Ovarian cyst : Hi ladies, So I was suppose... - Endometriosis UK

Endometriosis UK

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Ovarian cyst

Notebo
Notebo

Hi ladies,

So I was suppose to have surgery for my ovarian cyst I have now had since August 2019 when it got to the day of the surgery the doctors advised me since I haven't had any children yet it's not a good idea and could be really risky they gave me the alternative option of taking birth control pills to stop my periods for 3 months and avoid other cyst from forming. The birth control is not working for me and my periods are painful as ever. I also recently found out my cyst has grown from 4.6cm to 5.7cm. Honestly I dont know what to do from here I'm really disheartened confused and lost anyone please help and advice

17 Replies

Do you have a diagnosis of endometriosis?

There's no way they should wait until the day of the surgery to cancel the operation on that basis as it was an issue they knew about before.

Notebo
Notebo in reply to NW248

When I first started feeling unwell I went for a private scan and she mentioned that I had endometriosis but I have not heard anything from doctors after saying that I do. I thought it was unusual that they cancelled my laparoscopy on the day as well but I was scared and just did what they asked me to do. Now my cyst has grown bigger and I'm not sure what to do anymore

NW248
NW248 in reply to Notebo

Did your doctors get the results of the scan, do they know that a scan indicated endometriosis? Was it an ultra-sound scan of MRI scan? How long ago was it?

Ultrasounds sometimes show endo, but often miss it, it depends how it is structured. MRIs are much better. So if the scan either wasn't an MRI or was some time ago, then you need to push to have another to see how much of a problem the endo is.

If your GP or gynae doesn't realise that you have endo and is giving you a oestrogen based pill then that would make it worse.

Notebo
Notebo in reply to NW248

It was a while back actually August 2019 and it was a ultrasound. I will push for an MRI scan hopefully they listen and give me one. Thank you

If it’s an endometrioma cyst then the endiometrosis eats away your healthy eggs and waiting is not advisable if it’s reached +5cm, I highly recommend finding a good excission surgeon.

Notebo
Notebo in reply to Samaher87

Thank you so much for your feedback I will certainly look into it

Hi Notebo, how annoying for you to gear yourself up for the op and the. Be told it’s cancelled. I had an ovarian cyst (endometrioma) 5cm and on my Fallopian tube. I had the op when I was 25 and I had no kids at that point so unless the “rules”have changed. I am currently going for IVF as they have now found further cysts etc but they have now advised me against the op as my egg reverse it’s low and the op could bring this lower so I will be put in the menopause as apparently this shrinks them. When I had them removed it was because my periods were so painful. Do your cysts cause you pain?

Notebo
Notebo in reply to Jonesy84

Everyday I'm in pain its inflammed I'm not sure what to do

Jonesy84
Jonesy84 in reply to Notebo

I would definitely go back to the doctors and ask to be referred back to the specialist or see what else they can do. It’s so bad that they cancelled the op but then the alternative has not even worked and it’s been 5 months since. Sorry I know I haven’t been much help but I would definitely put some pressure on the dr as it’s affecting your life and that’s not right. I hope you get sorted soon and keep us updated xx

Notebo
Notebo in reply to Jonesy84

Thank you so much you have been helpful I will chase them up and see what they can do for me

Thats terrible! I have endo and had a cyst in november, it wasnt to do with the endo and was just an ovarian cyst. Id never had one before, i was in constant pain and vomiting and mine was only 2.3 cm! Drs were crap, i only started to feel better after drinking apple cider vinegar with warm water 3 times a day. I also took wild yam capsules and clarey sage oil, geranium and frankensence on my tummy. I found lots of info on this online because all the drs would do was give me codeine which makes me sick. It could be coincidence but i felt better a couple of days later and the pain started to ease off. When i got scanned last week it had totally gone.

Notebo
Notebo in reply to Purplewitch18

Omg that's amazing to get your testimony because indeed the codeine they give me does make me feel sick I'm gonna start trying all these methods are keep you posted thank you so much again x

Purplewitch18
Purplewitch18 in reply to Notebo

Your welcome, i really hope it gives you the relief it gave me. I found quite a few blogs etc about it, and apple cider vinegar is amazing for lots of things. The pain is horrendous and the nausea, and on top of all that they go and give us codeine! 🤢x

Notebo
Notebo in reply to Purplewitch18

How long did it take for your cyst to completely go? And did you feel pulsating sensations whilst using apple cider vinegar.?

Purplewitch18
Purplewitch18 in reply to Notebo

No i didnt get pulsing sensations. I think it was gone around a week after but i didnt have a scan to confirm it untill january but i felt better so it must have gone.

Notebo
Notebo in reply to Purplewitch18

Oh ok thank you. Did you apply the essential oils on your stomach?

Purplewitch18
Purplewitch18 in reply to Notebo

Yes i massaged them into my tummy 2 to 3 times a day, and i also put some on my pulse points aswel. People kept saying how nice i smelled! I dont know if the wild yam made a difference but im still taking that, and i also took turmeric capsules, but i think the things that helped the most were the vinegar and the oils. With the vinegar if you take too much in one go it can agrevate, so just one tablespoon mixed with warm water in a small glass is more than enough and you will hopefully feel some relief quite quickly. I dont know if the same applies for an endometriomal cyst but its not going to do any harm to try.

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