Catching up- Enhertu 1st round

[Hotlantaphatz]

I am having a second round on Monday Oct 2. When 👀 back over the first round the first week was my worst week filled with nausea 🤢, fatigue 😩and no appetite. I powered 🪫 through it by staying hydrated 💦 and eating a bland diet. As the weeks went by I began to feel better. Less nausea and felt like getting up and moving about the house. I walked a bit. Hair loss? Yes! I looked down while in shower and noticed the floor was covered with my little natural hair curls. ➰➰➰ Quelle nightmare! But after I contained my shock 🤯 I said “it will grow back”. Hey MBC Chics I will let you know how the second round is. XXXXX

[LDR1]

Stay strong, here’s hoping the drug is very effective for you and all those side effects are worth it! 🙏🏼💜

[Adele_Julia]

Wow ! I’ve had 5 infusions and have sailed right thru them with only constipation as a side effect. No hair loss either so it is definitely different for everyone. I’d suggest goi g to Facebook and join the Enhertu group. Tons of ladies on there and a good deal from when it was a Destiny trial. One gal has had 43 infusions !! So far Enhertu has gotten me close to NED and cleared up my skin Mets etc. I’m ER/PR positive and her2 low. Wish I g you an easier time next infusion. They say side effects are common days 4-7 after the infusion as that is when Enhertu drops its targeted payload as it were. 🥰

[Hopeful4Cure in reply to Adele_Julia]

I have the same dx as Adele_Julia and have really not had that many issues and I will have my 5th next Monday. I hope to see a drop in tm's too. I am amazed to hear that a woman has had 43 infusions. That many seems to be a lot, 3.5 years. However, we do not know the circumstances regarding her mets. Once the cancer is tackled, I would think that the infusions would then, perhaps be a maintenance program. I do know that Enhertu stays in your system for about 5 days, so the 4-7 days after of feeling icky with side effects, but we are all different. Blessings and I hope it continues to work.

[Adele_Julia in reply to Hopeful4Cure]

Good to hear !! If you join the Enhertu Facebook group , she’s on there as a Yvonne Thomas. My onc did say if I reach NED and stay there for a period of 6 months they may either extend the weeks between infusion or put me on Exemestane which is an oral like maintenance drug and only use Enhertu as the whaka mole hammer 😂 if it comes back. In that way we don’t allow the body to get used to Enhertu and then fail. I’m hoping that’s the route we take praise God ! 🙏❤️🙏

[Hopeful4Cure in reply to Adele_Julia]

That is extremely helpful information. I would agree that any overuse, just like antibotics, the body builds up a resistence. I only wonder why it takes more infusions for some to get back on track than others. My tm's are still around 1800 and will have my 5th this Monday. I am not on any of those social things like FB or Twitter, but thank you for letting us know.

[Adele_Julia in reply to Hopeful4Cure]

I’m only on Facebook for the breast support groups myself ! Best sweetie !

[Figletf]

I had a huge hair loss also😞I suffered constipation then after miralax diarrhea during the night.What a mess😩

For the past three nights my Trazadone for sleep has not worked.I awake around 1 to 3 am to go potty and cannot fall back to sleep. I keep hoping this drug is as great as I was told.

Hope after the 2nd infusion things get better.

[Nocillo]

Hope things settle down for your next round. What a roller coaster we are on! Good luck 🍀!

[Hotlantaphatz in reply to Nocillo]

You said it sister! 🎢

[diamags]

Thank you for your update. I love your approach to this!

[Totheriver]

hope the next round will be better for you💕. We are on quite a journey and at times it is not easy.

[Supermary]

Hi

diagnosed June 2020

Had 6rpunds carbo platin TAXOL

Then NED

Them a short time in a selinexor blind trial didn’t work

Then June 2021 started ENHERTU TRIAL

I was on ENHERTU UNTIL JUST TWO WEEKS ago every 3 weeks an infusion

Trial for me as I am endometrial cancer stage 4

It did a great job killing the 4little cancer spots that reappeared cancer

I found it very tolerable these past two years

I cold capped every three weeks and didn’t loose my hair some thinning but no loss

I iced my feet and hands and got

No neuropathy

I did start a consistent dry cough this year and unfofetunately after several tests they believe it’s the beginning of ILD so off the trial I am on Prednisone to clear the inflammation now

My take is that like all chemos eventually they get too toxic

Sure I’m sad but the cancer is gone for now and IT STAYED AWAY for over two years

My doctor said I was the longest in the trial so that’s cool

I will stayed monitored with scans and I will look at other options in my toolbox if and when it returns

Unfoetunately Her2+ is a relentless cancer beast and a smart one too

But ENHERTU did do it’s job for over two years so for that I am thankful

Good luck to you it will all be ok

Margaret

[Kruza]

Hey girl, so happy to hear from you, you have certainly been on my mind so be rest assured prayers have been said. Hope this Enhertu art of the journey treats you well as you go along.

[mariootsi]

Keep us posted.