Bladder issues

[Elizabeth1985]

I recently had an appointment with urogyne only to be told

Endometriosis does not cause bladder issues

I'm currently having recurrent urine infections and constantly given antibiotics and sent on my way no further investigation and feeling completely deflated I've spoken to pals in regards to treatment I just don't know where else or what to do my last letter from the appointment I had was so dismissive there's a lot more to this but only so much I can type

Has anyone had/having similar issues is my first post so very unsure about everything right now

[BloomingMarvellous]

That’s plain wrong. Get another opinion. Ask for referral to specialist centre. Talk to PALS as that’s appalling. It maybe there’s also adenomyosis going on which also affects bladder function.

[Tillyfloss]

Hi. Hope you are having a comfortable day. Did the doctor you saw actually have any experience of endometriosis? My bowel and bladder are both encased with endometriosis and even though I don’t suffer with infections like yourself I get discomfort and pain if I’m not careful so yes endometriosis definitely can impact your bladder ( mine is beyond surgery now so I just manage it which is being successful so far). I would definitely push with pals and are you being treated at a bsge centre for endometriosis at the moment as they may be able to help. In the short term try eating anti inflammatory foods to reduce the inflammation which may help the pain. Xx

[Nikid1991]

HiI massively suffer with bladder problems, and I've been told it's heightened by my Endometriosis.

I was originally referred to urology last year before I was diagnosed. And when all the problems came back at the end of last year i got the diagnosis.

I'm the same as you, been given antibiotics constantly. On so many painkillers i feel like I'm rattling around so I tend not to take them.

My bladder gets worse around he time I'm due on my period but I've now been given some hormone tablets which have pretty much h stopped the bleeding but I still suffer with bladder pain around the time it's meant to be.

I'd definitely ask for another opinion to be honest. Everyone suffers with different types of pain but my bladders the one which has really affected me.

I really hope it gets better for you, and know your not on your own in this!

Take care x

[Purplerain12]

I have bladder issues link to endo too. Not quite the same though. There’s a great webinar that has some useful ways to help on the endometriosis up website. Good luck. It’s so draining when you have to persevere to help help. 💛

[lthompson81]

That's rubbish some of them really haven't got a clue have they! I was in docs with water infections every other week with endo not been bad since hysterectomy although I'm unwell at the moment and think endo is returning. Good luck with everything x

[Avourneen]

How are these people qualified as doctors? Everyone know that endo frequently causes bladder problems you don't need to be a doctor and this clown is meant to be a specialist.Get a different doctor. Look up proper endo centre or proper endo specialist near you. Book a private appt so you don't waste time and reffered for a TV utrasound or mRI and see a real specialist. Write to PALS or the GMC and put in an official complaint about the doctor you saw. He should not be practising and someone else might go on to develop realy serious disease because of his stupid attitude. Good luck.

[Sophsta]

Hi there, that is completely insscurate. I had a endo nodule in my bladder. I suffered with UTI symptoms for 7-10 days after each cycle, for years!! I didn't take anti biotics and soldiered through the pain, as I knew it would eventually pass after my flare up. My last operation was July 2021 at a BGSE centre. On the morning of the op, I was told if the nodule was not removed from my bladder, it would effect my kidney's long term!!! It was the best thing I ever did and thankfully since, not suffered with any UTI pains. Don't settle, you know your own body. Good luck x

[Tina32]

Hi, as everyone else has said what you've been told is wrong. Endometriosis can cause bladder issues. I had stage 4 endometriosis which had infiltrated my bladder and required extensive surgery to remove.

My symptoms at the time were pain/discomfort urinating, urinary frequency, some leakage and nocturia. I unfortunately have also ended up with an overactive bladder so since surgery my symptoms are improved but still present particularly if I have large amounts of certain bladder irritating foods/fluids. But my consultant made it clear that these were 2 separate problems.

I agree get another opinion, especially from someone with endo knowledge and experience.

All the best

Christina

[L0rlah]

Hi there, I had similar to you but often I had the pain but clear urine tests. When I had my lap they found a bladder issue, I had a cystoscopy and urethra dilatation which wasn't pleasant ( I had it under general anesthestic as my bladder was so angry he wanted to be able to do it without it hurting) and since then I've only had one or two UTIs and that was nearly 4 years ago. I had a bladder pain flare up recently which was horrible but it was stress and dehydration related. I now drink more water and I got some probiotics from Boots that had cranberry extract and b vitamins in, I've now been pain free for months! I'm not sure if this is helpful but thought I would share. I really hope you get some answers ❤️

[Elizabeth1985]

Hey all

Thankyou so much for all the reply and knowing I'm not only not crazy but definitely not alone

I've been on the phone and email constantly since posting and have got a few appointments lined up had some bloods taken and hopefully start of getting somewhere with it all

I'm more concerned about it spreading to bladder/kidney area due to only having one kidney from previous cancer when I was younger and knowing its already spread to my bowel I don't want to have it dismissed so much

Thankyou again and so sorry its been a while to reply been a tough few days xx