Please don't let it be!!!: Just shy of a... - Endometriosis UK

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Please don't let it be!!!

lthompson81 profile image
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Just shy of a year after full hysterectomy (one ovary saved to avoid hrt but then it died anyway so had to start hrt🙄) and the dreaded pain is back😭 that distinct can't forget it pain that I know is not caused by anything else, I want to cry. I know my body and I know the pain anyone else experienced this after hysto?

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lthompson81
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lthompson81 profile image
lthompson81

Thanks so much for replying yes no matter how much you hope I think its rare to ever be eradicated completely! I've got appt Mon to discuss being referred back for scan etc and at mo it's just a case of taking pain killers and dealing with it 🥺 hope things work our for you too. And diet yes defo I need to be better tbh xx

lthompson81 profile image
lthompson81

Ah have a good day yeah sometimes there's a point where they have to prob say no to surgery as it's just a vicious circle isn't it amd not always the answer xxx

lthompson81 profile image
lthompson81

Yes!!!! I hate them sending me for ultrasound as I felt it was only ct or mri or opening me up obv where it was detected I'm gonna have a good chat to docs xx

mimilover profile image
mimilover in reply to lthompson81

Yea I had to go to the ground floor for a big special ultra sound . Yes they found it EVERYWHERE. A normal ultra sound doesn’t show much. I also had a benign large tumor on ovary . Just one more thing sucked out in last lascoprcy

mimilover profile image
mimilover

Gosh I relate. I think I have scar tissue. I too am following up on an appt with someone who I won’t stop until I get somewhere . Food is import. There are things that irritate …….caffeine, nuts…..I the. Feel pain in ovary area . My ovaries were taken out years ago with so many other things .

And I am ready for pain pills even though I’m in AA I’ve done the best I can . This will be my last resort if this dr sends me away with physical Therepy . Uh really? I already do all of that but much more. I have back excersises .

Much more than the little Therepy you get . So irritating.

It’s my back that is now the only pain. And also someone wrote about inflammation. I try and prevent that . That is realllllly painful . Inflammatory bouts. I thought my endometriosis was all dormant but my back kidney area is intolerable sometimes.

Nikkky profile image
Nikkky

Hi, I’ve just seen your post. I was similar when I started HRT, my pelvic pain got worse and symptoms of bowel endo returned. I then found out through researching the latest HRT info on the website balance-menopause.com that we need to take a progesterone if we’ve got a history of endo. That applies even when your uterus has been removed. The progesterone controls any left over endo lesions from flaring up. I mentioned it to my g.p and she agreed as she’d recently done a course where it was mentioned. I asked for a body identical progesterone capsule called Utrogestan (as that’s very safe) because I didn’t want a synthetic progesterone that has risks and side effects. Please take a look at balance-menopause.com at the menopause library section. Search for endometriosis and it’ll find an article called about endometriosis and HRT plus a good podcast with Chris Mann and Louise Newson. Then you can put that info to your g.p. Hopefully when you get some progesterone it’ll help with your pain. I know how disheartening it is when the pain returns after a hysterectomy. Best wishes

lthompson81 profile image
lthompson81 in reply to Nikkky

Hey ah thanks for replying yeah I have both the gel then the tablet pain seems to have subsided now thank god just hoping it stays away xxx

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