Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for August 2021

FYI - Science Translational Medicine (August 25, 2021) - Neuropeptide S receptor 1 is a nonhormal treatment target in endometriosis

ICYMI - https://stm.sciencemag.org/content/13/608/eabd6469 Good news - Oxford Univ. & Bayer used a NPSR1 inhibitor to block the protein signaling of the gene...

ICYMI - https://stm.sciencemag.org/content/13/608/eabd6469 Good news - Oxford Un...

Hideko

•3 years ago

Be the first to reply

What pain relief do you use for endometriosis!

I have stage 4 endometriosis. I’m sure you all know how much it sucks, I’ve been in pain now for 6 weeks straight and some days I cannot even bare weight. I’m...

I have stage 4 endometriosis. I’m sure you all know how much it sucks, I’ve been...

Shuri93

•3 years ago

5 Replies

How to get the doctors to take me seriously?

I've suffered with endometriosis since the age of 15. I'm now 30 I've been blessed with 3 children and as soon as i stop breast feeding the pain kicks in. My...

I've suffered with endometriosis since the age of 15. I'm now 30 I've been bless...

Chara87

•3 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Stage 4 Endo ( bowel )

Hi ladies, I am so glad I came across this forum as I have been searching for a while for some kind of realistic answers to the questions in my head rather...

Hi ladies, I am so glad I came across this forum as I have been searching for a ...

Sophia1988Sam

•3 years ago

4 Replies

Injection break

Has anyone taken a break from decapetyl. Been on for 18 months whilst on waiting list for a hysterectomy. Was thinking of taking a break as some horrid...

Has anyone taken a break from decapetyl. Been on for 18 months whilst on waiting...

Chicken2012

•3 years ago

Be the first to reply

Contraception

Hey, I know the pill is meant to be a good way of helping endo or keeping it at bay however I don’t feel like the pill agrees with my body constantly tired,...

Hey, I know the pill is meant to be a good way of helping endo or keeping it at ...

Samsin04042002

•3 years ago

1 Reply

Stick with GP or try private?

I've been up & down with pain for a while now and have kept a symptom diary as I've got concerns that I could have endometriosis. I've been on a long journey...

I've been up & down with pain for a while now and have kept a symptom diary as I...

Shann10

•3 years ago

19 Replies

Successful pregnancy after endo excision?

Hi! I had surgery at the start of July this year and had complete excision of stage 4 endo. I’m looking for some positive stories of having successful...

Hi! I had surgery at the start of July this year and had complete excision of st...

Ilovemycockerspaniel

•3 years ago

3 Replies

My horrendous sciatica journey, facing being in a wheelchair due to endo. (Long, sorry)

Hi there, I will introduce myself, I am Cheryl, I don't often join in many groups of any kind, as I have high functioning Autism on top of all this, which just...

Hi there, I will introduce myself, I am Cheryl, I don't often join in many group...

Chezombie

•3 years ago

4 Replies

PCOS and endometriosis.....

Hi All 👋 hope ur all doing ok, so this is a bit of a strange one but I've just gone online with my GP so I can order my meds etc, I also have access to my...

Hi All 👋 hope ur all doing ok, so this is a bit of a strange one but I've just ...

Pureunicorn

•3 years ago

14 Replies

Can anyone advise on bowel endo pain?

I just want to ask anyone who has bowel endo- do you have specific areas on your abdomen and pelvis that are extremely painful to touch? I was diagnosed and...

I just want to ask anyone who has bowel endo- do you have specific areas on you...

Nikkky

•3 years ago

Be the first to reply

General question

Hey, do anyone with endo tummy swells throughout the day and then wake up flat again? My boyfriend said it was like I defeated. Also I have not had it...

Hey, do anyone with endo tummy swells throughout the day and then wake up flat a...

Samsin04042002

•3 years ago

4 Replies

Recently diagnosed..

I’m looking for a little advice or people in a similar situation or how they coped...I’ve recently had surgery and diagnosed with endometriosis, this explains...

I’m looking for a little advice or people in a similar situation or how they cop...

PinkDaisyH

•3 years ago

2 Replies

Ovarian cyat

Hi everyone, I had my lap last year and since then I am in lots of pain. I feel that i am not believed and my doctor just saw me in june, one year after....

Hi everyone, I had my lap last year and since then I am in lots of pain. I feel...

GabiT

•3 years ago

3 Replies

Ugh! Questionable advice from surgeon about endo returning post excision surgery

Hello lovelies, Just went for an appointment at the hospital with the endo specialist/ surgeon where I live and just feeling so meh! I had excision surgery...

Hello lovelies, Just went for an appointment at the hospital with the endo spe...

Nikneja

•3 years ago

3 Replies

Has anyone got any tips staying positive while trying for a baby

My journey has been a long one. I started my periods at 9 and quickly realised there were not normal. After multiple blood transfusions, getting so poorly I...

My journey has been a long one. I started my periods at 9 and quickly realised ...

Pineapplehead91

•3 years ago

4 Replies

Plan b, yasmis pill and stress cause worsening of syptoms?

Hello, i used to have only painful periods until i was 24, last year I took a plan b pill and the following week I had excruciating pain on my pelvic area. I...

Hello, i used to have only painful periods until i was 24, last year I took a pl...

Keliane

•3 years ago

1 Reply

COVID 19 jab

Has anyone had any side effects or there endometriosis worsening after there COVID Jab I have been so bloated ever since I had my jab

Has anyone had any side effects or there endometriosis worsening after there COV...

Rooneyboy

•3 years ago

5 Replies

Lower abdominal pain before period - symptom?

I'm due to get my period in the next few days, and as usual the cramps are setting in. Last night, I experienced a recurring stabbing pain in my lower left...

I'm due to get my period in the next few days, and as usual the cramps are setti...

ThingWithFeathers53

•3 years ago

15 Replies

Not the best day 😥

Today's not been the best ... I was due to have my op (laparoscopic hysterectomy) went into hospital this morning was first on op list no time for nerves 😑......

Today's not been the best ... I was due to have my op (laparoscopic hysterectomy...

Pb1970

•3 years ago

8 Replies

I’m looking for people with similar symptoms who can give me advice that has pain all the time not just when periods

I’ve been really poorly for 8 months I’m more a less bed bound and can’t eat much living on food replacement milkshakes I’ve had camera in my bowel bladder and...

I’ve been really poorly for 8 months I’m more a less bed bound and can’t eat muc...

Mel2912

•3 years ago

20 Replies

Prostap for the first time

Hi Everyone, I’m hoping someone can help me. I feel like I’m finally getting somewhere with regards to my treatment which I’m very positive about but I’m...

Hi Everyone, I’m hoping someone can help me. I feel like I’m finally getting som...

Rpoy82

•3 years ago

4 Replies

Ovarian Cysts

Anyone else had a Cyst come back so quick after surgery?? Im almost 12 weeks post op, Ended up in hospital over the weekend, a scan this morning showed a...

Anyone else had a Cyst come back so quick after surgery?? Im almost 12 weeks p...

Lucyloo02

•3 years ago

8 Replies

Stopping Decaptyl. Help

I am due to have surgery for my fallopian tube, cysts and endometriosis soon and as such I have been on Decaptyl. Awful side effects but I advised my Surgeon I...

I am due to have surgery for my fallopian tube, cysts and endometriosis soon and...

Blue261

•3 years ago

Be the first to reply

Cervix stenosis or closed cervix during IVF

Hi all, I have had LLetz 3 years ago and no one told me it may affect my fertility. Ultrasound also never showed it. Few days ago I had ET and doctor asked me...

Hi all, I have had LLetz 3 years ago and no one told me it may affect my fertili...

babycometrue

•3 years ago

Be the first to reply

Prostap how will it effect me?

Hi everyone, after my most recent appointment my consultant has requested that I try prostap injections for 6 months and then he will put me on a list for a...

Hi everyone, after my most recent appointment my consultant has requested that I...

Rpoy82

•3 years ago

3 Replies

Nerve pain and chronic gastric issues - HELP

Hi, I am 10 days post laparoscopy and actually in more pain than I was before it didn’t solve any of my problems and I am heartbroken. The surgeon removed the...

Hi, I am 10 days post laparoscopy and actually in more pain than I was before it...

MyStar86

•3 years ago

3 Replies

Food sensitivities since lap

Hello I’m now 3 weeks post op, I was told a small amount of endometriosis was found and removed but I don’t know much more as I was still pretty out of it so...

Hello I’m now 3 weeks post op, I was told a small amount of endometriosis was f...

Cambk

•3 years ago

5 Replies

Beginning the journey

Hi all, Apologies for the rambling of my first post but I was wondering if anyone had any advice for me please. I’ve always suffered from painful periods -...

Hi all, Apologies for the rambling of my first post but I was wondering if anyo...

LilGem88

•3 years ago

1 Reply

Ca125 levels raised

Hi everyone . I,m Currently In the process of investigation for suspected Endometriosis. I had some blood tests done and my Ca125 level came back high 😩. I...

Hi everyone . I,m Currently In the process of investigation for suspected Endom...

RJB212121

•3 years ago

31 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2021

FYI - Science Translational Medicine (August 25, 2021) - Neuropeptide S receptor 1 is a nonhormal treatment target in endometriosis

What pain relief do you use for endometriosis!

How to get the doctors to take me seriously?

Stage 4 Endo ( bowel )

Injection break

Contraception

Stick with GP or try private?

Successful pregnancy after endo excision?

My horrendous sciatica journey, facing being in a wheelchair due to endo. (Long, sorry)

PCOS and endometriosis.....

Can anyone advise on bowel endo pain?

General question

Recently diagnosed..

Ovarian cyat

Ugh! Questionable advice from surgeon about endo returning post excision surgery

Has anyone got any tips staying positive while trying for a baby

Plan b, yasmis pill and stress cause worsening of syptoms?

COVID 19 jab

Lower abdominal pain before period - symptom?

Not the best day 😥

I’m looking for people with similar symptoms who can give me advice that has pain all the time not just when periods

Prostap for the first time

Ovarian Cysts

Stopping Decaptyl. Help

Cervix stenosis or closed cervix during IVF

Prostap how will it effect me?

Nerve pain and chronic gastric issues - HELP

Food sensitivities since lap

Beginning the journey

Ca125 levels raised

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive