Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/endoscopy. Today, Wednesday, my daughter was goiing to vist if I were up to it--I am but she isn't!
Monday was the awful colonoscopy prep day, but I felt pretty lousy without that started. Off balance, upset belly, like unlike myself and discouraged. Couldn't get a hold of orthotics people about whether they had gotten needed Rx for ankle braces and specially made shoes. Frustrating, lousy almost but not totally helpless day.
Tuesday--hardly slept last night. Woke up with feces all over the place--the bed, my pants, pajamas (top and bottom) and onto the side of the mattress, bed, rug plus the dog who'd been asleep right by the bed and my walker, plus on top pf my slippers, then after I headed to our master bath, all along the floor, on the shower curtain and the toilet seat and floor around the toilet! I hadn't a clue about any of that until I sat up, turned on the tiny light and stood up. This woke my husband up, and he reacted to the mess he was going to have to clean up, LOL (I can only laugh about that today!) I was able to do my share of the cleaning, including showering from my left shoulder down, right hip down. Actually got to the 7 am appt on time, with a washing machine full of nasty sheets left at home! Every one at the hospital was very nice, and open to joking about these tests, initiated by me, of course. I really liked the anesthesiologist! the sedation was quick acting, and quick ending. I woke up feeling better than I had in several days! Only a little hungry. The rest of the day was pleasant, and I was able to help getting laundry done. Oh, 9/26 is my half year "birthday", now 77 1/2 rather than just 77, lol!
Today I called my daughter to let her know that I felt fine for a visit from her, but she said she was exhausted! She'd taken the day off--she's a 7th grade social studies teacher. She said she'd slept 10 hours last night but still felt so tired. I told her to make self care important and that I sure understand her need for a day of rrelaxation abd self care! I had thought I'd ask her to help me go through some clothes, sort into definitely keep, definately take to Good Will, definitely throw away and undecided. Huge number of trousers and tops tp sort thru. With her not coming, i turned to the frustrating job of phoning medical offices about prescriptions needed/filled or not. More frustration! The gastro-doc sent two new and badly needed Rxs to the specialty pharmacy that I get Xeloda from rather than the local pharmacy where I get all other meds and where they know me and offer me such great service that I buy there rather than the mail Rx ooffered by my med insurance. I phoned the doc's office, then got a call from the specialty pharmacy and after a long conversation, the woman who phoned me said they would get the meds to me tomorrow, and only after that, she told me she'd need a credit card number, though I've never had to poay befor3e Xeloda is sent. I got her me to transfer me to someone who could help me, and that woman was easy to understand, pleasant and helpful! She was going to send the Rxs to someone who could forward them to my pharmacy, which I called next to see if these meds are in stock and they are. In the midst of this phoning, I got two incoming calls that went to answering machine cause
"line in use" and both were also med related! My primary care doc appt was cancelled. It's 4 pm and I'm not dressed yet! I did watch a new mystery series on PBS that we'd recorded and that is very promising, but haven't done anything else yet today.
It feels good to write this all down. I only fixed about half the typos in this, not like me at all.
Pfizer Ibrance bottle
MBC Journey so far
