and was diagnosed with stage II endometriosis two years ago...

Sakura93

•2 years ago

6 Replies

Are MRI's accurate in seeing endo in general? To operate or not?

Hiya, I'm asking this question because I've had very negative experiences of my adhesions showing. Following one mri which reported that I had one small area...

Hiya, I'm asking this question because I've had very negative experiences of my ...

Rhhh

•2 years ago

5 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2022

Bleeding and cramping a week after lletz

Hysterectomy update

Endometriosis kind

Hi everyone my first post hopefully get some answers :) x

Anyone have bladder endometriosis?

Help

Cycle after laparoscopy

Pain all throughout the month?

Endometriosis march

Endometriosis

Has anyone been diagnosed with endometriosis in the liver?

How does the pill help and I'm back in period hell.

Laparoscopy shoulder pain

Endo Misery, still suffering at 40, trying gabapentin, anyone else tried this?

Family planning - where to start?

Post-laparoscopy Sleeping

What Uncool Things Have Doctors Said to You About Your Endometriosis?

What to expect?

Does yeast infection diet really work, or it is a loss of time? (vaginal)

Follow up Letter?

Family planning in the hands of a waiting list, struggling to deal with this!

Just some of your stories

I am desperate for help

Endo referrals?

How do you know if you have both PCOS and endo?

Can your immune system be lowered post op?

Severe Flare up but no bleeding..

Awaiting diagnostic lap

Endometriosis and Fertility

Are MRI's accurate in seeing endo in general? To operate or not?

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