Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,496 members • 52,983 posts

All posts for January 2020

23 had a laparoscopy, no endometriosis but the pain is crippling still.

I'm new, looking for advice... I had a laparoscopy 3 years ago in which "something" found was removed but no evidence of Endometriosis, but the nurse said they...

I'm new, looking for advice... I had a laparoscopy 3 years ago in which "somethi...

Hidden

•5 years ago

5 Replies

Pinderfields hospital, West Yorkshire

Hey has anyone had their surgery at Pinderfields hospital in Wakefield? Just wondering how long you were waiting for surgery once you were put on the waiting...

Hey has anyone had their surgery at Pinderfields hospital in Wakefield? Just won...

lizzyxx

•5 years ago

5 Replies

LAP & DYE

Hi, I am new here. I had planned lap surgery to remove a cyst that was growing on my ovary and check for endo.( i was experiencing fertility issues and was...

Hi, I am new here. I had planned lap surgery to remove a cyst that was growing ...

anko

•5 years ago

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Endometriosis somewhere else???

Hi all! Currently going through the motions AGAIN for some sort of diagnosis. Had a stomach laparoscopy 2 years ago which found severe adhesions but no endo....

Hi all! Currently going through the motions AGAIN for some sort of diagnosis. Ha...

Brownbear95

•5 years ago

4 Replies

Endo and nerve problems

Has anyone ever had nerve problems with endometriosis? I've recently found my legs and hands to be quite shaky. I also find sometimes a feeling in my leg as...

Has anyone ever had nerve problems with endometriosis? I've recently found my l...

Petit-ange

•5 years ago

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prostap injections

Hi, I’m due to start prostap injections next month I delayed having them for while but my gynaecologist said it’s the best option for me. Can anyone sure...

Hi, I’m due to start prostap injections next month I delayed having them for wh...

walktoremember

•5 years ago

2 Replies

Just want to cry and eat organic chocolate since that’s all I’m allowed endo affecting sex life!Suicidal feelings

So me and my partner was about to attempt sex this morning but didn’t end up as my alarm went off to get up well we only did a bit of foreplay so to me it was...

So me and my partner was about to attempt sex this morning but didn’t end up as ...

Afrohair

•5 years ago

5 Replies

Has hysterectomy helped anyone??

Hi, A subtotal hysterectomy (leaving one ovary behind) has been recommended - I've already had a bi-lateral salpinectomy in 2018 - as I am experiencing very...

Hi, A subtotal hysterectomy (leaving one ovary behind) has been recommended - I'...

maggiemay39

•5 years ago

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What to do if a GP refuses to refer you to an endo specialist or a BSGE certified centre

POST ORIGINALLY WRITTEN AND PUBLISHED BY ANNIE ROSE BARBER. I am sharing to spread awareness and help each other. I’ve been there! Even after an MRI showed...

POST ORIGINALLY WRITTEN AND PUBLISHED BY ANNIE ROSE BARBER. I am sharing to spr...

StefaniaJW

•5 years ago

1 Reply

Hysterectomy and bowel surgery op

I have a hysterectomy and bowel surgery coming up in the next month, have a total abdominal hysterectomy and then part of my bowel removed and rectum then...

I have a hysterectomy and bowel surgery coming up in the next month, have a tota...

Metriosisgirl

•5 years ago

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Endometriosis and Interstitial Cystitis

Hi, Does anyone have a diagnosis of endometriosis and interstitial cystitis? What is your experience of this? What symptoms do you have? How do you manage...

Hi, Does anyone have a diagnosis of endometriosis and interstitial cystitis? Wh...

LCI1

•5 years ago

12 Replies

Specialist BSGE Endometriosis centre

Hi, I have just been diagnosed with Severe Endometriosis following a laparoscopy and have a few questions with regards to referral to a specialist BSGE...

Hi, I have just been diagnosed with Severe Endometriosis following a laparoscop...

LCI1

•5 years ago

2 Replies

Hydrosalpinx/hematosalpinx

Does anyone else have a hydrosalpinx/hematosalpinx? If so, did your doc suggest removal or to just monitor it? Am distressed and would really help to connect...

Does anyone else have a hydrosalpinx/hematosalpinx? If so, did your doc suggest ...

Saib26

•5 years ago

8 Replies

Finally saw gynaecology consultant

So I saw gynae consultant today and going by symptoms I told him about, he recommended diagnostic laparoscopy. In the strangest way I really hope they find...

So I saw gynae consultant today and going by symptoms I told him about, he recom...

Scottoe

•5 years ago

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Anybody had the Mirena Coil fitted and not bled!?

Guys! I had the mirena coil fitted on Friday (after already having one laparoscopy for Endo, I am trying this before going forward for my second op!). The...

Guys! I had the mirena coil fitted on Friday (after already having one laparosco...

LauraJayne92

•5 years ago

3 Replies

6 more days till I see the bsge specialist!Excited

Sounds stupid me getting excited but my gp didn’t refer me to a specialist and my gynaecologist wouldn’t refer me to a specialist I came to the conclusion my...

Sounds stupid me getting excited but my gp didn’t refer me to a specialist and m...

Afrohair

•5 years ago

11 Replies

Feeling so down and cant stop crying today!

Feel so down today and struggling to cope with it all. I went for my first fertility blood test done today and burst in to tears in front of the nurse! Just...

Feel so down today and struggling to cope with it all. I went for my first ferti...

Emmarussell

•5 years ago

4 Replies

Pill free break

Hi all, my first pill free break for nearly a year. Hopefully it doesn't go horribly wrong. Figured I might as well have a break, I've been non stop bleeding...

Hi all, my first pill free break for nearly a year. Hopefully it doesn't go horr...

ELISE2

•5 years ago

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Contraception

What contraception have people used to help with their endometriosis? I’ve been told to try the coil. However, doing my research I don’t like the sound of it.

What contraception have people used to help with their endometriosis? I’ve been ...

Marisa97

•5 years ago

7 Replies

Ovarian cyst

Hi ladies, So I was suppose to have surgery for my ovarian cyst I have now had since August 2019 when it got to the day of the surgery the doctors advised me...

Hi ladies, So I was suppose to have surgery for my ovarian cyst I have now had ...

Notebo

•5 years ago

17 Replies

Laparoscopy?

My MRI came back and shows I have Endometriosis round the ligaments of my womb, it doesn't look too bad apparently, they can't see anything too worrying. I am...

My MRI came back and shows I have Endometriosis round the ligaments of my womb, ...

BananaShake

•5 years ago

10 Replies

Feeling as free as my hair

Hello everyone, So this may be slightly off topic but one of the ways endometriosis affects me is by making my hair as thin as possible. Whilst my hair has...

Hello everyone, So this may be slightly off topic but one of the ways endometr...

Bubble_by

•5 years ago

1 Reply

Digestion issues - celiac?

Hi all, Just a quick post to say that I'm really struggling to eat at the moment - trying to pinpoint the culprit, but I think gluten is the cause of my...

Hi all, Just a quick post to say that I'm really struggling to eat at the momen...

rachel239

•5 years ago

5 Replies

Returning endometriosis?

Hi all, I had a laparoscopy for Stage 3 endometriosis in my pelvic wall back in May last year and the consultant advised that he got rid of it all. I’ve been...

Hi all, I had a laparoscopy for Stage 3 endometriosis in my pelvic wall back in...

Chelsea1980

•5 years ago

11 Replies

Is my endo back or did they miss something?

Hello ladies, I am in need of some advice. I am questioning whether I should go back to my gyne, find a new specialist or whether this is my lot and I need to...

Hello ladies, I am in need of some advice. I am questioning whether I should go ...

RubySmith3

•5 years ago

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Has anyone had a laparoscopy and endometriosis has not returned?

Hi all I had a laparoscopy in November and had a cyst removed on my right side. I was diagnosed with stage 2 Endo. From researching, I am under the impression...

Hi all I had a laparoscopy in November and had a cyst removed on my right side. ...

Therony

•5 years ago

7 Replies

Bladder endo... anyone out there?

Morning all, Anyone got endo inside their bladder? I’ve searched previous posts and not many get commented on so reaching out for a bit advice if anyone has...

Morning all, Anyone got endo inside their bladder? I’ve searched previous posts ...

SarahMow

•5 years ago

21 Replies

Endo stage 4 NI specialist

Hey everyone, I was diagnosed in 2017 with a left side endometrioma after many many years of complaints of pain, heavy bleeding, longevity of bleeding,...

Hey everyone, I was diagnosed in 2017 with a left side endometrioma after many...

Endo_Jaded

•5 years ago

66 Replies

Hernia in lymph nodes

Hi I have just found out I have a hernia in my right and left lymph nodes in my groin. Has anyone else experienced this with endometriosis?

Hi I have just found out I have a hernia in my right and left lymph nodes in my ...

Cazywazy

•5 years ago

5 Replies

Endometriosis centre referral

Hi I have been referred to see a specialist at my local endometriosis centre in Exeter and wondered what sort of waiting time there will until the appointment...

Hi I have been referred to see a specialist at my local endometriosis centre in...

lorraine1981

•5 years ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2020

23 had a laparoscopy, no endometriosis but the pain is crippling still.

Pinderfields hospital, West Yorkshire

LAP & DYE

Endometriosis somewhere else???

Endo and nerve problems

prostap injections

Just want to cry and eat organic chocolate since that’s all I’m allowed endo affecting sex life!Suicidal feelings

Has hysterectomy helped anyone??

What to do if a GP refuses to refer you to an endo specialist or a BSGE certified centre

Hysterectomy and bowel surgery op

Endometriosis and Interstitial Cystitis

Specialist BSGE Endometriosis centre

Hydrosalpinx/hematosalpinx

Finally saw gynaecology consultant

Anybody had the Mirena Coil fitted and not bled!?

6 more days till I see the bsge specialist!Excited

Feeling so down and cant stop crying today!

Pill free break

Contraception

Ovarian cyst

Laparoscopy?

Feeling as free as my hair

Digestion issues - celiac?

Returning endometriosis?

Is my endo back or did they miss something?

Has anyone had a laparoscopy and endometriosis has not returned?

Bladder endo... anyone out there?

Endo stage 4 NI specialist

Hernia in lymph nodes

Endometriosis centre referral

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