Hydrosalpinx/hematosalpinx

[Saib26]

Does anyone else have a hydrosalpinx/hematosalpinx? If so, did your doc suggest removal or to just monitor it? Am distressed and would really help to connect with others in the same boat. Thanks in advance

[EmaW]

Hiya,

It may not be very helpful but I found out that I have a hydrosalpinx on my left side in October at my first IVF ultrasound/consultation. Because I still had a lot of endo left too, my doctor advised me to have surgery to treat it all before starting IVF. He said he’d do all he could to save my left tube but in most cases it would have to be removed. I then found out I had managed to conceive naturally so haven’t had the surgery.

What has your doctor advised? I’d never heard of it before so was pretty scary when I first found out. Hope you’re ok 🙂

[Saib26 in reply to EmaW]

Thank you Ema and congratulations! Happy for you

The doctor who was treating me put me on meds and in the next ultrasound it seemed to get smaller! But I landed growing two new, tiny cysts. He would like me to continue the meds. But I took a second opinion - largely cos this doctor was unavailable when I had an acute gastritis attack and was trying to reach him - and the other doctor is advising surgery to drain/remove the tube and drain the small cysts (largest is 3 cm, smallest is 1 cm), excise the adhesions and endo. Post this, I will be on about 3 -6 months of hormonal injections and then long term use of BCP. I really don't know what to do with conflicting opinions. I don't plan on starting a family, and I'm almost pain free (pls don't hate me).

I wish you an easy pregnancy and delivery

[Run4ever in reply to EmaW]

gives me hope thank you as i have exact same

[Run4ever]

I've just been diagnosed with R side hydrosalpinx on Mon following lap and dye for endometriosis / fertility. Feeling confused

[Saib26 in reply to Run4ever]

Sorry to hear about the salpinx post your lap. Let us know how it goes. Good luck and stay strong

[katiehopeful81]

Pls can you tell me what they recommended as treatment for your hematosalpinx? I’ve just found out I have one on the left tube after a traumatic egg collection x

[Lucky87 in reply to katiehopeful81]

I had to have mine removed

[katiehopeful81 in reply to Lucky87]

I’m having another MRI as the mild pain is the same since the first scan. Was yours haematosalpinx or hydro salpinx?