Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,180 members • 52,780 posts

All posts for March 2022

Bladder issues

I recently had an appointment with urogyne only to be told Endometriosis does not cause bladder issues I'm currently having recurrent urine infections and...

I recently had an appointment with urogyne only to be told Endometriosis does n...

Elizabeth1985

•2 years ago

10 Replies

Have you ever had Physiotherapy for endometriosis?

Hey everyone, I am a physiotherapist in the uk. I have had endometriosis for 16 years. I am researching Physiotherapy post laparoscopy or just helping...

Hey everyone, I am a physiotherapist in the uk. I have had endometriosis for 16 ...

Runner92

•2 years ago

13 Replies

Please don't let it be!!!

Just shy of a year after full hysterectomy (one ovary saved to avoid hrt but then it died anyway so had to start hrt🙄) and the dreaded pain is back😭 that...

Just shy of a year after full hysterectomy (one ovary saved to avoid hrt but the...

lthompson81

•2 years ago

7 Replies

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Pain!!

Hi, So I’m month 4 off birth control (spent 10yrs on it). The symptoms are becoming more obvious now. Currently on my period and I’m getting really bad...

Hi, So I’m month 4 off birth control (spent 10yrs on it). The symptoms are becom...

bumble_96

•2 years ago

3 Replies

Hospital checklist-for tomorrow!

Hi everyone. I've got my first lap tomorrow! Does anyone have some 'must haves' or even basics to take to hospital? Really not too sure what I need. They said...

Hi everyone. I've got my first lap tomorrow! Does anyone have some 'must haves' ...

pygmypuff

•2 years ago

5 Replies

Anyone else having to take repeated time off due to pain?

I haven't been officially diagnosed my gp strongly suspects that I have Endo. First symptoms back in 2019 left pelvic pain, pain during sex, pain when trying...

I haven't been officially diagnosed my gp strongly suspects that I have Endo. Fi...

kaydee1292

•2 years ago

2 Replies

Write to local MP to update the NICE Guidelines

https://secure.endometriosis-uk.org/page/99144/action/1?locale=en-GB&en_chan=wa&en_ref=227754777 Takes literally seconds share and sign far and wide!

https://secure.endometriosis-uk.org/page/99144/action/1?locale=en-GB&en_chan=wa&...

Crazycatladyjones

•2 years ago

3 Replies

Surgery waiting times

I went to the specialist at Preston in late December and was put in the list for a lap. I was told at the time it was a 12-18 month wait. I just wondered how...

I went to the specialist at Preston in late December and was put in the list for...

Mustang2598

•2 years ago

9 Replies

Last one

Hi everyone So I’ve just finished with the zoladex injections. They were useless for me and gave me heavy periods. I’m up for trying anything. Pills patches...

Hi everyone So I’ve just finished with the zoladex injections. They were useles...

Greenlady48

•2 years ago

2 Replies

Endo or Proctalgia fugax?

Hello, I am still in search of a diagnosis but my symptoms only started 9 months ago. I suffer from excruciating shooting pain in my rectum. I originally...

Hello, I am still in search of a diagnosis but my symptoms only started 9 months...

Trinity613

•2 years ago

25 Replies

LGBTQ+ and Endometriosis

Any LGBTQ+ people had any awful experienes at the Doctor's due to their sexuality or how they present themselves as if to say that we can't have or aren't...

Any LGBTQ+ people had any awful experienes at the Doctor's due to their sexualit...

AMaj24

•2 years ago

2 Replies

How to get an appointment privately?

I know I am in the very lucky position of being able to pay for treatement but I don't know how to do it. I know which BSGE centre I want to go to but how do I...

I know I am in the very lucky position of being able to pay for treatement but I...

Melon365

•2 years ago

9 Replies

This Morning ITV

Hi all, just turned over to This Morning and they were talking about endometriosis, might be worth a watch as had some good advice 👍

Hi all, just turned over to This Morning and they were talking about endometrios...

Pureunicorn

•2 years ago

3 Replies

Can you have a delayed allergic reaction to iodine?

Hi all! I had my laparoscopy on Thursday (found and treated stage 2 along with cervical ectropion - the relief is sky high!) but I've developed a strange rash...

Hi all! I had my laparoscopy on Thursday (found and treated stage 2 along with c...

Bex23007

•2 years ago

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Getting pregnant after pro stap and mirina coil x

Hi, I had 6 months of pro stap injections which finished in January, I’m just wondering how long it took people to get back to normal? I’m going to book to...

Hi, I had 6 months of pro stap injections which finished in January, I’m just wo...

ACLParkes73015

•2 years ago

1 Reply

Gynaecologist Appointment TOMORROW

Hi All❤️ I was wondering if anyone has any advice for me. Tomorrow will be my second gynaecologist appointment after nearly a year of constant cancellations. I...

Hi All❤️ I was wondering if anyone has any advice for me. Tomorrow will be my se...

MelaniePhoebe

•2 years ago

3 Replies

Symptom journal- what should I track?

Hi everyone Im fairly newly diagnosed and Ive been thinking of starting a small journal to track my symptoms and figure out when I have flare ups and what...

Hi everyone Im fairly newly diagnosed and Ive been thinking of starting a small ...

LTea

•2 years ago

2 Replies

Ovulation Pain

I’m having the worst ovulation pain in my life I can’t walk get out of bed and feel dizzy and vomiting a hot bath and heat are helping reduce it as well as...

I’m having the worst ovulation pain in my life I can’t walk get out of bed and f...

Littlebug77

•2 years ago

2 Replies

Anyone else in the diagnosis stage just feeling exhausted and mentally drained?

I first went to a doctor about pains way back when I was either 17 or 18. They were put down to period pains and that was it. But they kept happening. I just...

I first went to a doctor about pains way back when I was either 17 or 18. They w...

CaledoniaSloth91

•2 years ago

4 Replies

Pip for long term health illness

Hi I'm just wondering if any of u girls have pip for long term health illness? Before I put claim in many times for my mental health and they declined and my...

Hi I'm just wondering if any of u girls have pip for long term health illness? B...

nikkimatt2019

•2 years ago

10 Replies

Does anyone else think this could sort of work?

Hi my polish friend said this and she could be right tbh (It's all true what you say. Living with an illness means limitations and sacrifices. I don't know,...

Hi my polish friend said this and she could be right tbh (It's all true what you...

nikkimatt2019

•2 years ago

5 Replies

Hopefully can get another scan

I'm ringing gp today to get more scans while waiting for my op in 4 months. It feels like something heavy in inside my left side and I can feel a lump bad and...

I'm ringing gp today to get more scans while waiting for my op in 4 months. It f...

nikkimatt2019

•2 years ago

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Please help!

Hi all. I had a laparoscopy two years ago, where the doctor confirmed I had PCOS and that they found stage 2, widespread endometriosis in the pouch of Douglas....

Hi all. I had a laparoscopy two years ago, where the doctor confirmed I had PCOS...

cfc83

•2 years ago

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Endo flu

Hi everyone wondered if anyone can help me. I started on prostap 3 monthly injections, which have been amazing in finally stopping my period but when I'm due...

Hi everyone wondered if anyone can help me. I started on prostap 3 monthly injec...

MancGirl85

•2 years ago

1 Reply

Trying to conceive after Mirena coil

Hi everyone I’m planning to have the coil removed this summer to start a family. I’m just wondering how long it might take for things to settle down after...

Hi everyone I’m planning to have the coil removed this summer to start a family...

lem00003

•2 years ago

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Coming off tibolone to Evrol

Hi everyone, I’m still on prostap and wondered if anyone had come off tibolone to the evrol patches? How did you find it, any side effects? My consultant has...

Hi everyone, I’m still on prostap and wondered if anyone had come off tibolone ...

Blue1921

•2 years ago

3 Replies

No information about Hysterectomy

I’m due to have a hysterectomy but have not had any information or discussion how this surgery is to take place or what to expect or how to prepare and how to...

I’m due to have a hysterectomy but have not had any information or discussion ho...

logit

•2 years ago

5 Replies

Living with Endo.

I was in extreme pain every month crippled on the floor, unable to move. My condition was missed for years by the doctors who refused to believe there was...

I was in extreme pain every month crippled on the floor, unable to move. My cond...

Hidden

•2 years ago

8 Replies

Anyone had this

Hi girls anyone experiencing left,right sides stomach back endometriosis pain bad even when u try move or get up it hurts so much to point u cant move even a...

Hi girls anyone experiencing left,right sides stomach back endometriosis pain ba...

nikkimatt2019

•2 years ago

26 Replies

Possible endo (or is it just IBS?)

I have some odd symptoms and just don’t know if they’re endo or if they’re IBS. I have coeliac disease also so don’t want to assume it’s endo. Here are some of...

I have some odd symptoms and just don’t know if they’re endo or if they’re IBS. ...

Hocus

•2 years ago

3 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2022

Bladder issues

Have you ever had Physiotherapy for endometriosis?

Please don't let it be!!!

Pain!!

Hospital checklist-for tomorrow!

Anyone else having to take repeated time off due to pain?

Write to local MP to update the NICE Guidelines

Surgery waiting times

Last one

Endo or Proctalgia fugax?

LGBTQ+ and Endometriosis

How to get an appointment privately?

This Morning ITV

Can you have a delayed allergic reaction to iodine?

Getting pregnant after pro stap and mirina coil x

Gynaecologist Appointment TOMORROW

Symptom journal- what should I track?

Ovulation Pain

Anyone else in the diagnosis stage just feeling exhausted and mentally drained?

Pip for long term health illness

Does anyone else think this could sort of work?

Hopefully can get another scan

Please help!

Endo flu

Trying to conceive after Mirena coil

Coming off tibolone to Evrol

No information about Hysterectomy

Living with Endo.

Anyone had this

Possible endo (or is it just IBS?)

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