Family planning in the hands of a waiting... - Endometriosis UK

Endometriosis UK

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Family planning in the hands of a waiting list, struggling to deal with this!

Runningforsunshine- profile image

Hi all! I’m new to this group and just wanted to thank everyone on here first of all, its been a massive help in my journey to feel part of a community.

I was finally referred to hospital last summer (June 2021) after years of severe pain that debilitated me and left me with anxiety and low self esteem, and issues with my career due to time off every month!

I agreed to go for a laparoscopy but I am still waiting and I am aware I could be waiting for a long long time. I have been back to the doctors a few times due to the worsening pain, and have been put on different pills. The only one that works is Levest, but I can’t even stop for a day as my pain comes instantly back! So I am taking it non stop back to back until my surgery date.

Me and my partner are desperately wanting to try to conceive at the end of this year, but I am aware I physically cannot stop my pill at all and the NHS are clear they cannot bring me up the waiting list at all. This is heartbreaking for me, and I am really struggling at the thought of having to delay starting my family by an unknown amount of time. I feel like the option to have a baby has been completely removed from me and has been put into the hands of a waiting list and it is something t I am struggling with massively recently.

Any advice, comforting words or other experiences would be massively helpful. Am I just being impatient and irrational? I am just so ready to be a mum and feel awful that my husband is now having to delay being a father, which he is so longing for 🥺

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Hi I feel Im i the same boat I came off my inplant (had for 12 years) so i never had any periods at all really had some pains but always put down to IBS so i decided to come off it 6 months before we got married to give my body some time before we could try after wedding thats when everything kicked off badddddddMy wedding ended up being cancelled due to covid. Every period and mid cycle was just tourture so thats when i saw my GP who suspected endo. She refered to gyne but then was told a 9 month wait so i decided to see a private one he put me on his waiting list which was 12-18months. This was 10 months ago. But in the meantime I got my implant put back in because i couldnt handle one more day however even though the periods have stopped again the pains are just as bad still. Now im like stuck waiting for a lap to find out whats going on

I feel there is no way I could just think oh lets just try for baby and have periods each month because I cant see how Id handle to have bleeding again! God knows when the lap will be and what they will find. I feel so down about it all i think about and everyone around you seems to be pregnant! (I also lost a baby 13years ago) and I wonder was this all linked or what? They didnt really have any answers at the time!

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